maria pearson

maria pearson created the event LAPS For LAM in Chowchilla, CA

Join us as we walk to raise awareness for lymphangioleiomyomatosis (LAM) and provide funding for research to find a cure for LAM.

 The event takes place on the tracks at the Chowchilla Union High School Football Stadium on Saturday, October 15 starting
at 10:00am. Walk as little or as much as you want. Each lap around the track consists of a quarter mile. The total individual goal is 15 miles.

Register TODAY and receive a free t-shirt. *T-shirts are only guaranteed for pre-registrations submitted by October 5, 2016. Register between now and October 5 and receive 3 free raffle tickets!

7 hours ago

  • LynndiTwo years ago, Region 5 hosted a "Mid Atlantic LAPS for LAM" in Fairfax, VA - named in honor of Peggy's great event, which was a 5K run/walk at a local park. Last weekend I heard more about the SLAM LAM walk in Houston. We need a way to participate remotely in each other's events. Any ideas? Peggy, I'd love to join you - somehow?!5 hours ago

Raelynn patch

Raelynn patchreceived the badge Getting started

Earned the Getting started badge!
SatharVictorialisa Mand 260 others also received the badge Satharand 262 others also received the badge

10 hours ago

Sally nagel

Sally nagelanswered the question Chest Pain in LAM patients

the only time I have chest pain is due to stress.. or if I drink something and it goes down the wrong way....
Anne McKenna - Community Manager also answered the question Anne McKenna - Community Manager also answered the question

1 day ago

Sally nagel

Sally nagel

had to re-register today... my bad... hope all is well with every one! had a great weekend with the ladies... if I didn't get to meet you .. I was sin fundraising off and on throughout the weekend.... also got the MRI done.. had no issues with it

1 day ago

maria pearson

maria pearson created the event LAM Education Meeting in St. Louis, MO

Women with LAM, family and friends are welcome to learn about all that took place at the 

RLDC•2016•LAMposium from Washington University LAM Clinic Director, Adrian Shiffren, MD. LAM Liaisons, Carmen Iglesias and Marla Hamlin, are hosting this meeting and will share a lite dinner with everyone along with their summary and photos from LAMposium 2016. Join us!

1 day ago

    maria pearson

    maria pearson created the event LAM Education Meeting in Portsmouth, NH

    SAVE THE DATE!

    Sunday, November 6, 2016

    Souheil El-Chemaly, MD, LAM Clinic Director from Brigham and Women's Hospital will review all that took place at the RLDC 2016 LAMposium.


    More information coming.


    Contact Madeline Nolan at CURELAM@AOL.COM to RSVP 

    1 day ago

      Lynndi

      Lynndianswered the question What was your favorite thing about RLDC LAMposium 2016?

      I loved seeing this event 'up close and personal' after hearing about it every year previously when I didn't attend. Thanks for Cincinnati in September vs. March in Chicago! I'm ready for LAMposium East 2017.

      2 days ago

      Anne McKenna - Community Manager

      Anne McKenna - Community Managerasked the question: What was your favorite thing about RLDC LAMposium 2016?

      I sincerely enjoyed meeting so many new people and putting faces with names of those I've only talked with on the phone.

      2 days ago

      Liezel Haupt

      Liezel Hauptasked the question: Chest Pain in LAM patients

      I attended the LAMposium in Covington Kentucky this past weekend and spoke with many of the LAM ladies. None of them complained about having chest pains. One lady mentioned discomfort, but not pain per se. I wondered if chest pain is an unusual occurence …

      4 days ago

      Liezel Haupt

      Liezel Haupt

      Still overwhelmed and in awe over the LAMposium of this past weekend. I've never experienced anything like it before. Worth travelling 8,500 miles from South Africa to attend. I feel grateful beyond words.

      4 days ago

      Eden

      Eden

      Really excited about the potential for the LAM360! What a great thing to startup at this latest LAMposium--in light of reaching out and working with the larger RLDC community!

      6 days ago

      Katie Jensen

      Katie Jensen

      So excited for my first LAMposium! Thrilled to welcome our friends from the RLDC as well - this conference is going to be BIG!

      1 week ago

      • Sally nagelEach year is a real experience whether you a veteran or newly diagnosed... I have not missed but a few of them since 2000.... we are our own sorority1 day ago

      Sue S.

      Sue S.

      I'm thrilled to welcome 222 Professionals and 226 Patients and Families to the RLDC 2016 & LAMposium -- beginning TOMORROW! This will be the largest conference ever held that is specifically dedicated to LAM and Rare Lung Disease research. LAM360 will be introduced and will launch a new era of information sharing and LAM research support. See you soon!

      1 week ago

        Lynndi

        Lynndi

        I see 189 others received their Getting Started badges. Will many of you be in Cincinnati for LAMposium this weekend? This will be my first time.

        1 week ago

        Anne McKenna - Community Manager

        Anne McKenna - Community Manager

        I'm so excited for the launch of LAM360 Community and LAMposium! What a busy week!

        1 week ago

          KerriMorgan

          KerriMorgan

          Busy preparing for the RLDC/LAMposium 2016. It's a lot of work, but definitely worth it!! Can't wait to see everyone attending.

          1 week ago

            Anne McKenna - Community Manager

            Anne McKenna - Community Managerasked the question: Welcome to the LAM360 Community!

            Thank you for joining our online community! Please be sure to post your questions here and the community will help you find the answers you're looking for. We can't wait to hear from you! Anne

            1 week ago

            maria pearson

            maria pearson created the event LAM Education Meeting in Charleston, SC

            SAVE THE DATE

            3 weeks ago

              maria pearson

              maria pearson created the event LAM Educational Meeting in Richmond, VA

              SAVE THE DATE

              3 weeks ago

                maria pearson

                maria pearson created the event LAM Education Meeting in Stanford, CA

                Women with LAM, family and friends are all welcome to join us at Stanford University Medical Center for a LAM Support Group 'Fall Fling' Meeting.  LAM Clinic Director, Stephen Ruoss, MD will offer "Highlights of the September 2016 Rare Lung Disease Conference and LAMposium".

                Your LAM Liaisons, Susan Jacobs RN, MS, and Shellie Owens, will also be there to talk about their experience at the conference.  There will also be time for general Q & A with Dr. Ruoss followed by time for visiting over a potluck luncheon.

                3 weeks ago

                  Rosemary

                  Rosemary

                  I have been diagnosed 12 months ago. How many other Australian patients are involved with this page? :-)

                  1 month ago

                  maria pearson

                  maria pearson created the event LAM Educational Event in Houston, TX

                  LAM Liaison, Kathi Hawn would like to invite you and your family to her home for a LAM Education gathering on October 8. LAM Clinic Director, Rosa Estrada-Y-Martin, MD from the University of Texas Health Center will join us to share all that took place at the RLDC 2016 LAMposium.


                  Saturday, October 8, 2016 at 3:00PM

                  1 month ago

                    maria pearson

                    maria pearson created the event LAM Education Meeting in Evergreen, CO

                    LAM Regional Education Meeting

                    Saturday, August 27, 2016

                    At Greystone Manor & Estates in Evergreen, Colorado



                    Women with LAM, family and friends are all welcome to a fun and informative gathering at the estate of Pam and Richard Bard in beautiful Evergreen, Colorado.



                    The gathering will begin at 11:30am with a pool-side luncheon and social time. Afterwards, LAM Clinic Director, Greg Downey MD  from National Jewish Health will talk about the latest in LAM research. Integrative Health Expert, Len Wisneski, MD, and a Naturopathic doctor will discuss foods and supplements that are beneficial for respiratory health. There will also be an opportunity to participate in a Tai Chi/Chi Gong at the end of the day.



                    1 month ago

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