- What to Expect
- Help them Cope
- LAM Research
What to Expect
What happens after your loved one is diagnosed with LAM? Depending on the progression of the disease, changes in daily activities and mood can be expected.
Increasing dependence on family/friends for help
During the early stages of LAM, a patient's ability to participate in daily activities such as going to work, running errands and exercising may not change. But as the disease progresses, the patient may have limited mobility and require supplemental oxygen therapy to help with breathing.
Limitations in travel
Travel restrictions may be recommended for some women with LAM, especially in the later stages. In particular, traveling to far away places where medical help is not readily available may not be advisable. In addition, if a woman with LAM has recently had a lung collapse or feels she may be experiencing one near the time of travel, she should talk with her doctor before traveling by airplane.
Feelings of anger, isolation and despair
Women diagnosed with LAM typically experience a wide range of emotions. Keep in mind that these feelings are natural and valid, and let your loved one know that you are there to talk to or just listen.
Problems with intimacy
It is important to understand that LAM may decrease intimacy in a relationship. Women diagnosed with LAM often experience fatigue and increased anxiety, and may have low self-esteem. Don't be afraid to ask what your partner feels comfortable with and be open to exploring new ways to be intimate. Learn more about dealing with intimacy.
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