Patient Support is a very big part of the mission of The LAM Foundation. We offer several ways for you to connect and share experiences with other women with LAM. We also offer several publications to help you to stay up-to-date on the latest scientific, patient, and community events and accomplishments.
There are many ways for you to get connected and stay connected with other women who are dealing with the same types of issues that you may be facing. Whether you email, use social media like Facebook, enjoy telephone conversations, or like getting together with people face to face, The LAM Foundation can help you connect with others.
LAMposium – an annual 3-day conference offering you the chance to learn about LAM and to connect with other women with LAM.
Several publications are available to LAM patients as well as family members and friends. To receive this information please register with the Foundation using the Register Now feature.
Clinical Research Network – 26 LAM Clinics across the US offering multidisciplinary care.
Conservation of Energy - a resource to help you with day-to-day activities.
Cough Control Technique - a resource to help you in controlling your cough.
Emergency Room Quick Facts Card for LAM - a small card (the size of a typical business card) that is easy to carry and contains helpful information that you can share with the doctor when you go to an ER.
Exercising to Maintain Lung Function – a great resource for training your lungs to breath as efficiently as possible.
Helping Children When a Family Member has LAM – a resource to help you talk to children about LAM.
Prescription Assistance/Insurance - information resources which you may be eligible for.
Soy and LAM - a document from the National Institutes of Health explaining why women with LAM should avoid foods that contain phytoestrogens.
*ICD-9 code for LAM is 516.4*