Questions for first Dr.'s appointment post diagnosis

[MarMar]

Hello,

To tell a long story short, had a collapsed lung in late Dec., lung byopsy Jan.15th and diagnosed with LAM Jan. 20th.  My mind is all over the place and I was happy to find this forum and get some real information while I am trying to process this whole situation I find myself in.  While I have many questions shooting through my mind I was hoping to get feedback regarding two.

1) I have my first appointment with my doctor since being diagnosed this Thursday, does anyone have advise regarding question(s) I should ask that may not be obvious?  Perhaps even if they seem obvious as I am not trusting my thought process right now.

2) How do you deal with your work situation?  I am not saying anything right now as I wouldn't even know what to say and I don't think it will affect my work at this point, but I am wondering how others have handled this.


Thank you very much!

Mary

[kgable]

I wish I knew what to ask.  Hopefully the doctor has experience with Lam patients. 
I was diagnosed in the last six months and I am on my third doctor.  I am trying to find the one
doctor who is compassionate and listens.  In AZ I have spoke to two other Lammies and they love their doctors, they even can call him on their cell phones, or walk in the office unannounced to get a chest xray if they are feeling pain.
I am working on my questions now for Lamposium,, at least the doctors will have lots of experience with us.