We offer several ways for you to connect and share experiences with other family members and friends of women with LAM.  We also offer several publications to help you to stay up-to-date on the latest scientific, patient, and community events and accomplishments.


LAMposium – an annual 3-day conference offering you the chance to learn about LAM and how you can support your loved one.

Facebook – there is a private group called “Lammie Loved Ones” for family members and friends of women with LAM.  You can go to Facebook and search for Lammie Loved Ones.  Click "Join the Group" and the group administrator will approve your request within 24 hours.


Several publications are available to LAM patients as well as their family members and friends.  To receive this information please register with the Foundation using the Register Now feature.

LAM Handbook
– a great resource for answering questions on living with LAM (translations available in five languages).

Journeys Newsletter
– mailed domestically twice a year, this newsletter keeps you informed about the Foundation’s scientific advancements, patient support services, fundraising activities, and accomplishments. Also available online.

Currents e-Newsletter – a monthly update sent via email to provide time-sensitive information. Also available online.  Use this link to go to the Register Now page and sign up to receive Currents.

Other Resources

Clinical Research Network – 28 LAM Clinics across the US offering multidisciplinary care. Encourage your loved one to be seen in a LAM Clinic once a year so she can be evaluated by a physician who is considered an expert in LAM.

Helping Children Cope When a Family Member has LAM – a resource to help you talk to children about LAM.

What You Need to Know as a LAM Caregiver – a guide to help you, as a caregiver, deal with some of the things you may be facing when your loved one has LAM.