News and Events
IMPORTANT NEWS
Treatment Trial for women with LAM is now open!
The MILES (Multicenter International Lymphangioleiomyomatosis Efficacy of Sirolimus) Treatment Trial is open for enrollment! Conducted through the Rare Lung Diseases Consortium - a network of Universities funded by the National Heart, Lung and Blood Institute (NHLBI) to perform cooperative trials. This trial will test the efficacy of an FDA-approved drug called sirolimus (rapamycin) in patients with lymphangioleiomyomatosis (LAM). Click here for details
More MILES Trial Sites Open for Enrollment!
The MILES Trial continues to enroll patients as additional sites open. If you or someone you know is interested in participating in the trial, please contact one of the sites listed below:
Cincinnati Children's Hospital Medical Center - Cincinnati, OH
Principal Investigator: Frank McCormack, MD
Contact Person: Matthew Hodgson
Office: 513.636.1891
Email: MILEStrial@cchmc.org
Medical University of South Carolina - Charleston, SC
Principal Investigator: Charlie Strange, MD
Contact Person: Amie Gitter, RN
Office: 843.792.6569
Email: gitterac@musc.edu
Oregon Health and Science University - Portland, OR
Principal Investigator: Alan Barker, MD
Contact Person: Karlene Kennie
Office: 503.494.1305
Email: kenniek@ohsu.edu
Cleveland Clinic - Cleveland, OH
Principal Investigator: Jeffrey Chapman, MD
Contact Person: Diane Faile
Office: 216.444.9975
Email: failed@ccf.org
National Jewish Medical & Research Center - Denver, CO
Principal Investigator: Kevin Brown, MD
Contact Person: Carol Bair
Office: 303.398.1912
Email: bairc@njc.org
University of Florida at Gainesville - Gainesville, FL
Principal Investigator:
Contact Person: Angeline Leong
Office: 352.273.7589
Email: angeline.leong@alphaone.ufl.edu
CNN - LAM patient Kathy Stangl interviewed
Kathy's interview aired throughout the day on both CNN and Headline News, showing multiple times during the day on both stations. The story will also go out to more than 600 affiliated stations around the country, so it may be picked up by regional stations. Click here for more info
Click here to read the story and see the video on CNN's website.
LAM Foundation Scientist Elizabeth Henske Receives Medtronic Prize
Dr. Elizabeth Henske was awarded the Medtronic Prize from the Society for Women's Health Research in Washington, D.C. The $75,000 Prize is awarded to an outstanding scientist or engineer who has received national recognition and whose work has led or will lead directly to the improvement of women's health. Click here for more info
LAM Foundation's Founder Honored by American Thoracic Society
Sue Byrnes, Founder of The LAM Foundation, recently received the American Thoracic Society Public Service Award at the American Thoracic Society 2007 International Conference for her outstanding contributions in the public health arena related to respiratory disease and medicine, and for her significant life-long contributions to the field. Click here for more info
LAM Foundation's Scientific Director Recognized for LAM Research
Dr. Frank McCormack, The LAM Foundation's Scientific Director, was honored by the Cincinnati Business Courier for his contributions to patient care, research, management and community service. Chosen from more than 300 nominees, Dr. McCormack was the recipient of the Innovator Award. Click here for more info
UPCOMING EVENTS
May 17th - Kick it for LAM Kickball Tournament - Chicago, IL
10:00 a.m. - 1:00 p.m
Lincoln Park Fields Chicago, IL
We still Need 2 Teams ($40 per person, 10 person teams - $400)
Would you like to play or enter a team?
Please visit www.friendsoflam.org
Call Laura Lentz 312-953-4280 or LLCSLENTZ@aol.com
July 17th – Golf Outing - Warminster, PA
12 - 5 p.m. at Five Ponds Golf Club
1225 W Street Rd., Warminster, PA
Advance registration required: $125 includes greens fees, cart, lunch, prizes and awards ceremony afterwards.
Questions: Call Joshua Weiskopf at 215-675-8440
or email: Joshua.weiskopf@raymondjames.com
September 6th - Charity Softball Game - Grandslam for LAM - Allentown, PA
2pm - 6pm
1020 St. John St.
610-439-6078
Donations at Gate
Philadelphia Phillies Ball Girls vs Unk Team - to be determined
Activities at Event:
Meet and great Phillies Ball Girls - autographs and pictures
Jump Around / spray on tattoes
Ferrous the Iron Pig Mascot - AAA Phillies Ball Team
PA State Police - fingerprinting children
Raffle for prizes during game
Questions: Call Ed Bloomfield at 610-972-6426
or email: ejb7435@rcn.com
Fall 2008 - Wine tasting and silent auction - Chicago, IL
There is plenty of time to get involved and be a part of this event as well as the Kickball Tournament.
Contact Laura Lentz: llcslentz@aol.com or 312-953-4280
Learn more about the symptoms, cause and treatment of LAM.
Get ideas and advice on how you can support The LAM Foundation.
Read about the latest news and happenings in the LAM community.