Articles for tag LAMposium DC LAMposium DC or LAMposium LA…or Both! Posted on March 27, 2017 | Author: Anne McKenna - Community Manager Can't decide whether to attend LAMposium DC, LAMposium LA or both? Keep reading to learn about highlights for each conference and more information to help you make your decision. Read More Topics: LAMposium DC LAMposium LA Categories: Events What I Learned on Capitol Hill Posted on March 24, 2017 | Author: Anne McKenna - Community Manager I learned a lot of great lessons during my time ‘on the Hill’. I learned that my congressional representatives want to hear from their constituents about what matters to them. I learned that even though they may not understand what LAM is, they want to learn and want to help. And I learned that if you are visiting your representatives on the Hill, you should DEFINITELY wear comfortable shoes. Read More Topics: LAM Day on Capitol Hill LAMposium DC Categories: Events LAM & TSC Patient-Focused Drug Development Meeting with the FDA Posted on March 24, 2017 | Author: Anne McKenna - Community Manager The TS Alliance, in partnership with The LAM Foundation, is sponsoring a Patient-Focused Drug Development Meeting (PFDD) with the FDA on June 21, 2017, at the Hyatt Regency on Capitol Hill in Washington, DC, from 8:30 a.m. to 4:30 p.m. The purpose of this meeting is for individuals affected by LAM and TSC and caregivers of dependent adults or children to communicate their perspectives on living with LAM and TSC to the FDA. This meeting is free and open to the public, and it will be webcast live online. We hope you will REGISTER and make plans to attend in person or online. Read More Topics: LAMposium DC PFDD Categories: Events
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