We are less than a month away from the largest Rare Lung Diseases Research Conference to ever take place in the United States. And it is all happening September 22 – 25 at the Northern Kentucky Convention Center, directly across the river from Cincinnati, Ohio. The LAM Foundation is partnering with the Rare Lung Diseases Consortium to host the RLDC•2016•LAMposium. Researchers and clinicians who are studying or treating over 17 rare lung diseases will gather with us to share the latest research updates and discuss how to properly diagnose and treat these rare lung diseases.
The LAM Foundation is thrilled to welcome other Rare Lung Diseases Patient Advocacy Groups (PAGs) to LAMposium; our unique scientific conference that includes patients and families as an integral component.
This year we are expecting more researchers and clinicians, more women with LAM, and more family members and friends than ever before. Keep reading for highlights about this year's conference!
Thursday Evening Welcome Reception
Thursday evening, please join us to reconnect with friends or meet new ones at the social for patients, family and friends. Later that evening, join the researchers and clinicians for a presentation by Co-Founder and Executive Director of the Castleman Disease Collaborative Network, David Fajgenbaum, MD, will offer an Opening Keynote Address, “Overtime: A Physician-Scientists-Advocate-Patient-Fighting To Cure Castleman Disease”.
Friday morning, everyone is welcome to wake up early and grab a spot on the floor at a yoga session lead by LAM patient and certified yoga instructor, Kat Steele. Kat will lead us in Vinyasa yoga at 7:00am on Friday, Saturday and Sunday mornings in the Kentucky Room at the Cincinnati Marriott at RiverCenter.
If you are new to LAMposium, you will not want to miss the First Time Attendee Orientation presented by LAM Liaison, Marla Hamlin. This is a great way to collect insight into what you can expect over the next 48+ hours and how to make the most of your time.
An Hour with Frank McCormack
Following Friday’s lunch, LAM Scientific Director, Francis X. McCormack, MD will present “LAM Pearls: Ten Things I Want Every LAM Patient to Know”. Dr. McCormack will share his perspective on recent advances in LAM, his advice for individuals living with LAM and his optimism for the future of LAM.
Friday Celebration Banquet
Dr. Frank McCormack will welcome everyone at the RLDC•2016•LAMposium to the Rare Lung Diseases Consortium Banquet where we will celebrate advancement in rare lung disease research. Dr. McCormack will share his thoughts, “Serendipity, Science, Synergy: Making Progress in Rare Lung Diseases Together.” We will also hear from our keynote speaker, Frank Sasinowski, JD, who will present “Power to the Patients!--The Rising Voice of the Patient in Tackling their Conditions”.
Roundtable discussions are an opportunity to continue the conversation or ask additional questions of the experts who are presenting this year. Roundtable Discussions will take place Friday and Saturday afternoons. Topics include: Clinical Trials, ADA, Chylous Fluid Accumulation, Oxygen Technology, Exercise, Intimacy and LAM, Lung Transplant and Questions for the Newly Diagnosed. You can access the entire list of topics and schedule your time at the Roundtable Discussion room on our mobile app.
LAM and rare lung disease researchers will provide education about open clinical trials and research studies. There may be opportunities for active enrollment and data collection for some studies. Take a few minutes to fill out a questionnaire and meet with these research coordinators – it will make a difference!
Spouse and Partner Happy Hour
Connect with others who care for loved ones with LAM. This gathering is planned specifically to allow for spouses and partners to get to know each other in a casual atmosphere. We will meet in the ground floor lobby of the convention center and walk to a local restaurant.
Breath of Hope Gala
Join us for an evening of celebration at the Breath of Hope Gala on Saturday evening. Purchase a raffle ticket to win a trip for two to Palm Springs, CA, bid on items at our Silent Auction and raise a paddle to Fund A Cure, an awe inspiring 30 minutes of generosity to raise funds for LAM research. Bring along your dancing shoes and your competitive spirit as we connect and celebrate together.
Sum it Up on Sunday Morning
Stick around on Sunday morning when Robert Kotloff, MD, and William Parks, PhD, will summarize the Rare Lung Diseases Conference and the LAM Research Conference. Following the overview, they will open up the conversation and offer time for final questions before the conference officially closes.