How to Register With The LAM Foundation

Registering with the Foundation is free and easy.  Once registered, you will receive updates, news, and event information via mail and email.  LAM patients can register with the Foundation in one of 2 ways:

Call the Foundation and ask to speak to Sally Lamb, Director of Patient Services.  She’ll ask you for your name, contact information, date of birth and date of diagnosis.  This information will be added to our database so that you’ll be included in all future mailings and eblasts.

Send an email to slamb@thelamfoundation.org and ask to be registered.  Be sure to include your name, contact information, date of birth and date of diagnosis.

When a woman with LAM contacts the LAM Foundation for first time the Foundation will send her 3 separate packets of information, each sent 2 weeks apart.

The first packet includes our 9-chapter LAM Handbook as well as information about LAM, the services that the Foundation can offer LAM patients, and the latest issue of our Journeys newsletter.

The second packet includes our Personal Journeys With LAM, a collection of stories written by LAM patients about their experiences living with LAM.  It also includes our Money for the Mission fundraising guide with information about how to raise money for LAM research.

The third packet includes several forms that are needed to keep our database as current as possible on medical information on women with LAM.  This medical information is often used by scientists to help in their research.

Family members and friends are also encouraged to register.  Please use the Stay Informed feature on the top right corner of the page to give us your contact information.