Worldwide LAM Awareness Day (WWLAD)
June 1, 2015 - marks the fifth anniversary of celebrating Worldwide LAM Awareness Day. Help create awareness and raise funds in your area.
Do you have an event in mind or one already planned? If so let us know about it! Please email Vel Hux at email@example.com and give her all the details. We are here to help you with all your WWLAD needs. Be sure to e-mail your questions as well.
Do you shop on Amazon.com? If you do you can shop and support The LAM Foundation at the same time! Click here before shopping and choose The LAM Foundation as the charity you wish to support. The Foundation will then receive .5% donation from the Amazon Smiles Foundation on all eligible purchases in that transaction. So shop til you drop online and support The LAM Foundation.
The Taste of Air
Click here to purchase Richard Schad's book The Taste of Air.
Richard Schad (husband of LAM patient Karyn Schad) shares their story, combining his recollection of events with Karyn's diary entries about their trials with LAM.
All proceeds of this book are to benefit The LAM Foundation.
Click here to see the LAM Foundation Bravelets™ and to place your order.
The LAM Foundation has been accepted as a supported charity by Bravelets™.
Bravelets™ are bracelets that are worn as a reminder to be brave during tough times and to never lose hope.
As a supported charity Bravelets™ will donate $10 to the Foundation for every bracelet sold.
Shop to STOP LAM
The LAM Foundation is excited to announce our new partnership with Fashion Project, an online luxury boutique that lets you donate and shop the labels you love for the causes you choose. You donate designer clothing, shoes and handbags, and Fashion Project sells them to benefit The LAM Foundation with 100 times the financial impact of a standard thrift store. Donate now to make fashion a force for good!
Sign up for Goodsearch and Goodshop and they will donate to The LAM Foundation when you search the web or shop online. Simply, sign up and designate The LAM Foundation. Use Goodsearch for everyday activities like searching the web and shopping online. Plus, when you shop at Goodshop, you save money with over 100,000 coupons and deals. Click here to get started.
Region 16 (Colorado & Utah)
Donor Dash 5K
Sunday, July 19, 2015
The Donor Dash is a 5K run/walk to honor the lives of organ and tissue donors, celebrate the lives of organ and tissue recipients and recognize those who continue to wait for a lifesaving transplant.
Donate at http://thelamfoundation.kintera.org/ColoradoLammies15, registering to walk in the Donor Alliance 5k, or create your own personal fundraising page to support our LAM Foundation fundraising efforts.
-Register for the 5k walk, go to http://www.donoralliance.org/programs/donor-dash
-$35 Registration Fee helps the Donor Alliance raise funds for the Mountain States Region
-Picnic to follow race
Contact: Audrey Knipe at firstname.lastname@example.org for more details.
Region 6 (North Carolina, South Carolina, Georgia, Eastern Tennessee)
KE Balloon Challenge Launch
Saturday, July 25, 2015
Chapel Hill, NC
Up for a challenge? Experience breathless.
Take the challenge and dare someone to do the same and/or give a donation to find a cure.
More details coming soon.
Contact Laura Bowers at email@example.com.
Region 6 (North Carolina, South Carolina, Georgia, Eastern Tennessee)
Saturday, August 1, 2015
The meeting will be at the South County Regional Library in Charlotte. Parking is free with several handicapped spots available in front of the library
Dr. Charlie Strange, LAM Clinic Director and Pulmonologist from the Medical University of South Carolina in Charleston, will join us to discuss LAM Clinics, current and upcoming research trials, supplemental oxygen use, rapamune (a drug treatment), and other cystic lung diseases which are similar to LAM.
We will have an open question and answer time with Dr. Strange and a time to connect with each other over lunch.
RSVP to Susie Picart at firstname.lastname@example.org.
Region 10 (Illinois)
Thursday, June 25, 2015
Loyola University Medical Center
Stritch School of Medicine, Room 150
2160 North First Avenue
Maywood, IL 60153
Please join us for an educational and social gathering of fellow LAM patients, friends and family. A light dinner will be provided.
Our speaker for the evening will be Rachael Dunn, RD, LDN, CNSC, the lung transplant dietitian at Loyola University Medical Center in Chicago.
Please RSVP with the number attending by June 8th. I will provide details about directions and parking prior to the meeting.
To RSVP or for more information contact Kathy Peiffer at email@example.com.
BLAM! Golf Tournament/Dinner/Dance
June 20, 2015
Golf Tournament: Cypress Ridge Golf Course
2533 SW Urish Rd.
Topeka, KS 66614
1620 NW Gage Blvd.
Topeka, KS 66618
Contact: Aaron Roberts at firstname.lastname@example.org for more information.
Click here to register to the golf tournament.
Region 18 (Oregon and Washington)
Tuesday, June 23, 2015
5:00pm - ??? Arrive when you can!
Blue Moon Tavern & Grill (McMenamins)
423 NW 21st
Portland, OR 97209
Please join us for:
Conversation, Laughter, Information, Shuffleboard, Pinball
We will share stories and generally catch up with one another. We will also discuss area clinics and the MIDAS Trial, both of which are simple and exciting for everyone to join. I will be in town for a simple procedure at OHSU, and I didn't want to miss a chance to connect with any of you who are interested in getting together.
Let's enjoy a relaxing evening together!
Please RSVP by Tuesday, June 16th to Sharlene Dunn at email@example.com.
Chairs for Charity
June 6, 2015
A variety of painted, upholstered, antique, chairs are donated for fabulous silent auction.
Wade Creek House
664 NW Wade Street
Contact: Carrie DeRosia at Cmderosia35010@gmail.com for more information.
The Million Dollar Bike Ride
May 9, 2015
Penn Medicine Orphan Disease Center
3160 Chestnut Street
Ride starts at 8 am
Our Easy Breathers Cycling Team are gearing up to raise research dollars for LAM.
Last year, your support funded two LAM researchers who each received a $60,000 one year pilot grant. Please join in to promote awareness and raise funds to develop therapies across a broad range of orphan diseases.
To Learn More and to Donate go to http://givingpages.upenn.edu/TLFEasyBreathers
Beer & Wine Tasting
April 25, 2015
758 Rubber Ave
Naugatuck, CT 06770
Tickets - $30.00 available at:
Mountview Plaza Wines & Liquor, 727 Rubber Ave., Naugatuck
or contact Madeline Nolan 203.723.2016 firstname.lastname@example.org
1st Annual Slam LAM 5k Walk
March 21, 2015
Residents Club Central in Summerwood
14111 Summerwood Lakes Drive
Houston, TX 77044
8am start time
Registration for the 5k is $25 for adults and $15 for children 12 and under until March 10. Registration March 11-March 21 will be $35 for adults and $25 for children. 100% of your registration fee goes to The LAM Foundation! All registered participants will receive a goodie bag and event t-shirt.
Click here to register.
Mid-Atlantic LAPS for LAM
Successful 5K held on October 25th at beautiful Burke Lake Park.
Donations welcome, please Click here.
Piano Concert to Benefit The LAM Foundation hosted by Mr. and Mrs. Robert Yopko Jr.
Sunday, November 16th, 2014
Kerrytown Concert House
415 North 4th Avenue
Ann Arbor, MI
Doors open at 6:15pm and the concert starts at 6:30pm
Piano Selections by Claude Debussy and Frederic Chopin will be performed by our son Robert Yopko III.
The concert is free.
A giving opportunity will be extended.
Your generosity is greatly appreciated.
Tuesday, December 9, 2014
12 pm – 1:30 pm
UCLA Pulmonary, 200 UCLA Medical Plaza, Los Angeles, CA 90095
3rd Floor, Room 347
In the parking structure of UCLA. Cost is $12; there is a discount available for handicapped placards.
LAM Patients including family and friends are welcome to attend.
A light lunch and refreshments will be provided.