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Fundraising Simplified: Elizabeth Hardy

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For her birthday, Elizabeth Hardy decided that instead of receiving gifts from her friends and family, she wanted to do something with a little more meaning. It was a big birthday for Elizabeth as she was not only turning 60, but it was also the 25th year since receiving her LAM diagnosis. She wanted to take this opportunity to ask her closest friends to join her for a brunch to celebrate and donate to The LAM Foundation as their birthday “gift”. Much to Elizabeth’s surprise, nearly everyone she told about her fundraiser sent a donation to The LAM Foundation in her honor.  

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Tags: Fundraising
Categories: Events

Genetics Research into LAM Leads to a New Discovery

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Genetic research sponsored by The LAM Foundation has led to a new discovery!
We need your help to learn more.

What can saliva samples teach us about LAM? It took a global network of patients, researchers, and donors like you to find out. Everything began with one common connection—The LAM Foundation. We are the global leader in the

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Categories: News

Letter-Writing for LAM: The Rocco Family's Fundraiser

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Our family became involved with The LAM Foundation in July of 2017. Our 20-year-old daughter, Marissa, was enjoying a day at the beach when she had some chest pain which intensified while walking and when she laid down. We took her to the ER, where a chest x-ray determined her left lung was about 95% collapsed. Despite efforts to correct the problem with chest tubes, she eventually needed surgery. At the same time, a CT scan of her lungs showed multiple cysts in both lungs.  

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Categories: Patient Profiles

Spaghetti for LAM: Fundraising Q&A with Alyssa Ciano

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Alyssa Ciano is a high school student from Senora, California who came up with a creative way to raise money for LAM: A spaghetti dinner! Here, she shares how she became involved with The LAM Foundation, why she chose to fundraise, and what made her event successful. 

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Tags: Fundraising
Categories: Events

A Mindset Shift: Embracing the Unknown

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I’m not saying this is the easiest thing to do. I’m just taking it one day at a time. Embracing the LAM community has also been a huge help to me. Connecting with other women who have this disease has given me the security that I’m not alone in this fight. I will do my best to bring awareness to this disease. 

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Tags: diagnosis new patient
Categories: Patient Profiles

Drawing a Circle of Hope

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A resource offered by The LAM Foundation, the Circle of Hope Transplant Support Program was established in 2018. The program connects LAM patients who are considering lung transplantation with those who have undergone the procedure, as well as with experts in the field.

Program Coordinator Sharlene Dunn shares her own journey to transplantation, the story behind the Circle of Hope, and the many inspirations she has found along the way. 

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Tags: Circle of Hope Lung Transplant support group
Categories: Educational Resources Patient Profiles

From $500 to $5,000: Rachel Faleide’s Phenomenal Facebook Fundraising

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In August 2018, Rachel Faleide, MSN, FNP-C was diagnosed with LAM. In September 2018, she decided to share her diagnosis with friends and family by starting a Facebook fundraiser for The LAM Foundation. Rachel’s initial goal was to raise $500. In just weeks, she smashed that goal by raising over $5,000! Here, she shares the story behind her fundraising success.  

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Tags: Facebook Fundraising
Categories: News

2018 Advances in LAM

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With your support, The LAM Foundation continues to thrive as a source of hope for individuals affected by LAM. We have again accelerated research and improved patient care, with each day moving us closer to a cure. Learn more about a few of our 2018 accomplishments. 

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Tags: clinical care LAMposium 2018 patient support Research
Categories: News

More Ways to Give: Qualified Charitable Distributions from IRAs

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Are you or someone you know over the age of 70 ½ and looking for more ways to give to The LAM Foundation? You may be able to donate through a Qualified Charitable Distribution! Read on to learn more about this opportunity to give.

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Tags: Donations IRA Qualified Charitable Distributions
Categories: News

Short-Term Goals, Long-Term Effects: Outcomes of the 2017 LAM Patient Benefit Conference

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How can we improve the lives of LAM patients in five years or less? This is the question scientists, clinicians, and patients themselves gathered to answer at the first-ever LAM Patient Benefit Conference. Among the many valuable ideas shared, the following grant proposals have received funding to move forward. Each was chosen for its potential to result in solutions that will positively impact the diagnosis, care, or quality of life of LAM patients by the year 2023.

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Tags: Patient Benefit Conference Research
Categories: Events News

Running for LAM: Q&A with Kat Steele

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Kat Steele is a LAM patient who commemorated the 5-year anniversary of her diagnosis by participating in the New Hampshire Marathon on September 29, 2018. Here, she shares insights from her journey as a LAM patient, as a runner, and as a fundraiser. 

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Tags: Fundraising
Categories: Events News

Q&A: The MILED Trial

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The MILED Trial is a currently enrolling study led by Dr. Frank McCormack, Scientific Director of The LAM Foundation. The trial seeks to answer an important clinical question about early treatment of LAM. That question is: “Does early treatment of mild LAM symptoms with low dose sirolimus stop progression of disease and cyst formation in the lungs?” The answer to this question will benefit patients with LAM all around the world.

Here, we answer your own questions about the MILED Trial. 

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Tags: clinical trial Dr. Frank McCormack MILED Sirolimus
Categories: Educational Resources

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