This letter is an invitation to participate in a research survey. The purpose of the research is to answer important questions about medication use and quality of life in LAM patients who are considering or who have undergone lung transplantation.
Facilitating and funding research has always been the core mission of The LAM Foundation. In this regard, we have achieved exceptional results as a rare disease organization and a united community.
This is possible when each of us 1) identifies what we can do and 2) TAKES ACTION. Together we can stimulate new ideas, unleash new funding and deliver a cure for LAM.