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Why a Hospital Has a Harmonica Band


Patients at the University of Michigan pulmonary rehab center make music with the thing that troubles them most: their breath.

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Tags: Breathing difficulties Breathing Techniques Harmonica class LAM lung disease Lymphangioleiomyomatosis Pulmonary Rehabilitation University of Michigan

RLDC•2016•LAMposium and Breath of Hope Gala Photo Gallery


We are so excited to share with you all of the photos taken from the Rare Lung Diseases Research Conference, LAMposium and Breath of Hope Gala. Many thanks to Kelsey Adams for all of her work at the conference, she took some wonderful photos. It is really a lot of work keeping up with this LAM Community at LAMposium and we are thrilled we can share all of her photos with you. And a special thanks to Jen Fujikawa for gathering Kelsey’s photos and putting them into a gallery for us to view, download, save, share, post and purchase.

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Tags: LAMposium

RLDC•2016•LAMposium Highlights


We are less than a month away from the largest Rare Lung Diseases Research Conference to ever take place in the United States. And it is all happening September 22 – 25 at the Northern Kentucky Convention Center, directly across the river from Cincinnati, Ohio. The LAM Foundation is partnering with the Rare Lung Diseases Consortium to host the RLDC•2016•LAMposium. Researchers and clinicians who are studying or treating over 17 rare lung diseases will gather with us to share the latest research updates and discuss how to properly diagnose and treat these rare lung diseases.

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Tags: LAMposium

Add Your Personal Touch to this Year’s LAM Quilts


It's Quilt Time X

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ATTENTION LAM ADVOCATES: We need your help!


The Senate is scheduled to debate the National Defense Authorization Act for fiscal year 2017 (S. 2943), which includes two provisions that would significantly restrict and possibly even eliminate funding for the medical research programs conducted by the Department of Defense (DoD), including research funded by the Tuberous Sclerosis Complex Research Program (TSCRP).

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Tags: Advocacy TSCRP

The LAM Foundation Attends the American Thoracic Society Conference


The American Thoracic Society (ATS) held its international conference May 13- 18 in downtown San Francisco. Members of The LAM Foundation staff, along with expert LAM researchers and clinicians, were in town sharing LAM awareness and educating other lung professionals on the symptoms and signs and how to diagnose LAM.

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Tags: ATS Educational Events

Highlights from the Million Dollar Bike Ride


Not only did our Easy Breathers brave the cold rainy weather to cross the finish-line, they also hit their goal of raising $50,000 for LAM Research. Because they hit their goal, UPenn Orphan Disease Center will match those funds, dollar for dollar. Now two LAM researchers can receive grants to further their research studies!

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Tags: Community Events MDBR

The Twenty Best Things About LAMposium


Pat Rubadeau talks about the top twenty reasons why she likes best about LAMposium. 

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Tags: LAMposium

Join us at the American Thoracic Society Conference in San Francisco


The American Thoracic Society (ATS) is hosting their annual conference in San Francisco May 13 – 18. Pulmonary, critical care, and sleep professionals who are members of the ATS will gather for educational seminars, workshops and exhibitions. The LAM Foundation will also be there and would like you to join us as we promote LAM awareness by educating lung professionals about the symptoms and signs of LAM, diagnostics, treatment and research advances.

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Tags: ATS Educational Events

A Million Things to Do at the Million Dollar Bike Ride


We are just a week away from the starting line at the Million Dollar Bike Ride. The LAM Easy Breathers Cycling Team is 42 riders strong and working hard to raise money for LAM research. If you live near Philadelphia or are in town, check out some of the activities you may want to attend. And of course you do not need to be in Philadelphia to take part in all of the festivities surrounding the event!

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