How to Register With Us


Registering with the Foundation is free and easy.  Once registered, you will receive updates, news, and event information via mail and email.  You can register with the Foundation in one of 3 ways:

  • Click here to register online. You will be asked to create a User ID and Password so that you can access your account. After creating an account you will receive a confirmation email. Please reply to the confirmation email letting us know if you are a LAM patient, family, friend, or professional; that will help us better serve you. By creating an account you will be able to update your email and personal information, and read news and announcements about all we are achieving with your support.
  • Call the Foundation and ask to speak to Sally Lamb, Director of Patient Services.  She’ll ask you for your name, contact information, date of birth and date of diagnosis.  This information will be added to our database so that you’ll be included in all future mailings and eblasts.
  • Send an email to slamb@thelamfoundation.org and ask to be registered.  Be sure to include your name, contact information, date of birth and date of diagnosis.

When a woman with LAM contacts the LAM Foundation for first time the Foundation will send her 3 separate packets of information, each sent 2 weeks apart.

The first packet includes our 9-chapter LAM Handbook as well as information about LAM, the services that the Foundation can offer LAM patients, and the latest issue of our Journeys newsletter.

The second packet includes our Personal Journeys With LAM, a collection of stories written by LAM patients about their experiences living with LAM.  It also includes our Money for the Mission fundraising guide with information about how to raise money for LAM research.

The third packet includes several forms that are needed to keep our database as current as possible on medical information on women with LAM.  This medical information is often used by scientists to help in their research.

Family members and friends are also encouraged to register.  Please use the Register Now feature in the upper right corner to give us your contact information.