Zooming-In on What Matters: Education. Connection. Hope.

Posted on April 16, 2021   |   

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March 2020. LAMposium as we know it is cancelled. May 2020. LAMposium in Your Living Room goes viral. Whoops, that is, virtual.

Last spring, when it became clear to us that we would not be gathering as a LAM community in Cincinnati, we at the Foundation quickly shifted our focus to designing virtual experiences that would capture the key elements of our beloved LAMposium. It is this vision that frames our virtual educational series, LAMposium in Your Living Room (LYLR).

With each session in this series, we aim to provide the same caliber of education offered during an in-person conference. Second, we commit to creating space for meaningful conversation. And finally, we trust that, by successfully delivering the first two elements, hope and inspiration will naturally follow.

EDUCATION. Drawing from the list of enthusiastic and generous speakers slated for LAMposium, this educational series explores topics ranging from the benefits of exercise in LAM to the history of rapamycin as a treatment for LAM. Each session provides patients and families not only the opportunity to learn from LAM experts but also the opportunity to engage with these same experts by posing questions in a live Q&A format. And lively Q&A sessions they are!

CONNECTION. Our LAM liaisons, by moderating these sessions, and our patient community, by participating in our Patient Spotlights and sharing their stories in the group discussions following each presentation, spark the meaningful conversations so many have been craving during this time of uncertainty and isolation. The types of conversation that are often shared during a meal or over a cocktail at LAMposium.

HOPE. This blend of education and connection sees our patients and families, our clinicians, and our investigators logging in from around the globe in numbers that would have created standing-room-only sessions at any LAMposium. As we at the Foundation log off each evening, we find ourselves awash in hope and inspiration. The feedback from you, our community, has warmly echoed this sentiment.

It is this same hope and inspiration that has lit up each of our virtual events, whether LYLR or Circle of Hope, last fall’s fascinating ESI Symposia, or our wildly successful 25th Anniversary Pre-Party and Gala. Your heartfelt and generous support has carried us to a level of engagement we could not have imagined last spring. Thank you.

We look forward to keeping it virtual and Zooming-In to 2021 with all of you. If you haven’t yet joined us for LYLR, we hope to see you at our next session in June! Everyone is welcome to attend.

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About Sharlene Dunn: Sharlene has lived her ten years post-lung transplant following her passions in work and play. She works from her home office in Buffalo, Wyoming, a small community nestled in the foothills of the Bighorn Mountains. When she steps out of her office, she often grabs her binoculars and camera, heads to a nearby wetland or alpine stream, and soaks in the sights and sounds of her feathered friends.



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