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Living with LAM

While tremendous progress has been made in the last decade to better understand and diagnose lymphangioleiomyomatosis (LAM), coping with the disease can be difficult, especially amid the fear and uncertainty of living with a rare disease. Whether you are newly diagnosed or have been living with LAM for a number of years, you know that LAM can change life as you once knew it.  The LAM Foundation has provided information and tips on living with your LAM diagnosis.

Researchers believe as many as 250,000 women worldwide may be living with LAM, although many may not know it.

Featured Patient Story

Tish Davey
At 35, I thought I had it all - a challenging career, a loving husband, two healthy children and another on the way. My third pregnancy seemed normal, except that I became increasingly short of breath doing the simplest tasks.  Just one year later, a CT scan would confirm I had LAM. It was not long after my diagnosis that my condition progressed to the point where a highly risky lung transplant was imminent for not one, but both lungs. Faced with a long waiting list, doctors had given up hope that lungs would come through for me in time.  After narrowly missing two opportunities to receive a new set of lungs, in December 2000, I finally received a double lung transplant, which has given me more time with my family. Founded not long after my diagnosis, The LAM Foundation has provided me with resources and support every step of the way. I now volunteer to raise awareness of leading research efforts to advance the understanding and treatment of LAM.

Read more about Tish's experience and hear stories from other women with LAM.

 

 

Learn more about the symptoms, cause and treatment of LAM.

Get ideas and advice on how you can support The LAM Foundation.

Read about the latest news and happenings in the LAM community.