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1 Answers
What can be done about LAM cells gathering in the lymphatic system?

My upper and lower abdomen are swollen and have a rash. I look pregnant.

Author: Annie
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3 Answers
Is it normal to experience constant eye afections due to low immune system?

I am constantly having problems with my eyes and I want to know if this could be related with using Rapamune ( 1.5 mg.) ,and was wondering if this could relate to my low immune system. I have a chalazion since December, and like every two months my …

Author: Tashi
0 Votes
1 Answers
Liver

Hi, I have recently had some liver scans done and am awaiting results however might have some spots or something on it.. has anyone else ever had liver issues? I have been on sirolimus for almost 9 years now

Author: Jessbo
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0 Votes
2 Answers
Has anyone used oxygen in the pool?

I used to swim a lot, until I became too short of breath. Now that I am using oxygen for exercise, I would like to start swimming laps at the local pool once again. Does anyone have any experience or any suggestions re managing oxygen tanks around the …

Author: Jean D
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Participate in Research!

If you are a woman with LAM who has considered or had a lung transplant, we need your help. We've got a unique opportunity for you to help LAM patient, Laura Bowers and Clinic Director, Dr. Charlie Strange by completing their survey. You can participate …

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Is there any relationship between Rapamune and getting swollen eyes, or chalazions?

Hello, I would appreciate your guidance concerning some issues I have with my eyes, and have not experienced before but recently. Since September 2016, I have experienced a recurrent chalazion and swelling in my eyes. I have a Chalazion in my right eye …

Author: Tashi
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health products and supplement

Is there any health products that's good for LAM patients, what about supplements? Thanks!

Author: itcecsa
0 Votes
4 Answers
What do you use to carry your oxygen tanks?

I recently started using oxygen for exercise. My oxygen supplier gave me a cloth "over-the-shoulder" bag to hold a D tank, but the D tank is fairly heavy, and not practical for exercising (unless I'm on the treadmill or stationary bike.) They also …

Author: Jean D
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0 Votes
2 Answers
Lam specialist

hi Today the doctor told to me that my sister Has thyontom of lam and my question is There is any doctor in the Middle East who specialist to confirm the disease I got shocked when I read about this disease And I'm worried about my sister Kindly help

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0 Votes
2 Answers
Joint Pain

Does anyone on Sirolimus experience joint pain and if so what is it like? I have been having pain in my left foot that comes on goes. Trying to figure out if it from Sirolimus or something else.

Author: Marna
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