Information for Professionals

JUNE 22 - 24, 2017
Hyatt Regency Washington on Capitol Hill
400 New Jersey Avenue NW
Washington, DC 20001
(800) 233-1234


The 2017 International Research Conference on TSC and LAM will be held at Hyatt Regency Washington on Capitol Hill in Washington, DC, on June 22-24, 2017. The conference will be co-hosted by the Tuberous Sclerosis Alliance (TS Alliance) and The LAM Foundation and will run concurrently with patient and family education tracks for LAM and TSC (LAMposium DC and Regional TSC Conference, respectively).

Tuberous sclerosis complex (TSC) and lymphangioleiomyomatosis (LAM) are rare, life-threatening disorders sharing a common genetic and biological pathology. TSC is caused by germline or sporadic mutations in TSC1 or TSC2 genes. Individuals with TSC may develop LAM, or sporadic LAM may occur in the absence of TSC due to somatic mutations in the TSC2 gene, affecting cells in lung, lymph nodes, and renal angiomyolipomas.

The main goals of the conference are to provide a forum for exchanging research results and to develop collaborations for future TSC- and LAM-related research. Conference attendees will include leading TSC and LAM experts, early stage researchers, health care professionals, and partners from government, industry, and the non-profit sector.

2017 International Research Conference on TSC and LAM Steering Committee plus

Co-chairs: Francis X. McCormack, MD (Univ. of Cincinnati) and Steven L. Roberds, PhD (TS Alliance)

Martina Bebin, MD, Univ. of Alabama Birmingham
Michael J. Gambello, MD, PhD, Emory University
Kari Luther Rosbeck, TS Alliance
Mustafa Sahin, MD, PhD, Harvard Medical School
Sue Sherman, The LAM Foundation
Katie Smith, TS Alliance
Andrew Tee, PhD, Cardiff University
Raymond S. Yeung, MD, University of Washington
Lisa R. Young, MD, PhD, Vanderbilt University
Jane Yu, PhD, University of Cincinnati

Professional Sessionsplus

Thursday Evening Dinner and Keynote Address – Our confirmed keynote speakers include David Sabatini, MD, PhD, from the Massachusetts Institute of Technology who will present on the impact of basic research on advances in TSC and LAM Clinical care. Dr. Sabatini will also be joined by Walter Koroshetz, MD, Director of the National Institute of Neurological Disorders and Stroke as well as James Kiley, PhD, Director of the Division of Lung Diseases for the National Heart, Lung and Blood Institute.

Poster Session and Reception – Scientific Posters will be on display Thursday and Friday in the Regency Foyer. On Friday afternoon, posters are presented and questions are answered at a reception for researchers and clinicians scheduled for Friday from 5:00 – 7:00pm.

Joint Session – The final session of the conference offers a unique educational experience designed for all conference attendees including scientists, clinicians, patient and families. A speaker and topic for this session will be announced soon.

Breath of Hope Gala - Join us Saturday evening for an inspiring celebration! The Breath of Hope Gala is a fundraising tradition for the LAM Community and The LAM Foundation. The Gala is attended by women with LAM, families, friends and the scientific and medical LAM community. Join us for dinner and dancing, a silent auction, interactive festivities, the rose ceremony and the single largest annual fundraiser for LAM research, Fund-A-Cure. In 2016, Fund A Cure raised more than $200,000 for LAM research in less than 30 minutes! The Gala is included in your conference registration. For more details on the Breath of Hope Gala, or to purchase Gala-only tickets, click here.

Additional Highlightsplus

Breakfast & Lunch – Researchers, clinicians, patients, family and friends are all welcome to connect while sharing a meal together.

Joint Session with Patients, Family & Friends - The final session of the conference offers a unique educational experience designed for all conference attendees including scientists, clinicians, patient and families. A speaker and topic for this session will be announced soon.

Breath of Hope Gala - Join us Saturday evening for an inspiring celebration! The Breath of Hope Gala is a fundraising tradition for the LAM Community and The LAM Foundation. The Gala is attended by women with LAM, families, friends and the scientific and medical LAM community. Join us for dinner and dancing, a silent auction, interactive festivities, the rose ceremony and the single largest annual fundraiser for LAM research, Fund-A-Cure. In 2016, Fund A Cure raised more than $200,000 for LAM research in less than 30 minutes! The Gala is included in your conference registration. For more details on the Breath of Hope Gala, or to purchase Gala-only tickets, click here.

Patient-Focused Drug Development (PFDD) Meeting – Join The LAM Foundation and the TS Alliance on Wednesday, June 21st for an interactive and informative meeting with the FDA where patients will share what matters most to those with a rare disease and what treatments are needed. Representatives of the FDA will be present to hear the patient’s voice as they continue to work on developing and approving new drugs. All are welcome to join us in person or through an interactive webinar. You will be able to share your experience though live polling as the meeting is taking place. For more information on how to participate, please contact Anne McKenna at amckenna@thelamfoundation.org.

LAM Day on Capitol Hill – Make sure your voice is heard. Join The LAM Foundation as we meet with members of Congress and help them understand LAM and what it means to live with the disease. On Thursday morning, we will hold an in depth training session where you will learn how to share your LAM journey with your representatives on Capitol Hill. On Thursday afternoon and Friday morning, join the LAM community as we put that training to use and “March on the Hill” for meetings with as many congressional representatives as possible. For more information about how to participate, contact Anne McKenna at amckenna@thelamfoundation.org.

Step Forward to Cure TSC National Walk on the Mall - Scheduled for Sunday, June 25. Click here to register!