Family and Friends

Having a loved one receive a LAM diagnosis can be scary. You can help your loved one, and yourself, deal with the disease by learning all you can about LAM and how it may affect them. Many people have found that educating themselves about LAM and learning what they can do to support their loved one has brought them a sense of empowerment and even hope.

What You Need to Know About LAM

  • Symptoms may include shortness of breath, collapsed lung, chest pain, cough, and/or fatigue.
  • LAM occurs almost exclusively in women so the disease is thought to be hormone-related.
  • There are 2 types of LAM; TS-LAM is when a woman has both tuberous sclerosis (TS) and LAM and Sporadic LAM is when a woman has LAM only.
  • The formation of cysts and an abnormal growth of smooth muscle cells not usually found in the lungs causes progressive damage to healthy lung tissue.
  • As many as 30% of women with LAM have a benign kidney tumor called an angiomyolipoma (or AML).
  • In moderate to severe cases, lung capacity progressively declines to the point where supplemental oxygen is needed.
  • Doctors believe pregnancy may accelerate the progression of LAM.  Women with LAM are urged to speak with their doctor before getting pregnant.

 

Disclaimer:

Neither The LAM Foundation nor any staff member is qualified or intended to serve as a source of medical advice. All material contained or referenced on this website, including health- or medical-related materials, is for informational purposes only. Always seek the advice of a qualified health provider with any questions you may have regarding a medical condition.

The LAM Foundation attempts to verify the accuracy of information regarding LAM Clinics and health care providers prior to posting on this website. The Foundation does not guarantee and is not responsible for the accuracy of information or the quality of medical care received at any institution, clinic, or by a medical provider listed on our website. The LAM Foundation is not liable for any damages that may result from the use of this site.

If you think you may have a medical emergency, call your doctor or 911 immediately.