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Ronni Berke

Ronni Berkereceived the badge Getting started

Earned the Getting started badge!
The LAM Foundation  StaffDustin PetersonSue Sherman, Executive Director & CEOand 1602 others also received the badge The LAM Foundation  Staffand 1604 others also received the badge

3 months ago

Anonymous

Anonymous created the event Million Dollar Bike Ride

<h2><strong>The 8<sup>th</sup> Annual Million Dollar Bike Ride</strong></h2>

<p>Join Team Easy Breathers for the 8th Annual Million Dollar Bike Ride. They need <strong>YOUR HELP</strong> to reach their goal of $30,000. Every dollar raised by the LAM community, up to this amount, will be matched <strong>DOLLAR-FOR-DOLLAR, </strong>with 100% of the proceeds funding LAM research.  Help us reach a full match by donating <a href="https://tinyurl.com/MDBREasyBreathers" target="_blank"><strong>here.</strong></a> <br />
<br />
It’s not too late to join our team! Whether you’re cranking out the miles on your stationary bike or hitting the road, register <a href="https://www.milliondollarbikeride.org/registration" target="_blank">here</a> to help Team Easy Breathers pedal toward a cure for lymphangioleiomyomatosis.<br />
<br />
<a href="https://thelamfoundation.org/Blog/Article/Article/352/A-Million-Ways-to-Participate-in-The-Million-Dollar-Bike-Ride-2021#article"><strong>โ€ฏFor complete event details click here</strong></a><strong>.</strong>  </p>

11 months ago

Anonymous

Anonymous created the event 2021 Fall Grant Process Open

<p><strong>2021 LAM Research Funding Cycle is OPEN!</strong></p>

<p>Scientists who wish to apply for Foundation funding must submit a Letter of Intent (LOI) using our <strong><a href="https://proposalcentral.com/" target="_blank">online application system</a> at ProposalCENTRAL</strong> <strong>by June 15th.</strong><br />
<br />
<strong>Pilot/Feasibility Award </strong>for $50,000 (One Year)<br />
<strong>Established Investigator Award</strong>  $150,000 (Two to Three Years)<br />
<strong>Francis X. McCormack Career Development Award </strong>for $180,000 (Three Years)<br />
<br />
To learn more about The LAM Foundation research awards and find the instructions on how to navigate our new platform <a href="https://www.thelamfoundation.org/Investigators/Grants/Grant-Opportunities" target="_blank"><strong>CLICK HERE</strong></a>.</p>

<p><a href="http://proposalcentral.com/" target="_blank">APPLY TODAY</a></p>

<p><em><strong>Please send your questions to:</strong></em> Judy Sheridan at <a href="mailto:jsheridan@thelamfoundation.org" target="_blank">jsheridan@thelamfoundation.org</a>.</p>

1 year ago

Anonymous

Anonymous created the event Regions 2, 3, & 4 Virtual Social Gathering

<h3><strong>Regions 2, 3, & 4 Virtual Social Gathering</strong></h3>

<p><strong>When:</strong> Saturday, May 22 at 10:00 AM ET</p>

<p><strong>Where: </strong>Zoom</p>

<p><em><strong>Please send your questions to:</strong> </em>Sarah Poitras, Region 3 Co-liaison, at <a href="mailto:sarahpoitras@gmail.com">sarahpoitras@gmail.com</a> or Jessica Barcellona, Region 3 Co-liaison, at <a href="mailto:jessicabarcellona4@gmail.com">jessicabarcellona4@gmail.com</a>.</p>

1 year ago

Anonymous

Anonymous created the event Circle of Hope Virtual Social Gathering

<h3><strong>Circle of Hope Virtual Social Gathering </strong></h3>

<p>This session will include two parts:</p>

<ul>
<li>Q&A with our COH medical director, Dr. Daniel Dilling, who will discuss what we know so far about the COVID-19 vaccine in solid organ transplant recipients</li>
<li>Group discussion—a chance for us to connect with and check in on one another</li>
</ul>

<p><b>When: </b><strong>Sunday, May 23, 2021 / 5:00 p.m. ET</strong></p>

<p>If you have a specific question for Dr. Dilling and/or a topic you would like addressed in the group discussion, please send it to Sharlene Dunn at <a href="mailto:sdunn@thelamfoundation.org">sdunn@thelamfoundation.org</a>. </p>

1 year ago

Anonymous

Anonymous created the event Virtual Region 12 and Canada Educational Meeting

<p><strong>What: </strong>Virtual Region 12 and Canada Educational Meeting </p>

<p><strong>When: </strong>May 1, 2021, at 11:00 AM ET </p>

<p><strong>Where:</strong> Zoom </p>

<p><em><strong>Please send your questions to:</strong> Sharon Hovland, Region 12 LAM Liaison at <a href="mailto:sharonhovland@gmail.com">sharonhovland@gmail.com</a></em></p>

1 year ago

Anonymous

Anonymous created the event TSC/LAM Virtual Town Hall: COVID Vaccine Update

<p>The LAM Foundation has partnered with the <a href="https://www.tsalliance.org/" target="_blank">Tuberous Sclerosis Alliance</a> to host a Virtual COVID Vaccine Update Town Hall on <span style="color:#ec098d;"><strong>Tuesday, April 20 at 6:00 PM ET| 3:00 PM PT</strong>.</span></p>

<p>Peter Crino, MD, PhD of the University of Maryland Medical Center and Nishant Gupta, MD of the University of Cincinnati Medical Center will provide updates on the current COVID-19 vaccines in the TSC and LAM communities. Following the presentation, there will be time for viewers to ask questions.</p>

<p rel="text-align: center;"><a align="center" class="btn btn-primary" href="https://youtu.be/BWWj-uhNYSE" style="margin-left:auto;margin-right:auto; background-color:#ec098d; border:5px solid #ec098d; border-radius:5px; text-align:center;">WATCH NOW</a></p>

1 year ago

Anonymous

Anonymous created the event LAMposium in Your Living Room

<div class="AwardsWrap">
<div class="ARight">
<div class="Bio">
<h3 class="card-text" style="text-align: center;"><img alt="" src="/portals/0/Sue%20Sherman%2C%20Chief%20Executive%20Officer%20.jpg" style="height: 244px; width: 244px;" title="" />                    <img alt="" src="/portals/0/Judy%20Sheridan%20-%20Grants%20and%20Reserach%20Manager%20-%20photo%202021.jpg" style="width: 270px; height: 244px;" title="" />                      <img alt="" src="/portals/0/Molly%20Long%20-%20Vice%20President%2C%20Development%20%26%20Communications%20-%202021.jpg" style="width: 195px; height: 244px;" title="" /></h3>

<h3 class="card-text">                          <strong><span style="color:#ec098d;">Sue Sherman                                               Judy Sheridan                                               Molly Long</span></strong></h3>

<h3 paraeid="{e1989fa1-7078-4360-823a-7b809971200e}{110}" paraid="658008946"><st

1 year ago

Anonymous

Anonymous created the event TSC Research Symposium 2020

<h3 data-fontsize="22" data-lineheight="26.4px">The Tuberous Sclerosis Association, TS Alliance, and The LAM Foundation have come together to proudly organize the TSC Research Symposium 2020!</h3>

<p>The TSC Research Symposium 2020, taking place <strong>November Friday 13, 2020, 15:00 – 18:00 GMT via Zoom</strong>, is an important half-day professional research event focused on emerging research around TSC and COVID-19.</p>

<p>For more information visit here: https://tuberous-sclerosis.org/for-professionals/research-symposium-2020/</p>

1 year ago

Anonymous

Anonymous created the event Circle of Hope Webinar & Group Discussion

<h3 align="center"><strong>CIRCLE OF HOPE WEBINAR & GROUP DISCUSSION</strong></h3>

<h3 align="center">WEDNESDAY, NOV 18 – 7:00 PM ET</h3>

<p align="center">Lung Transplantation in the time of COVID: What has changed? What has remained the same? by Dan Dilling, MD</p>

<p align="center"><em>The registration link will be available soon. </em></p>

1 year ago

Kathi

Kathi answered the question Is there can I find an information source to provide medical guidelines regarding vaccines?

Hello - fellow LAMmie here - I believe the live virus is not good for us. I am on rapamune.
Sue S. also answered the question Sue S. also answered the question

1 year ago

D. Wiley

D. Wileyasked the question: Is there can I find an information source to provide medical guidelines regarding vaccines?

Is there can I find an information source to provide medical guidelines regarding vaccines..... live virus versus recombinant?

1 year ago

Anonymous

Anonymous created the event LAMposium In Your Living Room

<h3><span style="color:#ec098d;"><strong>CHARLIE STRANGE, MD</strong></span></h3>

<p paraeid="{e1989fa1-7078-4360-823a-7b809971200e}{110}" paraid="658008946">October 7, 2020 | 7:00 PM EST | 4:00 PST</p>

<p paraeid="{e1989fa1-7078-4360-823a-7b809971200e}{110}" paraid="658008946"><strong>From Biopsies to Pleurodesis: Understanding Surgical Interventions for LAM</strong></p>

<p paraeid="{e1989fa1-7078-4360-823a-7b809971200e}{61}" paraid="757103437">Dr. Strange, LAM Clinic Director at the Medical University at South Carolina, will discuss what is often a patient’s introduction to LAM—pneumothorax. This informative session will also explore other surgical interventions, such as pleurodesis, angioleiomyoma resection, and lung transplantation. We will also discuss opportunities to avoid surgery unless necessary.</p>

<p paraeid="{e1989fa1-7078-4360-823a-7b809971200e}{61}" paraid="757103437"><a href="https://us02web.zoom.us/meeting/register/tZMlf-6opzIjGdTdyQ92117e5Lm5Nm1-AXXe?fbclid=IwAR3ThAsCYej02rdIwmjMIOKq2H0qBnHCohj-7hu07ywsbjBQsZTC-sQVUxo" target="_blank">REGISTER HERE</a></p>

1 year ago

Marisol

Marisol

Hi does anyone recorded this conference? or is there any link or document with the info discuss?


Track 2 (LAM): Pregnancy and Delivery in Women with LAM
Speaker: Joseph Barney, MD, LAM Clinic Director, University of Alabama
at Birmingham



thanks 

1 year ago

  • AnonymousThank you for the question, Marisol.  
    Yes - this session was recorded. After the session ends, the recording is edited and then posted. The LAM Foundation will notify when the link to view is posted. This takes about 5 days to complete. So be looking for an email or Face Book post (on The LAM Foundation's page) when it is available. I will also note your inquiry to let you know when it is available.    Mary Sue  Patient Services Manager1 year ago
Molly Long

Molly Long created the event Laps for LAM Virtual Walk

<p>12th Annual Lap for LAM has gone virtual! </p>

<p><a href="https://give.thelamfoundation.org/event/virtual-laps-for-lam/e298290">https://give.thelamfoundation.org/event/virtual-laps-for-lam/e298290</a></p>

1 year ago

CTidwell

CTidwell

๐Ÿ˜Ž

1 year ago

Anonymous

Anonymous created the event TS Alliance - Comedy For A Cure

<h2><strong>Fall Virtual Edition | October 18, 2020 </strong></h2>

<h3><span style="color:#ec098d;"><strong>8 PM ET | 7 PM CT | 6 PM MT | 5 PM PT</strong></span></h3>

<p>Read more details at <a href="https://tsalliance.schoolauction.net/comedy2020/">https://tsalliance.schoolauction.net/comedy2020/</a></p>

1 year ago

Anonymous

Anonymous created the event Early Stage Investigator Symposium

<h3><strong><em>This event is designed for Early Stage Investigators </em></strong></h3>

<p>In 2015, a small group of young TSC researchers from the UK organized a meeting, just prior to the TSC International Conference in Windsor, specifically geared toward young investigators working in TSC and LAM. The idea was to provide an opportunity for young scientists working on TSC and LAM to present their work in an informal environment, connect with colleagues from all over the world, and build new collaborations to promote the future of TSC research.</p>

<p>Building upon the success of the Early-Stage TSC Researcher Meeting in 2019, The LAM Foundation announces the addition of the Early Stage Investigator Symposium to our research conference in 2020.  We are now presenting this opportunity virtually due to global and environmental circumstances. </p>

<h3><strong>Join us virtually on October 8, 2020 </strong></h3>

<h4><span style="color:#ec098d;"><b>October 8 | 11:00 AM - 1:30 PM </b></span></h4>

<p>The LAM Foundation believes in the new generation of researchers in the TSC and LAM field, and the Early Stage Investigator Symposium is a tremendous opportunity to inspire young, brilliant scientists to continue working in TSC and LAM. We look forward to working with you! </p>

<p><strong>A link to the agenda and registration will be available soon. </strong></p>

1 year ago

Anonymous

Anonymous created the event Early Stage Investigator Symposium

<h3><strong>Join us virtually on September 22 and October 8, 2020 </strong></h3>

<h4><span style="color:#ec098d;"><b>September 22 | 11:00 AM - 1:30 PM </b></span></h4>

<p>The LAM Foundation believes in the new generation of researchers in the TSC and LAM field, and the Early Stage Investigator Symposium is a tremendous opportunity to inspire young, brilliant scientists to continue working in TSC and LAM. We look forward to working with you! </p>

<p><strong>A link to the agenda and registration will be available soon. </strong></p>

1 year ago

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