Recently Diagnosed with LAM
Finding out that you have Lymphangioleiomyomatosis (LAM) can be overwhelming and isolating. If you have recently been diagnosed with LAM, you probably have a lot of questions and concerns. It is important to learn as much as you can about the disease and available support programs. The LAM Foundation provides up-to-date information about LAM, treatment options to alleviate symptoms, and opportunities to connect you with other women who are also coping with LAM.There is hope. The Foundation is enrolling patients in the first-ever treatment trial for LAM - an important step in helping women with LAM live longer and happier lives.
Read inspiring stories from other women living with LAM.
What You Need to Know About Lymphangioleiomyomatosis (LAM)
- Lymphangioleiomyomatosis, better known as LAM, is a progressive, lung disease. It affects women almost exclusively.
- LAM usually affects women during their most productive years of life.
- The diagnosis of LAM can be difficult because many of the early symptoms are similar to those of other, more common lung disorders, including asthma, emphysema and bronchitis.
- This disease is characterized by an unusual type of smooth muscle cell that invades tissues of the lungs. Over time, the LAM cells create holes in the lungs, preventing the lungs from providing oxygen to the rest of the body and making breathing difficult.
- In early stages of the disease, most women can go about their daily activities, but as the disease progresses, you may have limited mobility, require oxygen, and eventulaly, a lung transplant.
- Take care of yourself. Adopt a healthy lifestyle and be sensitive to the physical limitations you may have due to impaired lung function.
Learn more about the symptoms, cause and treatment of LAM.
Get ideas and advice on how you can support The LAM Foundation.
Read about the latest news and happenings in the LAM community.