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Gerd

Hi .I have been on sirolimus for three weeks. Together with having lam I have a hiatus hernia and gerd. I was also treated for an ulcer previously. I am on 40mg of nexium twice daily.Since starting sirolimus I have lots of pain in my tummy and I find the …

Author: sothie
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Does it sound like LAM?

I had my first chest CT on Friday the 2nd and I got an email with information to the patient portal to see the results. It said I have a “ 3 mm subpleural nodule in my lower lobe of the left lung that isn’t calcified.” It also said I have fatty …

Author: Alyssa
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Do I need to stop rapamune for having some dental procedures?

Today I went to my dentist, and I want to make sure if there are any precautions I need to take before I have them done. I will have some inlays, fillings, and a tartar control. The reason I ask you is because he told me there is some bleeding in my …

Author: Tashi
0 Votes
2 Answers
LAMP-1 Trial

Hi, I live in South Africa and would very much like to obtain more information regarding the LAMP-1 trial. It is very difficult for me to phone the listed contact persons, due to time differences, etc. Will it be possible for me to alternatively contact …

0 Votes
1 Answers
Sirolimis side effects

Hi I have started sirolimus a week now.So far I have been fine how long before you notice side effects. I would also like to know about going to the gym will it be wiser not to f go for awhile.

Author: sothie
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4 Answers
What should I expect towards endstage

Hi Amanda! Your questions are not overwhelming to me, not at all. I think the more we ask and the more we share, the more we learn, which, as you mentioned, removes some of the unknowns, paving the way for more hope and knowledge. I'll answer in the …

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2 Answers
Survey on LAM360 Community Experience

Help us improve LAM360 Community by taking this quick survey! https://www.surveymonkey.com/r/NDVJM8B

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3 Answers
Chest Pain in LAM patients

I attended the LAMposium in Covington Kentucky this past weekend and spoke with many of the LAM ladies. None of them complained about having chest pains. One lady mentioned discomfort, but not pain per se. I wondered if chest pain is an unusual occurence …

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Fatigue

I have experienced fatigue for many years before being diagnosed with LAM last year and am wondering if this may be the cause. I have good days and bad days, and for the most part I'm able to power through it, but I'm wondering how much of a role fatigue …

Author: Annie G
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1 Answers
Chyle Lam - Newly Diagnosed

Hello everyone, I'm new here and have lots of questions but I'll just start with a few. My sister's doctor is Dr. Roland Nador in Vancouver. He's had a couple LAM patients before but his speciality is lung transplant and he works out of the Lung …

Author: RJ
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