RLDC LAMposium 2016

In September 2016, The LAM Foundation and the Rare Lung Diseases Consortium welcomed rare lung disease organizations and thought leaders to attend the International Rare Lung Diseases Research Conference (RLDC 2016). Researchers, clinicians, patients and families gathered for a purpose-driven event where LAM and rare lung disease research was discussed in detail, trials were planned for pediatric ILD, PAP and PLCH, and the patient experience put a human face on rare lung diseases. The investigators who saw the potential impact of their work for the first time came away especially touched and energized by the experience. The success of RLDC 2016 is due to the collaborative efforts of our attendees, sponsors and partners.

LAMposium by the Numbers

LAMposium 2016 Highlights

Checkout some highlights from LAMposium 2016 by checking out our photo gallery.
Use the password breathofhope to view the photos.

Patient & Family Session Videos

For those who were not able to attend RLDC LAMposium 2016, below are recorded video sessions from the patient and family educational sessions.

LAM 101
Presenter: Souheil El-Chemaly, MD
LAM Pearls : Ten Things I Want Every LAM Patient to Know
Presenter: Francis X. McCormack, MD
Fighting LAM and Winning:
A Research Update on Promising New Targets for Treating LAM
Presenters: Issam Ben-Sahra, PhD & Lisa Henske, MD
Benefits of Supervised Exercise for Patients with LAM
Presenters: Bruno Guedes Baldi, MD & Rebecca Crouch, DPT, MS, PT
Approach to Pneumothorax and Pleurodesis
Daniel Dilling, MD
Understanding Genetics of LAM and GWAS Study Update
David Kwiatkowski, MD, PhD
Lung Transplantation for LAM: Challenges and Successes with Tissue Donation Panel Discussion
Top Ten Things to Know About Participating in Research + Real World Research Update
Presenters: George Pappas, MD with Calvin Lu, MD
Optimizing Oxygen: What You Need to Know
Presenter: Susan Jacobs, RN, MS
Everyday Fitness: How to Handle the Good, the Bad and Just Ugly Days
Presenter: Rebecca Crouch, PT, DPT, MS, CCS
Raising Funds to Find a Cure: Learning from the Experts
Presenters: Andrea Slattery and Katie Jensen
LAM and the NIH: An Overview of Research Activities
Presenter: Joel Moss, MD, PhD
What the Radiologist Sees: Cystic Lung Diseases with a Focus on LAM
Presenter: Sandra Oldham, MD
Kidney Involvement in LAM
Presenter: Janet Boyle, MD
Smart Planning: Help Yourself and Those You Love
Presenter: Nicole Wipp, Esq.
Hormones and LAM Across a Lifetime
Presenters: Stephen Hammes, MD, PhD & Lisa Larkin, MD
The ADA and You: What You Need to Know as an Employee with LAM
Presenter: Evan H. Pontz, Esq., Troutman Sanders LLP
Risks and Benefits of Drug Treatment for LAM
Presenter: Simon Johnson, MBBS, LAM Clinic Director, University of Nottingham