NOVEMBER 9-12, 2017
The Westin Los Angeles Airport
5400 West Century Boulevard
Los Angeles, CA 90045
“All I want is for someone to fight with me…to really LISTEN to me…I just want someone to care and be invested in helping me with this disease.” - LAM Patient
Patient Benefit Conference
The Patient Benefit Conference is an innovative meeting where patients and experts will collaborate to identify science driven solutions to the most important physical and mental health issues LAM patients face every day, and develop plans to tackle those that can potentially be solved in less than five years. The conference will offer funding opportunities to promising proposals that present solutions.
Based on the results of a survey taken by individuals with LAM and LAM clinic directors, this unique conference format will offer an opening plenary session where all attendees will hear directly from patients about the most challenging aspects of living with LAM, along with clinical and scientific updates referencing how these issues are being studied and what solutions may already be in development.
Educational and Solutions Workshops will welcome a wide range of participants, including patients, scientists, clinicians and thought leaders. They will be tasked with learning about issues that patients want solved in the short term and then developing and refining proposals to identify new studies, products or services that address these issues. Some examples of proposed projects include new ways of predicting disease progression, assessing disease severity, addressing the nature of fatigue in LAM, improving supplemental oxygen delivery and helping with the fear and anxiety that accompanies LAM.
LAMposium LA, the traditional LAM patient and family conference, will run concurrently with the Patient Benefit Conference and will offer educational sessions led by LAM experts. Attendees will have the option to choose between LAMposium LA sessions and Patient Benefit Solutions Workshops.
LAMposium LA topics may include:
- LAM 101
- Chest Pain and LAM
- Getting the Most Out of Your LAM Clinic Visit
- Pneumothorax: What to Watch Out for and When to Have Pleurodesis
- How to Decide Whether to Start Medications for My LAM
- LAM Research at the NIH
- LAM Clinical Trials - How Do I Decide?
- Lung Transplantation: Navigating the Journey
- Energy Healing: A Personal Journey Towards Wellness
Breath of Hope Gala
Join us Saturday night for an evening of hope, inspiration and generosity during one of The LAM Foundation’s biggest fundraisers of the year. Enjoy the Silent Auction, Rose Ceremony, Fund A Cure, dinner, drinks, and dancing while celebrating with your friends, family and LAM researchers. The Gala is included in your conference registration. For more details on the Breath of Hope Gala, CLICK HERE.
Peggy & Francis McCormack, Sr.
Ann & Jack Struthers