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Current Events

All Regions

Kappa Epsilon (KE) Balloon Challenge -
Laura Bowers and her friends launched a national campaign to raise awareness and fund for The LAM Foundation on August 20th in honor of the Foundation's 20th anniversary. The LAM Foundation, Kappa Epsilon (a national professional fraternity for pharmacists) and the UNC Eshelman School of Pharmacy are helping to promote this campaign. Click here to see how you can take part in the Balloon Challenge for LAM!

Worldwide LAM Awareness Day (WWLAD)
June 1, 2015 - marks the fifth anniversary of celebrating Worldwide LAM Awareness Day.  Help create awareness and raise funds in your area. 
Do you have an event in mind or one already planned? If so let us know about it! Please email Kerri Morgan at and give her all the details. We are here to help you with all your WWLAD needs.  Be sure to e-mail your questions as well.

Amazon Smiles
Do you shop on If you do you can shop and support The LAM Foundation at the same time! Click here before shopping and choose The LAM Foundation as the charity you wish to support. The Foundation will then receive .5% donation from the Amazon Smiles Foundation on all eligible purchases in that transaction. So shop til you drop online and support The LAM Foundation.

The Taste of Air
Click here to purchase Richard Schad's book The Taste of Air.
Richard Schad (husband of LAM patient Karyn Schad) shares their story, combining his recollection of events with Karyn's diary entries about their trials with LAM.
All proceeds of this book are to benefit The LAM Foundation.

Click here to see the LAM Foundation Bravelets™ and to place your order.
The LAM Foundation has been accepted as a supported charity by Bravelets™. 
Bravelets™ are bracelets that are worn as a reminder to be brave during tough times and to never lose hope. 
As a supported charity Bravelets™ will donate $10 to the Foundation for every bracelet sold.

Shop to STOP LAM
The LAM Foundation is excited to announce our new partnership with Fashion Project, an online luxury boutique that lets you donate and shop the labels you love for the causes you choose. You donate designer clothing, shoes and handbags, and Fashion Project sells them to benefit The LAM Foundation with 100 times the financial impact of a standard thrift store. Donate now to make fashion a force for good!

Sign up for Goodsearch and Goodshop and they will donate to The LAM Foundation when you search the web or shop online.  Simply, sign up and designate The LAM Foundation.  Use Goodsearch for everyday activities like searching the web and shopping online.  Plus, when you shop at Goodshop, you save money with over 100,000 coupons and deals. Click here to get started.

Regional Events

Region 9 (Ohio, West Virginia, Kentucky, and Indiana)
LAM Educational Meeting
November 14, 2015
11 am – 2 pm

The Cleveland Clinic
9620 Carnegie Avenue
Cleveland, OH 44195
N Building – Education Building & Lerner Research Institute
In partnership with The Cleveland Clinic, women with LAM, friends and family are welcome to join us for an educational event hosted by Dr. Robert Kotloff, chair of Pulmonary Medicine at The Cleveland Clinic. Other speakers will include Sue Sherman from The LAM Foundation, Dr. Daniel Raymond, Thoracic Surgeon and Dr. Richard Fatica, Nephrology & Hypertension.
Topics to be covered will include:
Treatment of LAM – Sirolimus and beyond
The Surgeon’s Role in LAM – Management of Pneumothoraxes
Management of Angiomyolipomas of the Kidneys
Lunch will be served and there will be plenty of time to ask questions.
To RSVP, visit

Region 3 (New York City)
LAM Educational Meeting
Saturday, November 14, 2015
1:00pm - 3:30pm
Brooklyn, New York

DETAILS:LAM Clinic Director, Jeanine D'Armiento, MD, PhD, from the Center for Rare Lung Diseases at Columbia University will give an update on her center and managing symptoms related to LAM. She will also allow time for an question and answer session.
If anyone is interested in any topics or has any specific questions they would like Dr. D'Armiento to address, please email LAM Liaision, Sarah Poitras at
This meeting will take place at:
Concord Village Community Room
230 Jay Street
Brooklyn, NY 11201
Street parking may be available.
Nearest subway is the Jay Street-Metrotech station: A, C, F lines
Lunch will be available for all who attend.
Please RSVP by Monday, November 9, 2015 to LAM Liaison, Sarah Poitras at

Region 16 (Colorado & Utah)

LAM Regional Meeting
Saturday, November 21, 2015

11:30 am
University Hospital

Salt Lake City, Utah
Planning is still taking place, and Lynnette has lined up Robert Paine III, MD, Chief Division of Pulmonary from the University of Utah Hospital to join the meeting. Dr. Paine will offer an interactive discussion on LAM diagnosis and management of LAM symptoms. Lunch will be provided.
Save the Date and RSVP to Lynnette Weese by sending her an email at or call/text her at (801) 725-7070.

Region 5 (DC, DE, MD, VA)
LAM Regional Meeting
Tuesday, December 8, 2015
5:00pm - 7:00pm

National Institutes of Health (NIH)
Joel Moss, MD, PhD from the NIH NHLBI and The LAM Foundation's Executive Director, Sue Sherman for educational presentations and a light dinner.
And you will also have the opportunity to meet the Foundation's Patient Services and Education Manager, Anne McKenna.
Planning for this meeting is still taking place.
If you would like to attend please RSVP Mary Stojic by email at

Past Events

Region 1 (ME, NH, VT, MA, RI, and CT)
LAM Educational Meeting
Sunday, November 1, 2015
11:00am – 3:30pm

Community Campus Building
100 Campus Drive
Portsmouth, NH
Presentation by Elizabeth Henske, MD LAM Clinic director at Brigham and Women's Hospital
Lunch will be provided 
Please reply by Wednesday October 28 to: Madeline Nolan
203.723.2016 home
203.598.4671 cell
Directions: Take 95 and exit at the Portsmouth Traffic Circle to get onto Rt 1 South. At your 6th set of lights take a right onto Peverly Hill Rd. Then take your first left onto West Road. Follow to stop sign and turn right onto Campus Drive. Follow drive onto campus.

Region 10 (Illinois)
LAM Patient Educational and Social Gathering
Sunday, November, 1, 2015
12:30pm - 4:00pm

Mixin Mingle
124 Cass St.
Woodstock, IL 60098 1.815.308.5170
Mixin Mingle is within walking distance of the Metra NW line and there is plenty of free parking nearby.  Woodstock is easily accessible by tollway and various highways. 
Visit for more information.
Please join us for a pot luck lunch and an afternoon of learning and sharing with other LAM sisters, family and friends. We will focus on ways to improve and sustain our health while managing the symptoms of LAM.  
Our speaker, Denise Yager, began practicing yoga in 2000, completed her 200-hour training at Kalitrea Yoga Studio in 2004 and has been teaching yoga to everyone from young children to senior citizens ever since. She has attended workshops on yoga for seniors, yoga for osteoporosis and yin yoga, and has taught anatomy to yoga teachers in training for the past five years. Denise will direct us in Chair Yoga and Mindful Meditation.  
Please RSVP with the number attending by October 18th. 
Feel free to contact me with any questions or concerns.
Kathy Peiffer
Region 10 LAM Liaison

Region 20 (Southern California, Southern Nevada, and Arizona)
Meet the Experts
Scottsdale, AZ
Thursday, November 5, 2015 
5:00 pm - 7:00 pm

You are invited to join members of The LAM Foundation Scientific Advisory Board (SAB) for an evening of education and connection at The Scottsdale Resort at McCormick Ranch. Women with LAM, family and friends are all welcome to meet with some of the most knowledgeable LAM Researchers and Clinicians in the world at this unique event.
Members of the SAB will be in Scottsdale to review and discuss the 2015 research proposals submitted to the Foundation for grant funding. As is our tradition, The LAM Foundation wants to enhance this gathering of LAM experts by connecting them with local families affected by LAM.
Scheduled to be in attendance:

  • Frank McCormack, MD, LAM Scientific Director, University of Cincinnati
  • Vera Krymskaya, PhD, MBA,  University of Pennsylvania
  • James Bridges, PhD, Cincinnati Children's Hospital Medical Center
  • Greg Downey, MD, National Jewish Health
  • Tony Eissa, MD, Baylor College of Medicine
  • Steve Hammes, MD, PhD, University of Rochester
  • Arnold Kristof, MD, McGill University
  • Ray Yeung, MD, University of Washington
  • Lisa Young, MD; Vanderbilt University

The Meet the expert will take place at
The Scottsdale Resort at McCormick Ranch
Apache III & IV
7700 East McCormick Parkway
Scottsdale, AZ 85258
RSVP by October 26, 2015 to The LAM Foundation by phone 877.CURE.LAM (877.287.3526) or by email at

Region 2 (Western Pennsylvania and Western New York)
Regional LAM Meeting
Saturday, October 10, 2015 
12:00 pm - 2:00 pm

1344 McClellan Street
Schenectady, New York 12309
A respiratory therapist from the Sunnyview Rehabilitation Hospital will present helpful tips on pulmonary rehab for LAM patients.
RSVP to Susan Mennillo by Wednesday, September 30, 2015 by phone (518) 382.5463 or by email:

Region 12 (Minnesota, North Dakota, South Dakota and Wisconsin)
Regional LAM Meeting
Saturday, October 17, 2015
Time: 10am

THINK Mutual Bank
4245 Johnny Cake Ridge Road
Eagan, MN 55122
2nd Floor Meeting Room (Please take the elevator)
LAM Clinic Directors Dr. Jay Ryu and Dr. Misbah Baqir, from the Mayo Clinic in Rochester, will join us to talk about the latest theories on how LAM develops and research on new treatments for LAM.
Here are the details!
10:00 am Meet and Greet
11:00 am Presentation from Dr. Jay Ryu and Dr. Misbah Baqir
12:00 pm Lunch and Q &A
RSVP by Friday, October 2, 2015 to Sharon Hovland:

Region 18 (Alaska, Oregon and Washington State)
Regional LAM Meeting
Saturday, October 17, 2015
In North Tacoma from 1:00 pm - 5:00 pm

The delightful Dr. George Pappas, LAM Clinic Director at Minor and James Medical will present on new and exciting LAM research. Sue Sherman will share all that is going on with the Foundation, plus physical trainer, Morgan Blackmore is back, for a return engagement, to present on Functional Fitness.
Join us for the meeting from 1:00 pm - 3:00 pm at:
Immanuel Presbyterian Church
901 North J Street
Tacoma, WA 98403
Then, let's continue the conversation from 3:00 pm - 5:00 pm at:
Cafe Divino
2112 North 30th Street
Tacoma, WA 98403
RSVP to Sharlene Dunn Brells:

Region 5 (Delaware, Maryland, Washington DC, and Virginia)
1st Annual Backyard Bull Roast
Saturday, October 17, 2015

Darlington/Dublin VFW Post 10146
3430 Conowingo Rd
Street, MD  21154
Tickets are $25 per person, must be 18 to attend.
Menu includes: pit beef & ham, home-style sides and soda
Cash bar, money wheels, basket raffles, and Ravens/Orioles memorabilia silent auction
For more info or to purchase tickets contact Crystal Windsor at

Region 4 (Eastern Pennsylvania and New Jersey)
LAM Educational Meeting at UPENN
Tuesday, October 20, 2015
6:00pm - 8:00pm
Women with LAM, family and friends are all welcome to a Region 4 (Eastern Pennsylvania and New Jersey) LAM Educational Meeting at The University of Pennsylvania. Join LAM Clinic Director, Maryl Kreider, MD, and LAM Foundation Funded Researcher, Vera Krymskaya, PhD, MBA, for an informative evening that will get you up to date on the latest clinical and scientific aspects of LAM.
This meeting will take place in room 516 of the Jordan Medical Education Center at the Perelman Center for Advanced Medicine. Parking reimbursement will be available.
Please RSVP to Patricia Bebien-Aronoff by Monday, October 5, 2015 by email: or
6:00 - 6:30pm Meet and Greet - Dinner will be provided
6:30 - 6:35pm Introductions from Jason Christie and Patti Bébien-Aronoff
6:35 - 6:55pm Maryl Kreider, MD, MSCE Presentation: “LAM: Recent Clinical Updates
6:55 - 7:10pm Vera Krymskaya, PhD, MBA Presentation: “LAM: Recent Scientific Updates”
7:10 - 7:25pm Question and Answer Session
7:25 – 7:45pm LAM Clinic Tour
7:45 – 8:00pm Closing Remarks and Wrap Up

Region 9 (Ohio, West Virginia, Kentucky, and Indiana)
LAM Regional Meeting
Friday, October 23, 2015
11:30 am - 1:30 pm

Kingsgate Marriott Conference Center at the University of Cincinnati
151 Goodman Drive
Cincinnati, Ohio 45219
As part of its annual Board of Directors meeting, The LAM Foundation, in partnership with the TS Alliance, will host a Patient & Family Meeting and Luncheon for those affected by Lymphangioleiomyomatosis (LAM). Please join us to hear the most up-to-date research and clinical advances in diagnosing and treating LAM, presented by leading experts in the field.
If you plan on joining us, please contact The LAM Foundation at: or by calling us at 877.CURE.LAM (877.287.3526).

Region 19 (Northern California and Northern Nevada)
7th Annual Chowchilla Laps for LAM Walk-a-Thon
October 24, 2015

Chowchilla Union High School Football Stadium
Humboldt Avenue and 10th Street
Chowchilla, CA
Day of Event Registration Start Time - 9:00am
Walk begins at 10:00am
Registration Fees:
Youth (under 18): $20
Adult Pre-Registration (before 10/14/15): $30
Adult Registration (day of event): $35
Registration fee includes walk-a-thon registration fee and t-shirt. *T-shirts are only guaranteed for pre-registrations submitted by October 14, 2015. If participant raises $100.00 in walk-a-thon donations, they will receive a gift bag. Pre-register by 10/14/15 and receive 3 free raffle tickets!
Click here to register.

Region 5 (Delaware, Maryland, Virginia, and Washington DC)
LAM Regional Meeting in Bethesda, MD
Saturday, October 3, 2015
10:30 am - 2:00 pm
Because of a unexpected scheduling conflict and the threat of a government shutdown, we changed the location of this meeting along with the agenda. We will make every effort to reschedule the meeting with the Tuberous Sclerosis Alliance and  with Dr. Joel Moss at the NIH for later this year.
Here is the new location:
Mary Stojic's home
5507 Charlcote Road
Bethesda, Maryland 20817-3735
home phone # 301.346.9088
Tentative Schedule:
10:30 am - 11:00 am meet and greet
11:00 am - 12:00 pm  presentaion TBA
12:00 pm - Lunch will be provided
1:00 pm continued informational discussion.
RSVP to Mary Stojic by Monday, September 28, by email or by calling her at 301.346.9088.

Region 19 (Northern California, Northern Nevada)
LAM Support Group “Fall Fling!” 
Saturday October 3, 2015 
11:00 a.m. -  2:00 p.m.

Stanford University Medical Center
Dr. Stephen Ruoss will review LAM highlights from the May 2015 International Thoracic Society Meeting as well as some key publications related to LAM. 
(Links to publications will be sent out closer to time of meeting and we will have copies.)
There will also be time for socializing during a potluck luncheon.
Family and friends are welcome.
Please RSVP to  Shellie Owens
Also feel free to call her with any questions 650.862.6374
If you haven't been before, please check with the information desk at the front entrance and they will help direct you to our meeting room on the 3rd floor of the hospital in the Pulmonary Division.  Look for signs on the 3rd floor.  (If the escalators aren't working, there are elevators immediately past them.)
Stanford University Medical Center
300 Pasteur Drive
Stanford, CA  94305

Region 15 (Western Texas, Western Oklahoma, New Mexico)
2015 Breath of Hope 5k in Honor of Frances Saldivar
September 26, 2015
8:00 am-12:00 pm

Edinburg Municipal Park
714 S. Raul Longoria Edinburg, TX 78542
Cost for 5k participants: $25 Adults; $15 ages 12-6; donations accepted for 5 ages and under.
Contact:  Frances Saldivar –
Click here to register.

Region 13 (Iowa, Kansas, Missouri, and Nebraska)
Regional LAM Meeting
Thursday, September 17, 2015
4:30 pm - 7:00 pm

Washington University School of Medicine Pulmonary and Critical Care Division
15th floor of the Northwest Tower in our Atrium Conference room
The conference room is located directly outside of the elevators.
Parking lot address
4990 Children’s Place
St. Louis, MO 63110.
Marla Hamlin and Carmen Inglesias would like you to come and reconnect with everyone in our region for dinner.
LAM Clinic Director, Dr. Adrian Shifren from Washington University School of Medicine, Barnes Jewish will be there updating everyone on LAM research, and answering all of your LAM related questions.
Also, Lynda Patterson, Respiratory Therapist, will speak on the importance of pulmonary rehab, diet, breathing techniques and so much more.
A light dinner will be served as catch up on all of the good news coming from The LAM Foundation from our Executive Director, Sue Sherman.
Please RSVP to Marla Hamlin email by Sunday, September 13, 2015.

Region 6 (North Carolina, South Carolina, Georgia, Eastern Tennessee)
Regional Meeting
Saturday, August 1, 2015

The meeting will be at the South County Regional Library in Charlotte. Parking  is free with several handicapped spots available in front of the library
Dr. Charlie Strange, LAM Clinic Director and Pulmonologist from the Medical University of South Carolina in Charleston, will join us to discuss LAM Clinics, current and upcoming research trials, supplemental oxygen use, rapamune (a drug treatment), and other cystic lung diseases which are similar to LAM.
We will have an open question and answer time with Dr. Strange and a time to connect with each other over lunch.
RSVP to Susie Picart at

Region 2 (Western New York and Western Pennsylvania)
Shaughne-SKI Charitable Open
August 15, 2015
8:00 am Shotgun Start

Apalachin Golf Course
Apalachin, NY
Food, Prizes, Fun!
Tournament/Event Co-chairpersons:
Matt Shaughnessy and Rick Pulaski
Entry fee is $70.00
Non-golfers - $15.00
Sponsorships Available.
Contact Matt at 607-768-2483 or
Rick Pulaski at 607-427-9748 for more details.

Region 9 (Indiana, Kentucky, Ohio, West Virginia)
LAM at “THE LINKS” VIII Golf Outing
Saturday, August 15, 2015
Registration:  11:30 am – 12:45 pm
Tee  time:  1:00 pm

Florida Scramble, Shot Gun Start
11425 N. Shelby, 700 W
New Palestine, IN
Registration Deadline – August 1, 2015
Maximum 36 teams!
Player Registration - $100 Individual; $400 Foursome
Sponsorships available.
Contact January Butler at 317-250-5266

Region 11 (Michigan)
Regional LAM Meeting
Saturday, July 25, 2015
10:30am - 3:00pm

University of Michigan, Ann Arbor
Join The LAM Foundation's Executive Director, Sue Sherman, and University of Michigan's LAM Clinic Director, MeiLan Han, MD for an informational meeting and lunch (provided).
At the University of Michigan Mott Hospital Room 12-745 D/F.
RSVP: Gwen Pryor:

Region 16 (Colorado & Utah)
Donor Dash 5K
Sunday, July 19, 2015
Washington Park 
Denver, Colorado
8:00 am

The Donor Dash is a 5K run/walk to honor the lives of organ and tissue donors, celebrate the lives of organ and tissue recipients and recognize those who continue to wait for a lifesaving transplant.

Donate at, registering to walk in the Donor Alliance 5k, or create your own personal fundraising page to support our LAM Foundation fundraising efforts.

-Register for the 5k walk, go to
-$35 Registration Fee helps the Donor Alliance raise funds for the Mountain States Region
-Picnic to follow race
Contact:  Audrey Knipe at for more details.

Region 10 (Illinois)
Regional Meeting
Thursday, June 25, 2015

Loyola University Medical Center
Stritch School of Medicine, Room 150
2160 North First Avenue
Maywood, IL 60153
Please join us for an educational and social gathering of fellow LAM patients, friends and family.  A light dinner will be provided.
Our speaker for the evening will be Rachael Dunn, RD, LDN, CNSC, the lung transplant dietitian at Loyola University Medical Center in Chicago.
Please RSVP with the number attending by June 8th.  I will provide details about directions and parking prior to the meeting.
To RSVP or for more information contact Kathy Peiffer at

Region 13
BLAM! Golf Tournament/Dinner/Dance
June 20, 2015

Golf Tournament:  Cypress Ridge Golf Course
2533 SW Urish Rd.
Topeka, KS  66614
Dinner/Dance:  IBEW
1620 NW Gage Blvd.
Topeka, KS  66618
Contact:  Aaron Roberts at for more information.
Click here to register to the golf tournament.

Region 18 (Oregon and Washington)
Regional Meeting
Tuesday, June 23, 2015
5:00pm - ??? Arrive when you can!

Blue Moon Tavern & Grill (McMenamins)
423 NW 21st
Portland, OR 97209
(503) 223-3184
Please join us for:
Conversation, Laughter, Information, Shuffleboard, Pinball
We will share stories and generally catch up with one another. We will also discuss area clinics and the MIDAS Trial, both of which are simple and exciting for everyone to join. I will be in town for a simple procedure at OHSU, and I didn't want to miss a chance to connect with any of you who are interested in getting together.
Let's enjoy a relaxing evening together!
Please RSVP by Tuesday, June 16th to Sharlene Dunn at

Region 18
Chairs for Charity
June 6, 2015

A variety of painted, upholstered, antique, chairs are donated for fabulous silent auction.
Wade Creek House
664 NW Wade Street
Estacada, OR 
Contact:  Carrie DeRosia at for more information.

Region 4
The Million Dollar Bike Ride
May 9, 2015

Penn Medicine Orphan Disease Center
Highline Park

3160 Chestnut Street
Philadelphia, PA 
Ride starts at 8 am
Our Easy Breathers Cycling Team are gearing up to raise research dollars for LAM.
Last year, your support funded two LAM researchers who each received a $60,000 one year pilot grant.  Please join in to promote awareness and raise funds to develop therapies across a broad range of orphan diseases. 
To Learn More and to Donate go to

Region 1
Beer & Wine Tasting
April 25, 2015

Elks Lodge
758 Rubber Ave
Naugatuck, CT 06770
6:00-9:00 PM
Tickets - $30.00 available at:
Mountview Plaza Wines & Liquor, 727 Rubber Ave., Naugatuck
or contact Madeline Nolan   203.723.2016

Region 14
1st Annual Slam LAM 5k Walk
March 21, 2015
Residents Club Central in Summerwood
14111 Summerwood Lakes Drive
Houston, TX 77044
8am start time

Registration for the 5k is $25 for adults and $15 for children 12 and under until March 10. Registration March 11-March 21 will be $35 for adults and $25 for children. 100% of your registration fee goes to The LAM Foundation! All registered participants will receive a goodie bag and event t-shirt.
Click here to register.

Region 5
Mid-Atlantic LAPS for LAM
Successful 5K held on October 25th at beautiful Burke Lake Park.
Donations welcome, please Click here.

Region 11
Piano Concert to Benefit The LAM Foundation hosted by Mr. and Mrs. Robert Yopko Jr.
Sunday, November 16th, 2014

Kerrytown Concert House
415 North 4th Avenue
Ann Arbor, MI
Doors open at 6:15pm and the concert starts at 6:30pm
Piano Selections by Claude Debussy and Frederic Chopin will be performed by our son Robert Yopko III.
The concert is free.
A giving opportunity will be extended.
Your generosity is greatly appreciated.

Region 20
Regional Meeting
Tuesday, December 9, 2014
12 pm – 1:30 pm

UCLA Pulmonary, 200 UCLA Medical Plaza, Los Angeles, CA 90095
3rd Floor, Room 347

In the parking structure of UCLA. Cost is $12; there is a discount available for handicapped placards.
LAM Patients including family and friends are welcome to attend.
A light lunch and refreshments will be provided.

Art Masquerade 2011: Who is the artist?

Thursday, October 27th through Thursday November 10th

Aria’s Oriental Rugs

9689 Montgomery Rd.

Montgomery, OH 45242

10:00AM to 7:00PM, Monday through Saturday; 12:00 Noon to 5:00PM Sunday

Thursday, October 27th will be a Music, Wine & Cheese Party

Thursday, November 10th will be the Wine & Cheese “Final Night” Party