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Articles for tag LAMposium DC

LAMposium DC or LAMposium LA…or Both!

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Can't decide whether to attend LAMposium DC, LAMposium LA or both? Keep reading to learn about highlights for each conference and more information to help you make your decision.

Tags: LAMposium DC LAMposium LA
Categories: Events

What I Learned on Capitol Hill

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I learned a lot of great lessons during my time ‘on the Hill’. I learned that my congressional representatives want to hear from their constituents about what matters to them. I learned that even though they may not understand what LAM is, they want to learn and want to help. And I learned that if you are visiting your representatives on the Hill, you should DEFINITELY wear comfortable shoes.

Tags: LAM Day on Capitol Hill LAMposium DC
Categories: Events

LAM & TSC Patient-Focused Drug Development Meeting with the FDA

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The TS Alliance, in partnership with The LAM Foundation, is sponsoring a Patient-Focused Drug Development Meeting (PFDD) with the FDA on June 21, 2017, at the Hyatt Regency on Capitol Hill in Washington, DC, from 8:30 a.m. to 4:30 p.m. The purpose of this meeting is for individuals affected by LAM and TSC and caregivers of dependent adults or children to communicate their perspectives on living with LAM and TSC to the FDA. This meeting is free and open to the public, and it will be webcast live online. We hope you will REGISTER and make plans to attend in person or online.

Tags: LAMposium DC PFDD
Categories: Events