June 22 – 24, 2017
Hyatt Regency Washington Capitol Hill
400 New Jersey Ave., NW
Washington, DC 20001
The LAM Foundation and the TS Alliance welcome you to attend The 2017 International Research Conference on TSC and LAM & LAMposium DC. This multi-faceted event aims to foster the advancement of TSC and LAM research by enhancing communication between patients, researchers and clinicians.
The 2017 International Research Conference on TSC and LAM: Through communication and collaboration of participating senior and junior researchers and trainees, the conference goal is to stimulate and accelerate basic and clinical research to improve health care and quality of life for individuals with TSC, LAM, and potentially many other related disorders including cancer, epilepsy, autism, and rare diseases with overlapping phenotypes.
LAMposium DC: LAM and TSC patients, family and friends are invited to attend a variety of educational sessions designed to inform and inspire. Presentations led by national experts will include topics such as disease and treatment fundamentals, LAM research trial updates, hormone management, LAM & TSC genetics, hands-on oxygen equipment demonstrations, the evolving health insurance landscape, integrative medicine modalities and more. We will also host roundtable discussions, led by experts who can answer personal questions in more detail.
Breath of Hope Gala: Join us Saturday evening for an evening of hope, inspiration and generosity at one of The LAM Foundation’s biggest fundraisers of the year. Enjoy the Silent Auction, Rose Ceremony, Fund A Cure, dinner, drinks, and dancing while celebrating with your friends, family and LAM researchers. The Gala is included in your conference registration. For more details on the Breath of Hope Gala, or to purchase Gala-only tickets, click here.
Activities throughout the week will include:
Wednesday, June 21 - Patient- Focused Drug Development (PFDD) Meeting with the FDA
Thursday, June 22 - Advocacy Training and Congressional Meetings for LAM Day on Capitol Hill, International Research Conference on TSC and LAM, Thursday Evening Social for Patients, Family & Friends and a Research Conference Kickoff Presentation (Professionals only)
Friday, June 23 - Congressional Meetings for LAM Day on Capitol Hill, International Research Conference on TSC and LAM, LAMposium DC and Scientific Poster Session and Reception (Professionals only)
Saturday, June 24 - International Research Conference on TSC and LAM, LAMposium DC, Regional TSC Conference, Joint Session for Researchers, Clinicians, Patients, Family & Friends and Breath of Hope Gala
Sunday, June 25 - Step Forward to Cure TSC National Walk on the Mall
Patient Benefit Research Conference
& LAMposium LA
November 9 – 12, 2017
The Westin Los Angeles Airport
5400 West Century Blvd.
Los Angeles, CA 90045
The LAM Foundation invites you to attend the Patient Benefit Research Conference & LAMposium LA. This conference will be innovative and inspirational – and will lead to new solutions for LAM patients.
Patient Benefit Research Conference
This unique research conference will focus on finding new therapies or products that will benefit patients in the shorter term: five years or less. The sessions will address patient needs including: fatigue and shortness of breath, the mental health burden of LAM, the realities of oxygen therapy, exercising with LAM, how to predict disease progression/severity and the many side effects and concerns related to drug therapy.
The LAM community, along with LAM researchers and clinicians, will gather in Los Angeles for our first ever West Coast LAMposium! National experts will speak on new advancements in therapy and living well with LAM. In addition, we will celebrate at the Breath of Hope Gala – and raise funds to support the new ideas and proposals generated in the research sessions.
More details coming soon!