In The NewsRecent Patient ArticlesClick here to read an article about Gwen Pryor. Recent Science ArticlesClick here to read “Opportunities in Pulmonary Research: Not a Time to Step Back” by James P. Kily, MD, PhD, published in the May 15th issue of the American Journal of Respiratory and Critical Care Medicine. Click here to read "Phosphoproteomic Analysis Identifies Grb10 as an mTORC1 Substrate That Negatively Regulates Insulin Signaling" by John Blenis, PhD, published in the June 10th issue of Science Magazine. Click here to read "Scientists Discover New Component of Key Growth-Regulating Signaling Pathway" by David Sabatini, MD, PhD, published in the June 10th issue of Science Magazine. Click here to read "Tuberous Sclerosis Complex and Lymphangioleiomyomatosis: Miles to Go, Promises to Keep" an editorial by Elizabeth Henske, MD in the Annals of Internal Medicine.. Click here to read “Changes in Lung Function and Chylous Effusions in Patients With Lymphangioleiomyomatosis Treated With Sirolimus” by Angelo M. Taveira-DaSilva, MD, PhD in the Annals of Internal Medicine. Click here to read “Summaries for Patients: Sirolimus Therapy in Patients With Lymphangioleiomyomatosis” by Angelo M. Taveira-DaSilva, MD, PhD in the Annals of Internal Medicine. Click here to read “Recognition of Tuberous Sclerosis in Adult Women: Delayed Presentation With Life-Threatening Consequences” by Diane Seibert, PhD, CRNP in the Annals of Internal Medicine. Click here to read “Summaries for Patients: Tuberous Sclerosis Complex in Adult Women” by Diane Seibert, PhD, CRNP in the Annals of Internal Medicine. Diagnostic Blood Test Can Identify LAM in Some Patients
Clinical Availability of Serum VEGF-D Test The VEGF-D test is now available in a clinical lab at Cincinnati Children's. It can be ordered as a send out test from your clinic or hospital, and it is now done in a CAP/CLIA certified lab such that the results can be used for clinical care. Patients and referring physicians should note that although a serum VEGF-D level of 800 pg/ml or greater in the setting of a typical HRCT scan is diagnostic for VEGF-D, a normal VEGF-D level does not exlude the diagnosis of LAM. Click here to visit the website for the lab at Cincinnati Children's that does the testing. The VEGF-D requisition form is then in an orange box on the right-hand side. Or, click here to take you directly to the requistion form. Frank McCormack, MD, Talks About LAMDr. Frank McCormack, Scientific Director of The LAM Foundation, was interviewed at the American College of Chest Physicians Conference (CHEST) regarding LAM. This comprehensive 13-minute interview covers many aspects of LAM. Click here to listen to Dr. McCormack's interview on LAM. |