Search for an Article

 Search

To search by keyword(s), simply type the words in the search box and click Search.

To search for a specific phrase, enter the phrase within quotation marks and click Search.

To search for predetermined topics/tags or by type of resource, scroll down until you see the category and tags sections on the left navigation bar of this page. Then click on the category or topic of interest to reveal the corresponding videos.

LAMposium DC or LAMposium LA…or Both!

0 Comments   |   
Like 0 Likes

Can't decide whether to attend LAMposium DC, LAMposium LA or both?  Keep reading to learn about highlights for each conference and more information to help you make your decision. 

Read More

Tags: LAMposium DC LAMposium LA
Categories: Events

Guest Blog: A 90’s Prom Fundraiser

0 Comments   |   
Like 1 Likes

My biggest fear when I was growing up (other than sharks of course) was always that I would grow up and be ordinary. For as long as I can remember, something in my gut always told me that I was destined to do something unique and amazing. Little did I know that I would, in fact, become extraordinary, just not for the reasons I wanted. 

Read More

Tags: Fundraising
Categories: Events

What I Learned on Capitol Hill

0 Comments   |   
Like 0 Likes

I learned a lot of great lessons during my time ‘on the Hill’. I learned that my congressional representatives want to hear from their constituents about what matters to them. I learned that even though they may not understand what LAM is, they want to learn and want to help. And I learned that if you are visiting your representatives on the Hill, you should DEFINITELY wear comfortable shoes.

Read More

Tags: LAM Day on Capitol Hill LAMposium DC
Categories: Events

LAM & TSC Patient-Focused Drug Development Meeting with the FDA

0 Comments   |   
Like 0 Likes

The TS Alliance, in partnership with The LAM Foundation, is sponsoring a Patient-Focused Drug Development Meeting (PFDD) with the FDA on June 21, 2017, at the Hyatt Regency on Capitol Hill in Washington, DC, from 8:30 a.m. to 4:30 p.m. The purpose of this meeting is for individuals affected by LAM and TSC and caregivers of dependent adults or children to communicate their perspectives on living with LAM and TSC to the FDA. This meeting is free and open to the public, and it will be webcast live online. We hope you will REGISTER and make plans to attend in person or online.

Read More

Tags: LAMposium DC PFDD
Categories: Events

LAMposium Means Hope

0 Comments   |   
Like 0 Likes

After several months of suffering from shortness of breath, I asked a friend of mine, who is a doctor, what he thought I should do. He told me to get a chest X-ray; that is when I started to worry because my X-rays revealed that something was wrong with my lungs. He referred me to a specialist and told me to get a CT scan before going to the specialist’s office. On August 3, I was diagnosed with this rare disease I could not even pronounce: lymphangioleiomyomatosis – LAM. My pulmonologist explained what he knew about the disease and of course I was devastated.

Read More

Tags: LAMposium 2016
Categories: Events

If You Could Ask an Expert to Solve Your Most Vexing Issue with LAM, What Would it Be?

0 Comments   |   
Like 0 Likes

The obvious answer to this question is: a cure. A cure would negate every other complication caused by LAM. Indeed, finding a cure remains our number one priority at The LAM Foundation. However, in the intervening years, we know there are many questions and issues that, if solved or addressed constructively, might improve each patient’s quality of life as we endeavor to overcome the final barriers to a cure.

What would make life better for you now: hour to hour, day to day, month to month, clinic visit to clinic visit? The answers you provide to this question will set the agenda and priorities for the upcoming “Patient Benefit” Research Conference, to be held concurrently with LAMposium LA.

Read More

Tags: LAMposium LA Patient Benefit
Categories: Events

Have Bike, Will Ride for LAM

0 Comments   |   
Like 0 Likes

Katherine Lu Hsu, talks about her experience at the UPENN Million Dollar Bike Ride (MDBR) and why the MDBR community and supporting The LAM Foundation are so important to her. 

Read More

Tags: Fundraising
Categories: Events

PARTICIPATE: LAM Research Survey

0 Comments   |   
Like 0 Likes

This letter is an invitation to participate in a research survey. The purpose of the research is to answer important questions about medication use and quality of life in LAM patients who are considering or who have undergone lung transplantation.

Read More

Tags: LAM Research
Categories: Educational Resources

Top 10 Ways YOU Can Accelerate LAM Research

0 Comments   |   
Like 2 Likes

Facilitating and funding research has always been the core mission of The LAM Foundation. In this regard, we have achieved exceptional results as a rare disease organization and a united community.

This is possible when each of us 1) identifies what we can do and 2) TAKES ACTION. Together we can stimulate new ideas, unleash new funding and deliver a cure for LAM.

Read More

Tags: LAM Research
Categories: Educational Resources

Vaccinations for Patients with LAM

3 Comments   |   
Like 2 Likes

Vaccines are a wonderful addition to the world of medical care, providing so much benefit for people, and with such safety. And vaccines are the ultimate example of preventive medical care, producing great protection from what can be disastrous infections, particularly in patients with significant lung problems.

Read More

Tags: Patient Care Vaccines
Categories: Educational Resources

How is Your Exercise Routine Going So Far This Year?

4 Comments   |   
Like 4 Likes

Rebecca Crouch, DPT, MS, CCS talks about how the advantages of regular exercise and how you can even manage to fit exercise in on those terrible, ugly, “I don’t want to get out of bed” days. 

Read More

Tags: Exercise Pulmonary Rehab
Categories: Educational Resources

Ask the Doctor: Are Generic Drug Products as Safe and Effective as Brand Name Drug Products?

0 Comments   |   
Like 1 Likes

Gene Sullivan, MD, Emeritus Board Member of The LAM Foundation and former Deputy Director of the Division of Pulmonary and Allergy Products at the USFDA answers questions about the difference between generic and name brand drugs, specifically in regards to sirolimus and Rapamune.

Read More

Tags: Generic Drugs Sirolimus
Categories: Educational Resources

1 2
Sign In to Participate
Or register to become a member