Articles for category Events
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Save The Date: Thursday, September 12, 2019. That’s the date of our Breath of Hope Day of Giving, a 24-hour fundraising experience and the first of its kind for The LAM Foundation. It promises to be a day filled with information, entertainment, and giving.
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Francine Kalogerou was diagnosed with LAM in February 2019 and instead of letting that define her, it helped her find a new perspective on life. In her own words, "I don’t know what the future holds for me, but I do know I have today. Yesterday is gone. The future hasn't happened yet. Looking at life and my situation positively is making all the difference in the world." With this positivity, Francine decided to take action and host a walk-a-thon benefiting The LAM Foundation.
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For her birthday, Elizabeth Hardy decided that instead of receiving gifts from her friends and family, she wanted to do something with a little more meaning. It was a big birthday for Elizabeth as she was not only turning 60, but it was also the 25th year since receiving her LAM diagnosis. She wanted to take this opportunity to ask her closest friends to join her for a brunch to celebrate and donate to The LAM Foundation as their birthday “gift”. Much to Elizabeth’s surprise, nearly everyone she told about her fundraiser sent a donation to The LAM Foundation in her honor.
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Alyssa Ciano is a high school student from Senora, California who came up with a creative way to raise money for LAM: A spaghetti dinner! Here, she shares how she became involved with The LAM Foundation, why she chose to fundraise, and what made her event successful.
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Fundraising
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Events
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How can we improve the lives of LAM patients in five years or less? This is the question scientists, clinicians, and patients themselves gathered to answer at the first-ever LAM Patient Benefit Conference. Among the many valuable ideas shared, the following grant proposals have received funding to move forward. Each was chosen for its potential to result in solutions that will positively impact the diagnosis, care, or quality of life of LAM patients by the year 2023.
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Kat Steele is a LAM patient who commemorated the 5-year anniversary of her diagnosis by participating in the New Hampshire Marathon on September 29, 2018. Here, she shares insights from her journey as a LAM patient, as a runner, and as a fundraiser.
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Joe & Mary Van Brackel share a bit about their experience participating in the Million Dollar Bike Ride sponsored by the Penn Medicine Orphan Disease Center.
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CEO, Sue Sherman talks about the significance of the recent Patient Benefit Conference and how The LAM Foundation is embarking on HOPE 2.0.
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We often hear about the power of lobbyists/advocates and their ability to take on a specific cause with the goal of influencing change. But when The LAM Foundation decided to gather a group of LAM patients, family and friends in Washington, D.C. to advocate for LAM awareness and the need for continued funding of the NIH, it presented an opportunity almost as rare as the disease itself.
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Registration for the Patient Benefit Research Conference is officially open! The LAM Foundation staff is super excited about this conference, but we also realize the concept may still be unclear to many who might want to attend. I wanted to take a few minutes to help provide a better understanding of what it is and what you might learn by attending.
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Can't decide whether to attend LAMposium DC, LAMposium LA or both? Keep reading to learn about highlights for each conference and more information to help you make your decision.
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My biggest fear when I was growing up (other than sharks of course) was always that I would grow up and be ordinary. For as long as I can remember, something in my gut always told me that I was destined to do something unique and amazing. Little did I know that I would, in fact, become extraordinary, just not for the reasons I wanted.
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Tags:
Fundraising
Categories:
Events