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1 Answers
Can LAM as it advances lead to changes in Cardiac output and rhythm?

I wonder if someone on this forum has a similar experience I have with onset of cardiac arrhythmias as LAM progresses. I have always been very athletic and still exercise a lot but over the past years have experiences increasing levels of heart …

Author: Trish
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Botox? Is it safe while on sirolmis?

Botox? Is it safe to get injections while on sirolmis? Anyone had a negative experience or positive?

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1 Answers
I've noticed a bunch of changes in my body since taking taking sirolumis( starting taking 6 months a

Body changes on sirolumis.

0 Votes
5 Answers
Joint Pain

Does anyone on Sirolimus experience joint pain and if so what is it like? I have been having pain in my left foot that comes on goes. Trying to figure out if it from Sirolimus or something else.

Author: Marna
0 Votes
6 Answers
Is it normal to experience constant eye afections due to low immune system?

I am constantly having problems with my eyes and I want to know if this could be related with using Rapamune ( 1.5 mg.) ,and was wondering if this could relate to my low immune system. I have a chalazion since December, and like every two months my …

Author: Tashi
0 Votes
1 Answers
Newly diagnosed symptom quesiton

Hello, I have been recently diagnosed last summer while back in the U.S. and have very limited access to health care as I have relocated living in South East Asia for work, so I'm unable to ask a qualified health professional about a suspected symptom. …

Author: Mickie
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1 Answers
What can be done about LAM cells gathering in the lymphatic system?

My upper and lower abdomen are swollen and have a rash. I look pregnant.

Author: Annie
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1 Answers
Liver

Hi, I have recently had some liver scans done and am awaiting results however might have some spots or something on it.. has anyone else ever had liver issues? I have been on sirolimus for almost 9 years now

Author: Jessbo
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0 Votes
2 Answers
Has anyone used oxygen in the pool?

I used to swim a lot, until I became too short of breath. Now that I am using oxygen for exercise, I would like to start swimming laps at the local pool once again. Does anyone have any experience or any suggestions re managing oxygen tanks around the …

Author: Jean D
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Participate in Research!

If you are a woman with LAM who has considered or had a lung transplant, we need your help. We've got a unique opportunity for you to help LAM patient, Laura Bowers and Clinic Director, Dr. Charlie Strange by completing their survey. You can participate …

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