Worldwide LAM Patient Coalition

The LAM Foundation Worldwide LAM Patient Coalition (WLPC)
In January 2007, The LAM Foundation formed the Worldwide LAM Patient Coalition (WLPC) to collaborate with patient organizations in Canada, Germany, France, England, New Zealand, Spain, Austria, Japan, China, Australia, Brazil, and Italy. Patient leaders within the WLPC have been named LAMbassadors!

In April 2007, representatives from ten different countries assembled in Cincinnati to participate in the inaugural meeting of the Worldwide LAM Patient Coalition. It was an extraordinary event and a great opportunity for everyone!

The LAM Foundation believes there are many ways to collaborate with other countries that have assembled and organized LAM patients into a cohesive group. Plans are underway to translate the LAM Patient Handbook into the language of each country represented in the WLPC, initiate a worldwide Advocacy Program, develop a WLPC website, create a LAM PSA in different languages, exchange fundraising ideas, and share newsletter articles, providing support for women around the globe.

The WLPC will be an excellent avenue to increase numbers for clinical research projects, facilitate research, and aid in recruitment for clinical trials. The LAM Foundation is excited about this partnership that will ultimately advance LAM science. We are convinced that we can greatly impact the lives of women with LAM through the WLPC and bring hope to LAM patients worldwide!

We are proud of our LAMbassadors!
Take a look to see who they are and read their personal stories. Also, read the bios of the Medical Advisors.

LAM Africa, Africa - Website
Khadijah Haliru, LAMbassador - Story
TBD, Medical Advisor

LAM Australasia Research Alliance (LARA), Australia - Website
Heather Telford, LAMbassador - Story
Allan Glanville, MD, FRACP, Medical Advisor - Bio

LAM Austria, Austria - Website
Viera Reptova, LAMbassador - Story

Associação LAM do Brasil, Brazil - Website
Flavia Sobroza, LAMbassador - Story
Carlos Carvalho, MD, PhD, Medical Advisor - Bio

LAM Canada, Canada - Website
Marsha Cohen, MD, FRCPC, LAMbassador - Story

LAM China - Website
Lily Wong, LAMbassador - Story
Kai-Feng Xu, MD, Medical Advisor - Bio

LAM Action, England - Website
Clare Lauwerys, LAMbassador - Story
Simon Johnson, MD, Medical Advisor - Bio

Association FLAM, France - Website
Michelle Gonsalves, LAMbassador - Story
Vincent Cottin, MD, Medical Advisor - Bio

LAM Selbsthilfe Deutschland, Germany - Website
Susanne Geiling, LAMbassador - Story
Hubert Wirtz, MD, Medical Advisor - Bio

Italy - Website
Iris Bassi, LAMbassador
Sergio Harari, MD, Medical Advisor - Bio

J-LAM, Japan
Reina Endo, LAMbassador - Story
Yoshikazu Inoue, MD, Medical Advisor - Bio

New Zealand LAM Charitable Trust, New Zealand - Website
Bronwyn Gray, LAMbassador - Story
John Kolbe, MD, Medical Advisor - Bio

The Netherlands
Ine Van Meijeren, LAMbassador
Jan Grutters, MD, Medical Advisor - Bio

LAM Norway, Norway
Kristin Seim, LAMbassador - Story

LAMRomania, Romania - Website
OSC Agency, LAMbassador - Story
Mugur Bosinceanu, MD, Medical Advisor - Bio

AELAM, Spain - Website
Mari Luz Vila, LAMbassador - Story
Antonio Roman, MD, Medical Advisor - Bio

The LAM Foundation, United States
Susan Milligan, LAMbassador - Story
Frank McCormack, MD, Medical Advisor - Bio

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