June 2017 has been designated as the first Worldwide LAM Awareness Month (WWLAM) by the Worldwide LAM Patient Coalition. WWLAM brings together the global community in a collaborative effort to educate the world about the signs and symptoms of LAM, raise funds to support women living with LAM and share our achievements to inspire researchers and clinicians to optimize therapies and find a cure for LAM.
LAM Academy is a joint project between the Department of Respiratory Medicine and Allergy at the Karolinska University Hospital in Stockholm, Sweden, LAM patients and their relatives.
LAM Academy was founded in 2008 by LAM patient Anette von Koch and Medical Advisor Maryam Fathi, MD, PhD, from Karolinska University Hospital. LAM Academy communicates with more than 55 LAM patients. As there are less than 10 million inhabitants in Sweden, around 10 women per million are diagnosed with LAM.
The LAM Academy works with a voluntary board: Maryam Fathi, MD, PhD, Prof. Gunnar Norstedt, Prof. Sten Lindahl, and four LAM-patients and relatives: Anette von Koch, Martha Rådmark, Sofia Kokoinen and Magnus Rådmark.
The organization has a meeting once a year in Stockholm with lectures and workshops on different subjects related to LAM and “living with LAM”, including news about LAM and LAM research trials. In spring 2016, the first LAM publication was presented at Karolinska Institute, led by Prof. Gunnar Norstedt.
To learn more about LAM Academy visit their website at www.lamacademy.org or their Facebook page at .