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Joint Pain

Does anyone on Sirolimus experience joint pain and if so what is it like? I have been having pain in my left foot that comes on goes. Trying to figure out if it from Sirolimus or something else.

Author: Marna
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Transplant Evaluation

For those who have had a transplant or are waiting, how did you decide when to evaluate? Would you share your FEV1, DLCO, and oxygen requirements at the time? Thanks.

Author: KP
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Chest Pain in LAM patients

I attended the LAMposium in Covington Kentucky this past weekend and spoke with many of the LAM ladies. None of them complained about having chest pains. One lady mentioned discomfort, but not pain per se. I wondered if chest pain is an unusual occurence …

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What do you use to carry your oxygen tanks?

I recently started using oxygen for exercise. My oxygen supplier gave me a cloth "over-the-shoulder" bag to hold a D tank, but the D tank is fairly heavy, and not practical for exercising (unless I'm on the treadmill or stationary bike.) They also …

Author: Jean D
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Has anyone used oxygen in the pool?

I used to swim a lot, until I became too short of breath. Now that I am using oxygen for exercise, I would like to start swimming laps at the local pool once again. Does anyone have any experience or any suggestions re managing oxygen tanks around the …

Author: Jean D
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