How to Register With Us

Registering with the Foundation is free and easy.  Once registered, you will receive updates, news, and event information via mail and email.  You can register with the Foundation in one of 3 ways:

  • Click here to register online. You will be asked to create a User ID and Password so that you can access your account. After creating an account you will receive a confirmation email. Please reply to the confirmation email letting us know if you are a LAM patient, family, friend, or professional; that will help us better serve you. By creating an account you will be able to update your email and personal information, and read news and announcements about all we are achieving with your support.
  • Call the Foundation.  We’ll ask you for your name, contact information, date of birth and date of diagnosis.  This information will be added to our database so that you’ll be included in all future mailings and eblasts.
  • Send an email to and ask to be registered.  Be sure to include your name, contact information, date of birth and date of diagnosis.

Once registered, the Foundation will send you a list of resources available to LAM patients. These resources are always available so if you’re not ready to read some of them right now you can wait and request them later.  All of these resources are available free of charge.

Family members and friends are also encouraged to register.  Please ask them to use the Register Now feature in the upper right corner to give us their contact information.