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Nishant Gupta, MD, LAM Scientific Director

Nishant Gupta, MD, LAM Scientific Directorreceived the badge Getting started

Earned the Getting started badge!
Robert  Kotloff, MD, LAM Clinic DirectorSharlene Dunn, Patient and Clinical Programs DirectorSharon Youngand 1592 others also received the badge Robert  Kotloff, MD, LAM Clinic Directorand 1594 others also received the badge

4 days ago

Anonymous

Anonymous created the event Worldwide LAM Awareness Month

<p>Enter event description</p>

1 week ago

Anonymous

Anonymous created the event 2021 Fall Grant Process Open

<p><strong>2021 LAM Research Funding Cycle is OPEN!</strong></p>

<p>Scientists who wish to apply for Foundation funding must submit a Letter of Intent (LOI) using our <strong><a href="https://proposalcentral.com/" target="_blank">online application system</a> at ProposalCENTRAL</strong> <strong>by June 15th.</strong><br />
<br />
<strong>Pilot/Feasibility Award </strong>for $50,000 (One Year)<br />
<strong>Established Investigator Award</strong>  $150,000 (Two to Three Years)<br />
<strong>Francis X. McCormack Career Development Award </strong>for $180,000 (Three Years)<br />
<br />
To learn more about The LAM Foundation research awards and find the instructions on how to navigate our new platform <a href="https://www.thelamfoundation.org/Investigators/Grants/Grant-Opportunities" target="_blank"><strong>CLICK HERE</strong></a>.</p>

<p><a href="http://proposalcentral.com/" target="_blank">APPLY TODAY</a></p>

<p><em><strong>Please send your questions to:</strong></em> Judy Sheridan at <a href="mailto:jsheridan@thelamfoundation.org" target="_blank">jsheridan@thelamfoundation.org</a>.</p>

1 week ago

Anonymous

Anonymous created the event Public Advisory Roundtable Meet The Experts Forum

<p><strong>American Thoracic Society Public Advisory Roundtable Meet The Experts Forum</strong></p>

<p>Join our friends at the American Thoracic Society Public Advisory Roundtable for a Meet The Experts Forum on "Going Virtual with Patients and Families" on <strong>Saturday, May 15 at 10:00 AM EDT.</strong></p>

<p>Following the panel discussion, there will be an informal breakout room on TSC & LAM with Nishant Gupta, MD, Assistant Professor of Medicine, and the Director of the Interstitial Lung Diseases Center at Cincinnati Children's Hospital Medical Center.</p>

<p>Register by Friday, May 7: <a href="https://l.facebook.com/l.php?u=http%3A%2F%2Fow.ly%2FOriK50E57PG%3Ffbclid%3DIwAR0AHyWSUjvAymCTaziSD0EZF1Ag3el61Yr6wNRkz0_KuTv7A6v3teE2cEk&h=AT21giK3rel9pWwdTHy0ncs1tY_A2B6ec3pmIxw9IVpmr1zXKUafcKDL1eMkEVhkMREu49fam_MaO9dUBz11_xMNS6C91o2-EUiREWR1Rh4XjCLJ02Ayj8Rge0TTBqrUc6Kq&__tn__=-UK-R&c[0]=AT2DxalKLMo916dfMAI8uvMHcgAqwBndagSyV3O74whs_TxneV-fM01NA3mVtnwlQF6_DiJEXRixTCmSO9_Sc95PiV9w8EAGTtI5W1RMEF41naF7TJtSTJqKUqPTo2t9PPk5D3rk2MiLEK3JaN-D9jxgCe3O709RSpj1FvuADfnjHfE2xY-WlbNS33dHjM8eEbgs-8s" rel="nofollow noopener" role="link" tabindex="0" target="_blank">http://ow.ly/OriK50E57PG</a></p>

1 week ago

Anonymous

Anonymous created the event Regions 2, 3, & 4 Virtual Social Gathering

<h3><strong>Regions 2, 3, & 4 Virtual Social Gathering</strong></h3>

<p><strong>When:</strong> Saturday, May 22 at 10:00 AM ET</p>

<p><strong>Where: </strong>Zoom</p>

<p><em><strong>Please send your questions to:</strong> </em>Sarah Poitras, Region 3 Co-liaison, at <a href="mailto:sarahpoitras@gmail.com">sarahpoitras@gmail.com</a> or Jessica Barcellona, Region 3 Co-liaison, at <a href="mailto:jessicabarcellona4@gmail.com">jessicabarcellona4@gmail.com</a>.</p>

1 week ago

Anonymous

Anonymous created the event Circle of Hope Virtual Social Gathering

<h3><strong>Circle of Hope Virtual Social Gathering </strong></h3>

<p>This session will include two parts:</p>

<ul>
<li>Q&A with our COH medical director, Dr. Daniel Dilling, who will discuss what we know so far about the COVID-19 vaccine in solid organ transplant recipients</li>
<li>Group discussion—a chance for us to connect with and check in on one another</li>
</ul>

<p><b>When: </b><strong>Sunday, May 23, 2021 / 5:00 p.m. ET</strong></p>

<p>If you have a specific question for Dr. Dilling and/or a topic you would like addressed in the group discussion, please send it to Sharlene Dunn at <a href="mailto:sdunn@thelamfoundation.org">sdunn@thelamfoundation.org</a>. </p>

1 week ago

Anonymous

Anonymous created the event Region 6 Virtual Social Gathering

<h3><strong>Region 6 Virtual Social Gathering</strong></h3>

<p>When: Sunday, May 23, at 1:30 PM ET</p>

<p>Where: Zoom </p>

<p><em><strong>Please send your questions to:</strong> Susie Picart Region 6 LAM Liaison at </em><a href="mailto:jpicart788@aol.com">jpicart788@aol.com</a>. </p>

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1 week ago

Anonymous

Anonymous created the event Region 5 Virtual Social Gathering

<h3><strong>Region 5 Virtual Social Gathering</strong></h3>

<p><strong>When: </strong>Friday, May 21 at 7:00 PM ET</p>

<p><strong>Where: </strong>Zoom </p>

<p><em><strong>Please send your questions to:</strong> Mary Stojic, Region 5 LAM Liaison at </em><a href="mailto:mstojic@msn.com">mstojic@msn.com</a></p>

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1 week ago

Anonymous

Anonymous created the event Virtual Region 12 and Canada Educational Meeting

<p><strong>What: </strong>Virtual Region 12 and Canada Educational Meeting </p>

<p><strong>When: </strong>May 1, 2021, at 11:00 AM ET </p>

<p><strong>Where:</strong> Zoom </p>

<p><em><strong>Please send your questions to:</strong> Sharon Hovland, Region 12 LAM Liaison at <a href="mailto:sharonhovland@gmail.com">sharonhovland@gmail.com</a></em></p>

1 week ago

Anonymous

Anonymous created the event TSC/LAM Virtual Town Hall: COVID Vaccine Update

<p>The LAM Foundation has partnered with the <a href="https://www.tsalliance.org/" target="_blank">Tuberous Sclerosis Alliance</a> to host a Virtual COVID Vaccine Update Town Hall on <span style="color:#ec098d;"><strong>Tuesday, April 20 at 6:00 PM ET| 3:00 PM PT</strong>.</span></p>

<p>Peter Crino, MD, PhD of the University of Maryland Medical Center and Nishant Gupta, MD of the University of Cincinnati Medical Center will provide updates on the current COVID-19 vaccines in the TSC and LAM communities. Following the presentation, there will be time for viewers to ask questions.</p>

<p rel="text-align: center;"><a align="center" class="btn btn-primary" href="https://youtu.be/BWWj-uhNYSE" style="margin-left:auto;margin-right:auto; background-color:#ec098d; border:5px solid #ec098d; border-radius:5px; text-align:center;">WATCH NOW</a></p>

1 week ago

Anonymous

Anonymous created the event LAMposium in Your Living Room

<div class="AwardsWrap">
<div class="ARight">
<div class="Bio">
<h3 class="card-text" style="text-align: center;"><img alt="" src="/portals/0/Sue%20Sherman%2C%20Chief%20Executive%20Officer%20.jpg" style="height: 244px; width: 244px;" title="" />                    <img alt="" src="/portals/0/Judy%20Sheridan%20-%20Grants%20and%20Reserach%20Manager%20-%20photo%202021.jpg" style="width: 270px; height: 244px;" title="" />                      <img alt="" src="/portals/0/Molly%20Long%20-%20Vice%20President%2C%20Development%20%26%20Communications%20-%202021.jpg" style="width: 195px; height: 244px;" title="" /></h3>

<h3 class="card-text">                          <strong><span style="color:#ec098d;">Sue Sherman                                               Judy Sheridan                                               Molly Long</span></strong></h3>

<h3 paraeid="{e1989fa1-7078-4360-823a-7b809971200e}{110}" paraid="658008946"><st

3 months ago

Anonymous

Anonymous created the event Rare Disease Day

<h2>Rare Disease Day - February 28, 2021 </h2>

<p><img alt="" src="/Portals/0/rdd-logo.jpg" style="width: 300px; height: 287px;" title="" /></p>

<p>Rare Disease Day takes place on <strong>the last day of February each year. </strong>The main objective of Rare Disease Day is to <strong>raise awareness</strong> amongst the general public and decision-makers about <strong>rare diseases and their impact on patients' lives</strong>. </p>

<p>The LAM Foundation is raising awareness of what it means to be rare this year for <a href="https://www.instagram.com/explore/tags/rarediseaseday/" tabindex="0">#RareDiseaseDay</a> on February 28, 2021. Lymphangioleiomyomatosis is a rare progressive lung disease that usually strikes women during the prime of their lives. Known as LAM for short, this disease is characterized by an abnormal growth of smooth muscle cells, especially in the lungs, lymphatic system, and kidneys.⁣ ⁣⁣ ⁣<br />
⁣<br />
We invite you to be part of Rare Disease Day by sharing your story with others and sending a message of solidarity. ⁣<br />
⁣<br />
Mark your calendars and click <a href="https://www.rarediseaseday.org/tell-your-story?disease=Lymphangioleiomyomatosis&country=" target="_blank">here</a> to share your rare disease story! </p>

3 months ago

Anonymous

Anonymous created the event Giving Tuesday

6 months ago

Anonymous

Anonymous created the event How to Best Integrate the LAM Clinic Network in Your Care | LAMposium In Your Living Room

<h2 align="center"><strong>LAMPOSIUM IN YOUR LIVING ROOM</strong></h2>

<h3 align="center"><span style="color:#ec098d;"><strong>WEDNESDAY, DEC 2 – 7:00 PM ET</strong></span></h3>

<p align="center">How to Best Integrate the LAM Clinic Network in Your Care by Nishant Gupta, MD</p>

<p align="center"><a href="https://us02web.zoom.us/meeting/register/tZctf--qqT8vHdZcXp7ZByoDHD-QWDbS0bvN">Register here</a></p>

6 months ago

Anonymous

Anonymous created the event TSC Research Symposium 2020

<h3 data-fontsize="22" data-lineheight="26.4px">The Tuberous Sclerosis Association, TS Alliance, and The LAM Foundation have come together to proudly organize the TSC Research Symposium 2020!</h3>

<p>The TSC Research Symposium 2020, taking place <strong>November Friday 13, 2020, 15:00 – 18:00 GMT via Zoom</strong>, is an important half-day professional research event focused on emerging research around TSC and COVID-19.</p>

<p>For more information visit here: https://tuberous-sclerosis.org/for-professionals/research-symposium-2020/</p>

6 months ago

Anonymous

Anonymous created the event Circle of Hope Webinar & Group Discussion

<h3 align="center"><strong>CIRCLE OF HOPE WEBINAR & GROUP DISCUSSION</strong></h3>

<h3 align="center">WEDNESDAY, NOV 18 – 7:00 PM ET</h3>

<p align="center">Lung Transplantation in the time of COVID: What has changed? What has remained the same? by Dan Dilling, MD</p>

<p align="center"><em>The registration link will be available soon. </em></p>

6 months ago

Kathi

Kathi answered the question Is there can I find an information source to provide medical guidelines regarding vaccines?

Hello - fellow LAMmie here - I believe the live virus is not good for us. I am on rapamune.
Sue S. also answered the question Sue S. also answered the question

7 months ago

D. Wiley

D. Wileyasked the question: Is there can I find an information source to provide medical guidelines regarding vaccines?

Is there can I find an information source to provide medical guidelines regarding vaccines..... live virus versus recombinant?

7 months ago

Anonymous

Anonymous created the event LAMposium In Your Living Room

<h3><span style="color:#ec098d;"><strong>CHARLIE STRANGE, MD</strong></span></h3>

<p paraeid="{e1989fa1-7078-4360-823a-7b809971200e}{110}" paraid="658008946">October 7, 2020 | 7:00 PM EST | 4:00 PST</p>

<p paraeid="{e1989fa1-7078-4360-823a-7b809971200e}{110}" paraid="658008946"><strong>From Biopsies to Pleurodesis: Understanding Surgical Interventions for LAM</strong></p>

<p paraeid="{e1989fa1-7078-4360-823a-7b809971200e}{61}" paraid="757103437">Dr. Strange, LAM Clinic Director at the Medical University at South Carolina, will discuss what is often a patient’s introduction to LAM—pneumothorax. This informative session will also explore other surgical interventions, such as pleurodesis, angioleiomyoma resection, and lung transplantation. We will also discuss opportunities to avoid surgery unless necessary.</p>

<p paraeid="{e1989fa1-7078-4360-823a-7b809971200e}{61}" paraid="757103437"><a href="https://us02web.zoom.us/meeting/register/tZMlf-6opzIjGdTdyQ92117e5Lm5Nm1-AXXe?fbclid=IwAR3ThAsCYej02rdIwmjMIOKq2H0qBnHCohj-7hu07ywsbjBQsZTC-sQVUxo" target="_blank">REGISTER HERE</a></p>

7 months ago

Marisol

Marisol

Hi does anyone recorded this conference? or is there any link or document with the info discuss?


Track 2 (LAM): Pregnancy and Delivery in Women with LAM
Speaker: Joseph Barney, MD, LAM Clinic Director, University of Alabama
at Birmingham



thanks 

7 months ago

  • AnonymousThank you for the question, Marisol.  
    Yes - this session was recorded. After the session ends, the recording is edited and then posted. The LAM Foundation will notify when the link to view is posted. This takes about 5 days to complete. So be looking for an email or Face Book post (on The LAM Foundation's page) when it is available. I will also note your inquiry to let you know when it is available.    Mary Sue  Patient Services Manager7 months ago
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