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Sue Sherman, Executive Director & CEO

Sue Sherman, Executive Director & CEOreceived the badge Getting started

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Brenda Esparza SolisBeverly  HoltzmanMaria Jose Salazar 01and 1599 others also received the badge Brenda Esparza Solisand 1601 others also received the badge

5 days ago

Anonymous

Anonymous created the event 2021 LAM Research Virtual Conference

<center>
<h1><img alt="" src="/portals/0/FINAL%20CONFERENCE%20LOGO%20August%2020%2C%202021-02.png" style="width: 100%; height: auto;" title="" /></h1>
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<center>
<p style="text-align: left;">This workshop will highlight the recent advances in our understanding of the pathobiology of lymphangioleiomyomatosis (LAM) by using single cell RNA-sequencing. Following the presentations, there will be an open discussion aimed at synthesizing the combined knowledge from each unique investigation and devising strategies to address the key unanswered questions in LAM. Please join us on <strong>Friday, August 20, 2021, at 11:00 AM ET (3:00 PM GMT). </strong></p>
</center>

<h2 rel="text-align: left;" style="text-align: left;"><strong>Chair:</strong>  </h2>

<h2 style="text-align: left; margin-left: 40px;"><img alt="" src="/portals/0/Scott%20Square.png" style="width: 125px; height: 125px;" title="" /></h2>

<p style="text-align: left; margin-left: 40px;"><strong>Scott Budinger, MD</strong><br />
Chief of Pulmonary and Critical Care in the Department of Medicine<br />
Ernest S. Bazley Professor of Airway Diseases<br />
Professor of Medicine (Pulmonary and Critical Care) and Cell and Molecular Biology<br />
Northwestern University Feinberg School of Medicine</p>

<h2 rel="text-align: left;" style="text-align: left;"><strong>Speakers:</strong>  </h2>

<p style="text-align: left; margin-left: 40px;"><img alt="" src="/portals/0/Nishant%20Square.png" style="width: 125px; height: 125p ...

1 month ago

Anonymous

Anonymous created the event Virtual Region 9 & 11 Educational Meeting

<h3><strong>Virtual Region 9 and 11 Educational Meeting </strong></h3>

<p><strong>When: </strong>June 23, 2021, at 6:30 PM ET </p>

<p><strong>Where:</strong> Zoom </p>

<p><em><strong>Please send your questions to:</strong> Kristin Kerwin, Region 9 LAM Liaison at </em><em>kerwink@ohio.edu</em></p>

1 month ago

Anonymous

Anonymous created the event LAM Action Virtual Meeting 2021

<h2 lang="EN-US" paraeid="{437f68f0-717e-4fb4-8ef0-94a6ade5249b}{183}" paraid="1597808354" xml:lang="EN-US"><strong>LAM Action Virtual Meeting 2021</strong></h2>

<p lang="EN-US" paraeid="{437f68f0-717e-4fb4-8ef0-94a6ade5249b}{183}" paraid="1597808354" xml:lang="EN-US">Our friends at <a href="http://lamaction.org/lam-action-virtual-meeting-2021/" target="_blank"><strong>LAM Action </strong></a>are hosting their 2021 annual meeting on June 12, 2021 as usual, but will take place online. Their agenda includes a presentation on "LAM Basics" by Professor Simon Johnson, updates on research and patient support, a presentation by Dr. Nishant Gupta, the Scientific Director of The LAM Foundation, and a celebration of the UK LAM Centre's achievements as it reaches its 10th birthday. </p>

<p lang="EN-US" paraeid="{437f68f0-717e-4fb4-8ef0-94a6ade5249b}{197}" paraid="1694471089" xml:lang="EN-US">For more information on the agenda and how to participate, please see the LAM Action website at <a href="https://nam04.safelinks.protection.outlook.com/?url=http%3A%2F%2Flamaction.org%2Flam-action-virtual-meeting-2021%2F&data=04%7C01%7Cccurrie%40thelamfoundation.org%7C02d66131365d47d21c1808d9245dbffb%7C83e17b56df4848b79bcb7c821fe3e215%7C0%7C0%7C637580807344414921%7CUnknown%7CTWFpbGZsb3d8eyJWIjoiMC4wLjAwMDAiLCJQIjoiV2luMzIiLCJBTiI6Ik1haWwiLCJXVCI6Mn0%3D%7C1000&sdata=0unEeVs%2F48u%2FI6DJgjQR3DBKQgF1eRR%2B4rOps0juZf8%3D&reserved=0" rel="noreferrer noopener" target="_blank">http://lamactio

2 months ago

Anonymous

Anonymous created the event Million Dollar Bike Ride

<h2><strong>The 8<sup>th</sup> Annual Million Dollar Bike Ride</strong></h2>

<p>Join Team Easy Breathers for the 8th Annual Million Dollar Bike Ride. They need <strong>YOUR HELP</strong> to reach their goal of $30,000. Every dollar raised by the LAM community, up to this amount, will be matched <strong>DOLLAR-FOR-DOLLAR, </strong>with 100% of the proceeds funding LAM research.  Help us reach a full match by donating <a href="https://tinyurl.com/MDBREasyBreathers" target="_blank"><strong>here.</strong></a> <br />
<br />
It’s not too late to join our team! Whether you’re cranking out the miles on your stationary bike or hitting the road, register <a href="https://www.milliondollarbikeride.org/registration" target="_blank">here</a> to help Team Easy Breathers pedal toward a cure for lymphangioleiomyomatosis.<br />
<br />
<a href="https://thelamfoundation.org/Blog/Article/Article/352/A-Million-Ways-to-Participate-in-The-Million-Dollar-Bike-Ride-2021#article"><strong> For complete event details click here</strong></a><strong>.</strong>  </p>

2 months ago

Anonymous

Anonymous created the event On The LAM 5K

<p>This year, Shea Geyer is hosting her <strong>On The LAM 5K</strong> as a virtual event in honor of Worldwide LAM Awareness Month (WWLAM). Shea’s mother started this event during WWLAM 2019, after Shea was diagnosed with LAM in the fall of 2018. You can support The LAM Foundation from wherever you are and at whatever time fits your schedule during the weekend of <strong>June 26 – 27, 2021.</strong></p>

<p>Additionally, Shea’s event has been LAMplified. What does this mean? It means, if the $10,000 fundraising goal is achieved, it will be matched dollar-for-dollar by a generous donor, doubling the impact for a total of $20,000 raised!<br />
For more information, <a href="https://give.thelamfoundation.org/event/on-the-lam-2021/e335397" target="_blank">visit the event page and sign up today.</a><br />
<br />
To start your own online fundraiser during WWLAM, please visit <a href="http://www.thelamfoundation.org/wwlam">www.thelamfoundation.org/wwlam</a><a href="https://give.thelamfoundation.org/campaign/worldwide-lam-awareness-month-2021/c339630" target="_blank"> </a>or contact <a href="mailto:info@thelamfoundation.org">info@thelamfoundation.org</a>.</p>

2 months ago

Anonymous

Anonymous created the event LAMposium in Your Living Room

<h3 style="text-align: center;">June 2, 2021 | 7:00 PM ET | 4:00 PM PT</h3>

<h3 style="text-align: center;"><span style="color:#ec098d;"><strong>SUSAN JACOBS, MS, RN, FAAN</strong></span></h3>

<h4 style="text-align: center;"><strong>Supplemental Oxygen: Understanding and Optimizing Resources and Systems to Fit Your Needs </strong></h4>

<p style="text-align: center;">This presentation will provide an overview of oxygen basics, assessing the need for oxygen, what to expect from your provider, integrating oxygen into your fitness routine, and future trends in oxygen reimbursement and access.</p>

<p style="text-align: center;">This session will also highlight the patient experience and offer a demonstration and review of various oxygen systems. A group discussion will follow the presentations.</p>

<p style="text-align: center;">You will have an opportunity to ask questions during this educational session. You may also submit questions ahead of time to <a href="mailto:patientservices@thelamfoundation.org">patientservices@thelamfoundation.org</a>.</p>

2 months ago

Anonymous

Anonymous created the event Worldwide LAM Awareness Month

<p>Enter event description</p>

3 months ago

Anonymous

Anonymous created the event 2021 Fall Grant Process Open

<p><strong>2021 LAM Research Funding Cycle is OPEN!</strong></p>

<p>Scientists who wish to apply for Foundation funding must submit a Letter of Intent (LOI) using our <strong><a href="https://proposalcentral.com/" target="_blank">online application system</a> at ProposalCENTRAL</strong> <strong>by June 15th.</strong><br />
<br />
<strong>Pilot/Feasibility Award </strong>for $50,000 (One Year)<br />
<strong>Established Investigator Award</strong>  $150,000 (Two to Three Years)<br />
<strong>Francis X. McCormack Career Development Award </strong>for $180,000 (Three Years)<br />
<br />
To learn more about The LAM Foundation research awards and find the instructions on how to navigate our new platform <a href="https://www.thelamfoundation.org/Investigators/Grants/Grant-Opportunities" target="_blank"><strong>CLICK HERE</strong></a>.</p>

<p><a href="http://proposalcentral.com/" target="_blank">APPLY TODAY</a></p>

<p><em><strong>Please send your questions to:</strong></em> Judy Sheridan at <a href="mailto:jsheridan@thelamfoundation.org" target="_blank">jsheridan@thelamfoundation.org</a>.</p>

3 months ago

Anonymous

Anonymous created the event Public Advisory Roundtable Meet The Experts Forum

<p><strong>American Thoracic Society Public Advisory Roundtable Meet The Experts Forum</strong></p>

<p>Join our friends at the American Thoracic Society Public Advisory Roundtable for a Meet The Experts Forum on "Going Virtual with Patients and Families" on <strong>Saturday, May 15 at 10:00 AM EDT.</strong></p>

<p>Following the panel discussion, there will be an informal breakout room on TSC & LAM with Nishant Gupta, MD, Assistant Professor of Medicine, and the Director of the Interstitial Lung Diseases Center at Cincinnati Children's Hospital Medical Center.</p>

<p>Register by Friday, May 7: <a href="https://l.facebook.com/l.php?u=http%3A%2F%2Fow.ly%2FOriK50E57PG%3Ffbclid%3DIwAR0AHyWSUjvAymCTaziSD0EZF1Ag3el61Yr6wNRkz0_KuTv7A6v3teE2cEk&h=AT21giK3rel9pWwdTHy0ncs1tY_A2B6ec3pmIxw9IVpmr1zXKUafcKDL1eMkEVhkMREu49fam_MaO9dUBz11_xMNS6C91o2-EUiREWR1Rh4XjCLJ02Ayj8Rge0TTBqrUc6Kq&__tn__=-UK-R&c[0]=AT2DxalKLMo916dfMAI8uvMHcgAqwBndagSyV3O74whs_TxneV-fM01NA3mVtnwlQF6_DiJEXRixTCmSO9_Sc95PiV9w8EAGTtI5W1RMEF41naF7TJtSTJqKUqPTo2t9PPk5D3rk2MiLEK3JaN-D9jxgCe3O709RSpj1FvuADfnjHfE2xY-WlbNS33dHjM8eEbgs-8s" rel="nofollow noopener" role="link" tabindex="0" target="_blank">http://ow.ly/OriK50E57PG</a></p>

3 months ago

Anonymous

Anonymous created the event Regions 2, 3, & 4 Virtual Social Gathering

<h3><strong>Regions 2, 3, & 4 Virtual Social Gathering</strong></h3>

<p><strong>When:</strong> Saturday, May 22 at 10:00 AM ET</p>

<p><strong>Where: </strong>Zoom</p>

<p><em><strong>Please send your questions to:</strong> </em>Sarah Poitras, Region 3 Co-liaison, at <a href="mailto:sarahpoitras@gmail.com">sarahpoitras@gmail.com</a> or Jessica Barcellona, Region 3 Co-liaison, at <a href="mailto:jessicabarcellona4@gmail.com">jessicabarcellona4@gmail.com</a>.</p>

3 months ago

Anonymous

Anonymous created the event Circle of Hope Virtual Social Gathering

<h3><strong>Circle of Hope Virtual Social Gathering </strong></h3>

<p>This session will include two parts:</p>

<ul>
<li>Q&A with our COH medical director, Dr. Daniel Dilling, who will discuss what we know so far about the COVID-19 vaccine in solid organ transplant recipients</li>
<li>Group discussion—a chance for us to connect with and check in on one another</li>
</ul>

<p><b>When: </b><strong>Sunday, May 23, 2021 / 5:00 p.m. ET</strong></p>

<p>If you have a specific question for Dr. Dilling and/or a topic you would like addressed in the group discussion, please send it to Sharlene Dunn at <a href="mailto:sdunn@thelamfoundation.org">sdunn@thelamfoundation.org</a>. </p>

3 months ago

Anonymous

Anonymous created the event Region 6 Virtual Social Gathering

<h3><strong>Region 6 Virtual Social Gathering</strong></h3>

<p>When: Sunday, May 23, at 1:30 PM ET</p>

<p>Where: Zoom </p>

<p><em><strong>Please send your questions to:</strong> Susie Picart Region 6 LAM Liaison at </em><a href="mailto:jpicart788@aol.com">jpicart788@aol.com</a>. </p>

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3 months ago

Anonymous

Anonymous created the event Region 5 Virtual Social Gathering

<h3><strong>Region 5 Virtual Social Gathering</strong></h3>

<p><strong>When: </strong>Friday, May 21 at 7:00 PM ET</p>

<p><strong>Where: </strong>Zoom </p>

<p><em><strong>Please send your questions to:</strong> Mary Stojic, Region 5 LAM Liaison at </em><a href="mailto:mstojic@msn.com">mstojic@msn.com</a></p>

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3 months ago

Anonymous

Anonymous created the event Virtual Region 12 and Canada Educational Meeting

<p><strong>What: </strong>Virtual Region 12 and Canada Educational Meeting </p>

<p><strong>When: </strong>May 1, 2021, at 11:00 AM ET </p>

<p><strong>Where:</strong> Zoom </p>

<p><em><strong>Please send your questions to:</strong> Sharon Hovland, Region 12 LAM Liaison at <a href="mailto:sharonhovland@gmail.com">sharonhovland@gmail.com</a></em></p>

3 months ago

Anonymous

Anonymous created the event TSC/LAM Virtual Town Hall: COVID Vaccine Update

<p>The LAM Foundation has partnered with the <a href="https://www.tsalliance.org/" target="_blank">Tuberous Sclerosis Alliance</a> to host a Virtual COVID Vaccine Update Town Hall on <span style="color:#ec098d;"><strong>Tuesday, April 20 at 6:00 PM ET| 3:00 PM PT</strong>.</span></p>

<p>Peter Crino, MD, PhD of the University of Maryland Medical Center and Nishant Gupta, MD of the University of Cincinnati Medical Center will provide updates on the current COVID-19 vaccines in the TSC and LAM communities. Following the presentation, there will be time for viewers to ask questions.</p>

<p rel="text-align: center;"><a align="center" class="btn btn-primary" href="https://youtu.be/BWWj-uhNYSE" style="margin-left:auto;margin-right:auto; background-color:#ec098d; border:5px solid #ec098d; border-radius:5px; text-align:center;">WATCH NOW</a></p>

3 months ago

Anonymous

Anonymous created the event LAMposium in Your Living Room

<div class="AwardsWrap">
<div class="ARight">
<div class="Bio">
<h3 class="card-text" style="text-align: center;"><img alt="" src="/portals/0/Sue%20Sherman%2C%20Chief%20Executive%20Officer%20.jpg" style="height: 244px; width: 244px;" title="" />                    <img alt="" src="/portals/0/Judy%20Sheridan%20-%20Grants%20and%20Reserach%20Manager%20-%20photo%202021.jpg" style="width: 270px; height: 244px;" title="" />                      <img alt="" src="/portals/0/Molly%20Long%20-%20Vice%20President%2C%20Development%20%26%20Communications%20-%202021.jpg" style="width: 195px; height: 244px;" title="" /></h3>

<h3 class="card-text">                          <strong><span style="color:#ec098d;">Sue Sherman                                               Judy Sheridan                                               Molly Long</span></strong></h3>

<h3 paraeid="{e1989fa1-7078-4360-823a-7b809971200e}{110}" paraid="658008946"><st

6 months ago

Anonymous

Anonymous created the event Rare Disease Day

<h2>Rare Disease Day - February 28, 2021 </h2>

<p><img alt="" src="/Portals/0/rdd-logo.jpg" style="width: 300px; height: 287px;" title="" /></p>

<p>Rare Disease Day takes place on <strong>the last day of February each year. </strong>The main objective of Rare Disease Day is to <strong>raise awareness</strong> amongst the general public and decision-makers about <strong>rare diseases and their impact on patients' lives</strong>. </p>

<p>The LAM Foundation is raising awareness of what it means to be rare this year for <a href="https://www.instagram.com/explore/tags/rarediseaseday/" tabindex="0">#RareDiseaseDay</a> on February 28, 2021. Lymphangioleiomyomatosis is a rare progressive lung disease that usually strikes women during the prime of their lives. Known as LAM for short, this disease is characterized by an abnormal growth of smooth muscle cells, especially in the lungs, lymphatic system, and kidneys.⁣ ⁣⁣ ⁣<br />
⁣<br />
We invite you to be part of Rare Disease Day by sharing your story with others and sending a message of solidarity. ⁣<br />
⁣<br />
Mark your calendars and click <a href="https://www.rarediseaseday.org/tell-your-story?disease=Lymphangioleiomyomatosis&country=" target="_blank">here</a> to share your rare disease story! </p>

6 months ago

Anonymous

Anonymous created the event TSC Research Symposium 2020

<h3 data-fontsize="22" data-lineheight="26.4px">The Tuberous Sclerosis Association, TS Alliance, and The LAM Foundation have come together to proudly organize the TSC Research Symposium 2020!</h3>

<p>The TSC Research Symposium 2020, taking place <strong>November Friday 13, 2020, 15:00 – 18:00 GMT via Zoom</strong>, is an important half-day professional research event focused on emerging research around TSC and COVID-19.</p>

<p>For more information visit here: https://tuberous-sclerosis.org/for-professionals/research-symposium-2020/</p>

9 months ago

Anonymous

Anonymous created the event Circle of Hope Webinar & Group Discussion

<h3 align="center"><strong>CIRCLE OF HOPE WEBINAR & GROUP DISCUSSION</strong></h3>

<h3 align="center">WEDNESDAY, NOV 18 – 7:00 PM ET</h3>

<p align="center">Lung Transplantation in the time of COVID: What has changed? What has remained the same? by Dan Dilling, MD</p>

<p align="center"><em>The registration link will be available soon. </em></p>

9 months ago

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