Information for Patients, Family and Friends

Northern Kentucky Convention Center
Cincinnati Marriott at RiverCenter
Covington, KY

Click Here to Register

  

LAMposium is the largest conference in the world where individuals with lymphangioleiomyomatosis (LAM), and their loved ones, have the opportunity to educate themselves, share their experiences and connect with others who have LAM. In addition, women with LAM and their families have a unique opportunity to meet LAM scientists and consult with the world’s most experienced LAM clinicians.


 Thursday, September 6  
4:00 PM - 9:00 PM Registration 
6:00 PM - 7:00 PM  Yoga 
6:00 PM - 7:00 PM  Book Signing with Laura Esther Wolfson
7:00 PM - 9:00 PM  Welcome Reception - All Attendees 
   
Friday, September 7  
7:00 AM - 8:30 AM  Breakfast - All Attendees 
8:30 AM - 12:30 PM  Patient & Family Sessions 
12:30 PM - 1:30 PM  Lunch - All Attendees 
1:30 PM - 4:45 PM  Patient & Family Sessions 
6:30 PM - 9:30 PM  RLDC Celebration Banquet 
   
Saturday, September 8  
7:00 AM - 8:30 AM Breakfast - All Attendees 
8:30 AM - 12:00 PM  Patient & Family Sessions
12:00 PM - 1:00 PM Lunch - All Attendees 
1:00 PM - 4:30 PM  Patient & Family Sessions 
6:00 PM - Midnight  Breath of Hope Gala 
   
Sunday, September 9  
7:00 AM - 9:00 AM  Breakfast - All Attendees
9:00 AM - 10:00 AM  Research Conference Summary 

LAMposium Speakers and Topicsplus

Some of the topics that will be covered throughout the weekend will include:

LAM 101
Adrian Shifren, MD, Barnes Jewish Hospital
Understanding Surgical Interventions for LAM
Robert Kotloff, MD, Cleveland Clinic
Caring for Caregivers
Jose Picart, PhD, NC State University

LAM Science Forum

Elizabeth Henske, MD, Brigham & Women's Hopspital
Jane Yu, PhD, University of Cincinnati
Anne-Karina Perl, PhD, Cincinnati Children’s Hospital

NIH & LAM: An Overview

Joel Moss, MD, PhD, NIH

Genetic of LAM & TSC

Jennifer Glass, LGC, Cincinnati Children's Hospital

Conference Highlightsplus

Rare Lung Diseases Celebration Banquet - Celebrate the successes achieved through the collaboration of scientists, clinicians, patients and advocacy organizations at a dinner in their honor. Frank McCormack, MD, and Bruce Trapnell, MD, Conference and Scientific Chairs of RLDC·2018, will host this dinner and welcome special guest speakers Tiina Urv, PhD and Jeffrey Whitsett, MD.

Breath of Hope Gala - Join us Saturday evening for an inspiring celebration! The Breath of Hope Gala is an evening of hope, inspiration and generosity. This event is The LAM Foundation’s largest annual fundraiser and is attended by individuals with LAM, their families and friends, along with the scientific and medical LAM community. Read more about the Gala