LAM360 Community Guidelines

About LAM360 Community:

Managed by The LAM Foundation, LAM360 Community is an online knowledge community where members are able to share accurate information, ask questions, start discussions and communicate with peers and thought leaders.

Our top priority is to foster discussion in a moderated community where safety and respect prevail, and as such we ask that you follow the Community Guidelines outlined below. We aim to cultivate a space in which all our members feel empowered to share their experiences and support one another in a positive manner.


LAM360 Community is a forum where individuals with LAM can connect with one another and share information and their individual experiences with LAM. It’s also a place to learn and understand some of the challenges shared with others with LAM.

The more you contribute to the community, the more helpful and informative it will become. By sharing your experiences, challenges and successes, you’ll be lending your unique expertise to the community and making it a rich and engaging experience for all that participate. The more you contribute, the more you’ll get in return!


Respect is imperative in creating a helpful and collaborative community. LAM360 Community is a place for encouragement and support. All topics discussed should be on topic and associated to LAM. Failure to communicate in a respectful manner will result in removal of posts and potential removal from the Community.

Nudity or other sexually suggestive content, hate speech, credible threats or direct attacks on an individual or group, content that contains self-harm or excessive violence, pictures of any illegal activity, fake or impostor profiles or spam will not be tolerated with the community.


We want LAM360 Community to be a site that is comfortable for all to visit. Please do not post offensive language or upload any offensive material to the site. Any offensive posts will be removed from the site.


LAM360 Community is an online community that provides a platform for individuals to share their thoughts, ideas and views. Please note that content posted does not represent the official policies or views of The LAM Foundation.

Medical Advice:

LAM360 Community is intended for education purposes only. The information contained within the site should not be used to diagnose or treat a health problem or disease. Information obtained through LAM360 Community should not be considered as offering medical advice and is not a substitute for consulting a licensed medical professional. You should rely on your physician’s advice for the treatment of LAM or any of the related problems discussed.

While we endeavor to make sure that information discussed on LAM360 Community is accurate, we cannot guarantee the accuracy of such information and it is provided without warranty or guarantee of any kind.


LAM360 Community allows members to share photos with friends. Before posting any photos, please keep in mind:

  1. Once photos are posted on the web it can be difficult to remove them. Make sure that the photos you post are ones that you are comfortable sharing.
  2. Please be sure you own or have the rights associated with the photos you are posting. We ask that you respect copyrights and trademarks as well as others’ intellectual property.
  3. Please reduce the size of the photos you are uploading to roughly 1000x1000. Images should be jpeg or png format and less than or equal to 1MB.
  4. Photos containing the following will not be allowed on the site: nudity or other sexually suggestive content, hate speech, credible threats or direct attacks on an individual or group, content that contains self-harm or excessive violence, pictures of any illegal activity, fake or impostor profiles or spam.
  5. The LAM Foundation and managers of LAM360 Community will not use your images without receiving approval from you first.

Adverse Event or Adverse Drug Reaction Reporting:

LAM360 Community is not a place to report an adverse event or adverse drug reaction. If you experience any difficulty with a medication or therapy, please report it immediately to your healthcare provider. He or she can help you determine if you should report the event to the Federal Drug Administration. Serious events can be reported by visiting: HTTP://WWW.FDA.GOV/SAFETY/MEDWATCH/HOWTOREPORT/DEFAULT.HTM

Identity and Privacy:

Please remember that LAM360 Community is an online community and therefore any personal information you post may be viewed by the general public. Only site members are allowed to comment on posts.

Promotion and Spam:

Contacting members in LAM360 Community for commercial or charitable purposes is prohibited. Fundraisers that are approved through The LAM Foundation may use this forum (in a limited capacity) to promote their efforts. Please do not advertise, solicit or fundraise (other than for The LAM Foundation) on LAM360 Community. Sales of goods or items, whether medical or otherwise are prohibited. The Community does not endorse products, therapies, medications, devices, or interventions. Any content considered to be spam will be removed from the website and the user’s profile will be deleted.

Notice of Clinical Trials or Research Studies:

Any entity wishing to post notice of clinical trials or research studies including recruitment or resulting data from a study or trial or conducting any surveys, must obtain prior approval before posting will be permitted. Please contact the Community Manager, Anne McKenna, at AMCKENNA@THELAMFOUNDATION.ORG and provide complete text of proposed submission to include a brief description of proposed study or trial and contact information for those wishing to obtain additional information.

Participation of commercial enterprises:

LAM360 Community is designed to be a forum for individuals with LAM, caregivers, and professionals treating individuals with LAM. Commercial enterprises may not register or participate on the site. However, if an individual in such an enterprise wishes to register as an individual that is permissible providing their participation does not constitute advertising products, their business or services they provide. Anyone violating this will be terminated from the site and will not be permitted to re-register.

Display or User Names:

Display names using the name of products, businesses, profanity, or illegal substances will not be permitted.


LAM360 Community retains the right to suspend or terminate your account without prior notice.

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