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The LAM Foundation is closely monitoring the rapidly evolving developments regarding COVID-19. Read more to learn updates about recommendations from the Medical and Scientific Advisory Board of The LAM Foundation and from the Centers for Disease Control and Prevention (CDC).
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Esse documento foi traduzido em 13/3/2020 por Maria Clara Castellões de Oliveira, vice-presidente da Associação dos Portadores de Linfangioleiomiomatose do Brasil, com a permissão da LAM Foundation.
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It is with deep regret that The LAM Foundation has made the decision to cancel the 2020 International LAM Research Conference and LAMposium in Cincinnati, Ohio.
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With the generous support of donors, volunteers, and the broader LAM community, The LAM Foundation continues to pursue new milestones in LAM research, patient support, and access to expert care. The collective efforts of scientists, clinicians, and patients through Foundation programs provide a source of hope for individuals affected by this rare and devastating disease. In 2019, we strategically built upon proven methods of progress while also innovating to maximize new technologies and opportunities.
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The LAM Foundation is proud to announce our 2019 Grant Award winners, which this year resulted in funding three LAM research projects. We are also pleased to announce three additional “Seed Grants” this year for a total of $410,000. The Penn Medicine Orphan Disease Center also announced the winner of the 2019 Million Dollar Bike Ride Research Grant Award. Thanks to The LAM Foundation’s Easy Breathers Cycling Team and all those who donated to the Million Dollar Bike Ride, one LAM researcher received a grant award of $72,704. This was the sixth consecutive year for the MDBR, which has awarded more than $592,000 to LAM research projects.
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Save The Date: Thursday, September 12, 2019. That’s the date of our Breath of Hope Day of Giving, a 24-hour fundraising experience and the first of its kind for The LAM Foundation. It promises to be a day filled with information, entertainment, and giving.
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We are very excited to be welcoming a new member to The LAM Foundation team as well as congratulating a current one one a new role! Join us in giving them each a very warm welcome.
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Francine Kalogerou was diagnosed with LAM in February 2019 and instead of letting that define her, it helped her find a new perspective on life. In her own words, "I don’t know what the future holds for me, but I do know I have today. Yesterday is gone. The future hasn't happened yet. Looking at life and my situation positively is making all the difference in the world." With this positivity, Francine decided to take action and host a walk-a-thon benefiting The LAM Foundation.
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For her birthday, Elizabeth Hardy decided that instead of receiving gifts from her friends and family, she wanted to do something with a little more meaning. It was a big birthday for Elizabeth as she was not only turning 60, but it was also the 25th year since receiving her LAM diagnosis. She wanted to take this opportunity to ask her closest friends to join her for a brunch to celebrate and donate to The LAM Foundation as their birthday “gift”. Much to Elizabeth’s surprise, nearly everyone she told about her fundraiser sent a donation to The LAM Foundation in her honor.
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Genetic research sponsored by The LAM Foundation has led to a new discovery!
We need your help to learn more.
What can saliva samples teach us about LAM? It took a global network of patients, researchers, and donors like you to find out. Everything began with one common connection—The LAM Foundation. We are the global leader in the
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Our family became involved with The LAM Foundation in July of 2017. Our 20-year-old daughter, Marissa, was enjoying a day at the beach when she had some chest pain which intensified while walking and when she laid down. We took her to the ER, where a chest x-ray determined her left lung was about 95% collapsed. Despite efforts to correct the problem with chest tubes, she eventually needed surgery. At the same time, a CT scan of her lungs showed multiple cysts in both lungs.
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