Posted on June 16, 2017 |
June 2017 has been designated as the first Worldwide LAM Awareness Month (WWLAM) by the Worldwide LAM Patient Coalition. WWLAM brings together the global community in a collaborative effort to educate the world about the signs and symptoms of LAM, raise funds to support women living with LAM and share our achievements to inspire researchers and clinicians to optimize therapies and find a cure for LAM.
The New Zealand LAM Charitable Trust was founded in 1999 by Bronwyn Gray and communicates with nearly 20 women with LAM. The home office is located in Auckland, New Zealand with one full-time employee, a voluntary coordinator and fundraiser and an eight member voluntary trustee group. The LAM Charitable Trust works closely with Scientific Advisor, Professor Merv Merrilees and Medical Advisors, Professor John Kolbe from the University of Auckland along with Dr. Christine Forster.
The New Zealand LAM Charitable Trust helps LAM patients and their families through advocacy, communication, patient and family support, liaising with medical and scientific advisors, fundraising and research coordination. They host an annual special event on International Rare Disease Day.
Patients in New Zealand need more input from clinical pulmonary specialists and more funds to enhance collaborative research in New Zealand and internationally.
To learn more about the New Zealand LAM Charitable Trust visit their website at www.lam.org.nz/ or check out their Facebook page at www.facebook.com/groups/LAMLARA.