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Articles for category Patient Profiles

Letter-Writing for LAM: The Rocco Family's Fundraiser

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Our family became involved with The LAM Foundation in July of 2017. Our 20-year-old daughter, Marissa, was enjoying a day at the beach when she had some chest pain which intensified while walking and when she laid down. We took her to the ER, where a chest x-ray determined her left lung was about 95% collapsed. Despite efforts to correct the problem with chest tubes, she eventually needed surgery. At the same time, a CT scan of her lungs showed multiple cysts in both lungs.  

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Categories: Patient Profiles

A Mindset Shift: Embracing the Unknown

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I’m not saying this is the easiest thing to do. I’m just taking it one day at a time. Embracing the LAM community has also been a huge help to me. Connecting with other women who have this disease has given me the security that I’m not alone in this fight. I will do my best to bring awareness to this disease. 

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Tags: diagnosis new patient
Categories: Patient Profiles

Drawing a Circle of Hope

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A resource offered by The LAM Foundation, the Circle of Hope Transplant Support Program was established in 2018. The program connects LAM patients who are considering lung transplantation with those who have undergone the procedure, as well as with experts in the field.

Program Coordinator Sharlene Dunn shares her own journey to transplantation, the story behind the Circle of Hope, and the many inspirations she has found along the way. 

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Tags: Circle of Hope Lung Transplant support group
Categories: Educational Resources Patient Profiles

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