0 Votes
1 Answers
health products and supplement

I am not trying to "sell" this, but I have been on supplements, fruits & vegetables in capsule! With Getting all these nutrients in my body every day, I don't get as sick as much, plus I have more energy. There are Many LAM women on it & they can tell a …

Author: itcecsa
0 Votes
1 Answers
Supplements

Supplement question: I'm wondering what supplements LAM patients should take to support their immune health, liver etc...? If so, what are they? I've suggested my sister should take lots of antioxidants (Vitamin C, E, A) and minerals to support liver …

Author: RJ
0 Votes
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Chyle Lam - Newly Diagnosed

Hello everyone, I'm new here and have lots of questions but I'll just start with a few. My sister's doctor is Dr. Roland Nador in Vancouver. He's had a couple LAM patients before but his speciality is lung transplant and he works out of the Lung …

Author: RJ
0 Votes
1 Answers
Taking Pon Lee?

As a LAM patient, I am trying to enhance the immunity system by taking Pon Lee. Wondering if anyone had try it out and have any opinion/objections to it. Thanks!

Author: itcecsa
0 Votes
0 This question has no answers.
6-Minute Walk Test & Exercise Stress ECHO

Hello Lammies, I recently had to repeat the 6-minute walk test for insurance purposes as well as take a first time exercise stress ECHO for cardiac work-up. Lots of Lammies have shared experiences and frustrations about these tests in the past. Since I …

0 Votes
8 Answers
Is it normal to experience constant eye afections due to low immune system?

I am constantly having problems with my eyes and I want to know if this could be related with using Rapamune ( 1.5 mg.) ,and was wondering if this could relate to my low immune system. I have a chalazion since December, and like every two months my …

Author: Tashi
0 Votes
4 Answers
Symptoms worsen with a cold?

Hello - I was diagnosed with LAM a few months back. I am 24 and overall healthy and do not currently have symptoms other than multiple collapsed lungs, which I had a pleurodesis in both lungs to hopefully halt that. My surgeon did not think I had LAM …

Author: Jules
0 Votes
1 Answers
VEGF-D Blood Test

How often do these blood test results come back abnormal/elevated? My results had came back normal, but ended up having a biopsy which was on the fence, but was ultimately decided I had LAM.

Author: Jules
0 Votes
1 Answers
How do I find an article listed on website?

Hi SFBJ, This is a scholarly article that was published in a journal and because of copywrite laws these articles are sometimes not widely available online. However, here is a link to the abstract . You can access the full article by clicking on the PDF …

Author: SFBJ
0 Votes
5 Answers
Información sobre el efecto del everolimus

Hola soy de Uruguay y recientemente me diagnosticaron LAM averiguando Un poco mejor entere Que es Nuestro País Estaban en trámites para Adquirir el medicamenti everolimus Que Supuestamente Tienen propiedades SIMILARES al sirulimus. Queria sabre si …

Author: Paola
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