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1 Answers
Participate in Research!

If you are a woman with LAM who has considered or had a lung transplant, we need your help. We've got a unique opportunity for you to help LAM patient, Laura Bowers and Clinic Director, Dr. Charlie Strange by completing their survey. You can participate …

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Sometimes I feel SOB, but my pulse oximeter indicates SATs are fine.

I'm wondering why sometimes I feel short of breath without any exertion but when I check my pulse ox everything is normal. It's reassuring, of course, but why would this be?

Author: Mardi
0 Votes
3 Answers
What is the current research saying about LAM patients becoming pregnant?

Ashley - Pregnancy after diagnosis is a very personal decision. It is also very difficult because, unless you have already had a pregnancy, it is difficult to know in advance how your body will respond - whether your LAM will progress due to the …

Author: Ashley C
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1 Answers
health products and supplement

I am not trying to "sell" this, but I have been on supplements, fruits & vegetables in capsule! With Getting all these nutrients in my body every day, I don't get as sick as much, plus I have more energy. There are Many LAM women on it & they can tell a …

Author: itcecsa
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Rapamune and allergy shots

I've been tested for allergies recently and apparently I'm allergic to trees, weeds, and fungus. So my Dr wants to start allergy shots every week for several years. My question is, will Rapamune interfere with the immune response needed for the allergy …

Author: ADK
0 Votes
3 Answers
I've noticed a bunch of changes in my body since taking taking sirolumis( starting taking 6 months a

Body changes on sirolumis.

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1 Answers
LAM, Type 2 Diabetes

Does LAM affect the pancreas in any way and therefore Type 2 diabetes?

Author: KikiB
0 Votes
5 Answers
What do you use to carry your oxygen tanks?

I recently started using oxygen for exercise. My oxygen supplier gave me a cloth "over-the-shoulder" bag to hold a D tank, but the D tank is fairly heavy, and not practical for exercising (unless I'm on the treadmill or stationary bike.) They also …

Author: Jean D
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0 Votes
2 Answers
Can LAM as it advances lead to changes in Cardiac output and rhythm?

I wonder if someone on this forum has a similar experience I have with onset of cardiac arrhythmias as LAM progresses. I have always been very athletic and still exercise a lot but over the past years have experiences increasing levels of heart …

Author: Trish
0 Votes
3 Answers
Botox? Is it safe while on sirolmis?

Botox? Is it safe to get injections while on sirolmis? Anyone had a negative experience or positive?

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