International Rare Lung Diseases Research Conference & LAMposium

LAMPosium 2016

What is LAMposium?

LAMposium from The LAM Foundation on Vimeo.

The International LAM Research Conference and LAMposium is the largest LAM conference in the world – attracting more than 375 people representing the global LAM community to one location.

The conference is made up of 3 Events in One, productively focusing on:

Educating Patients and Families (LAMposium) LAM is rare. Women with LAM, families and friends have the opportunity to share their experiences living with LAM and learn the latest news in LAM research and clinical care from LAM experts from around the world. At LAMposium, patients can easily meet and connect with others with LAM and with researchers and clinicians who are leaders in their fields.

Sharing and Inspiring New Research (LAM International Research Conference)
The research conference is critical to advancing LAM research efforts, fostering dialog, cultivating relationships and understanding among the LAM researchers and clinicians who attend. More than 110 researchers and clinicians share results of current studies, trials and clinical therapies. Our unique model of bringing researchers and clinicians together with patients is a key factor in creating and sustaining interest, momentum and progress in the study of LAM.

Generating Partnerships and Funds to Find a Cure (Breath of Hope Gala)
Nearly 450 people gather at the “Breath of Hope” Gala on Saturday evening to raise funds to find a cure. The Gala is an inspiring event to celebrate the resilience and strength of all women with LAM.

One patient described her LAMposium experience by saying, “I always learn something new and interesting at LAMposium, whether it’s related to the science and research behind the disease, or how someone else is handling a certain issue. It’s always good to connect with other women who share the same struggles and hopes. LAMposium is always a very positive experience!"

LAMposium 2015

In March of 2015 The LAM Foundation celebrated 20 years of advancing LAM research and awareness at the Breath of Hope Gala Platinum Anniversary Celebration. When Sue Byrnes founded The LAM Foundation in 1995, she knew that hope starts with a conversation, because of her courage and perseverance, today we are stronger together. 

Stronger Together was the theme of the 2015 International Research Conference and LAMposium where the interaction among patients, families, scientist and clinicians facilitates greater understanding, and ultimately, one day, a cure for LAM.

LAMposium 2015 by the Numbers

For those who were not able to attend LAMposium 2015, below are PowerPoint presentations and recorded video sessions from the educational sessions.

Incorporating Patient–Centered Outcomes into LAM Research
Presenter(s): Jeffrey Swigris, DO, MS
Diagnosed with LAM in 2014
Presenter(s): Melaney Parrish
LAM 101
Presenter(s): George Pappas, MD
Emerging Treatments: mTOR Inhibitors and Beyond
Presenter(s): Elizabeth Henske, MD
Lung Transplantation: From Referral through Recovery
Presenter(s): Dan Dilling, MD
LAM Clinical Research Update: We are Stronger Together
Panel: Frank McCormack, MD - Tony Eissa, MD - Vera Krymskaya PhD, MBA - Thomas - Lowder, PhD - Joel Moss, MD, PhD - Lisa Young, MD
Planning for Social Security
Presenter(s): Andrew Salata
Risks and Benefits of Drug Therapy for LAM
Presenter(s): Robert Kotloff, MD
Awards Banquet Address: Twenty Years of Progress in LAM – What’s Next?
Presenter(s): Frank McCormack, MD
Nutrition Intervention in Pulmonary Disease: Optimizing the LAM Patient
Presenter(s): Rachel Dunn, RD, LDN
Chest Pain and LAM: Who, When and Why
Presenter(s): Stephen Ruoss, MD
Access to Treatment: Barriers and Strategies
Presenter(s): David Schweighoefer, Esq.
Knowing How My Lungs Work Will Allow Me to Breathe Better
Presenter(s): Barbara Rife, BS, RCP
What Do Your Test Results Mean to You and Your Doctor
Presenter(s): Emily Gilbert, MD
LAM, Menopause and Intimacy
Presenter(s): Lisa Larkin, MD
Integrative Medicine: A Holistic Approach For You
Presenter(s): Ni-Cheng Liang, MD
Facing Fertility When Estrogen is Not an Ally: Minimizing Estrogen Exposure in Fertility Treatments
Presenter(s): Kathleen Hoeger, MD
Joint Session: Women’s Health Forum: Hormones and LAM Across a Lifetime
Moderator: Geraldine Findlay, MD
Panel: Lisa Larkin, MD - MeiLan Han, MD - Kathleen Hoeger, MD, MPH - Steven Hammes, MD, PhD
Complications Related to Pneumothorax and Chylous Fluid Accumulation
Presenter(s): Jay Ryu, MD
Research Conference Summary and Panel Discussion
Panel: Frank McCormack, MD - Vera Krymskaya, PhD, MBA - Jeffrey Swigris, DO, MS