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Dr. David Price Explains More On Protecting Your Family During COVID-19

Dr. David Price of Weill Cornell Medical Center in New York City shares information in a Zoom call on March 22 with family and friends on empowering and protecting families during the COVID-19 pandemic. 

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Tags: Coronavirus COVID19 news

The LAM Foundation Submits Oxygen Certification Waiver Request

In an ongoing attempt to continue to advocate for patient access to oxygen, The LAM Foundation is proud to be one of nine organizations issuing a letter requesting that the Center for Medicare & Medicaid Services (CMS) provide a waiver to modify the certification and recertification requirements for Home Use of Oxygen. 

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Tags: CMS legislation news oxygen

TSC/LAM Virtual Town Hall: A COVID-19 Update

On March 20, 2020 The LAM Foundation co-hosted a TSC/LAM Virtual Town Hall addressing COVID-19 with the Tuberous Sclerosis Alliance, which included a free 1-hour online presentation including an open question-and-answer period.

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Tags: Coronavirus COVID19 TS Alliance Video

2020 International LAM Research Conference & LAMposium CANCELLED

It is with deep regret that The LAM Foundation has made the decision to cancel the 2020 International LAM Research Conference and LAMposium in Cincinnati, Ohio.

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Tags: CANCELLED LAMposium 2020

Concerns About the Coronavirus (COVID-19) Updated 03.18.20

The LAM Foundation is closely monitoring the rapidly evolving developments regarding COVID-19. Read more to learn about updated recommendations from the Medical and Scientific Advisory Board of The LAM Foundation and from the Centers for Disease Control and Prevention (CDC).  

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Tags: CDC Coronavirus LAMposium 2020

Recap: RLDC•2018 & LAMposium

From September 6-9, 2018, the Northern Kentucky Convention Center transformed into a hub for rare lung diseases research. More than 400 researchers, clinicians, individuals with rare lung diseases, family members, patient advocacy partners, and sponsors filled the halls. One common goal brought us all together: Finding answers for those who live with these diseases. 

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Tags: Breath of Hope Gala fundraising LAMposium research RLDC 2018

Article on LAM Published in Society of Academic Emergency Medicine (SAEM)

The University of Cincinnati’s Nishant Gupta, MD, recently wrote and published a commentary article about Primary Spontaneous Pneumothorax for the Society of Academic Emergency Medicine (SAEM) Journal. The article explains that a primary spontaneous pneumothorax can often be the symptom of a more serious underlying lung disease, such as lymphangioleiomyomatosis (LAM), Birt-Hogg-Dubé syndrome or pulmonary Langerhans cell histiocytosis.

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2018 Optime Magistrum Award

Scientific Advisory Board member, Kathryn Wikenheiser-Brokamp, MD, PhD, was recently honored with the Optime Magistrum Award.

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The LAM Foundation Advocates for Fair Oxygen Use

In an ongoing attempt to continue to advocate for patient access to oxygen, The LAM Foundation is proud to be one of eleven organizations issuing a letter to the Acting Secretary of the Department of Health and Human Services.

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Million Dollar Bike Ride Grant Award Winners

The LAM Foundation is proud to announce the 2017 UPENN Orphan Disease Center (ODC) Grant Award winners. Two projects, for a total of $100,120 were awarded to LAM scientists this year. The LAM Foundation Easy Breathers Cycling team raised more than $50,000 which was matched by a grant from the ODC. The team participated in the 2017 Million Dollar Bike Ride for the fourth consecutive year and has raised over $400,000 to date.

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