I am constantly having problems with my eyes and I want to know if this could be related with using Rapamune ( 1.5 mg.) ,and was wondering if this could relate to my low immune system. I have a chalazion since December, and like every two months my …

Hi SFBJ, This is a scholarly article that was published in a journal and because of copywrite laws these articles are sometimes not widely available online. However, here is a link to the abstract . You can access the full article by clicking on the PDF …

Hola soy de Uruguay y recientemente me diagnosticaron LAM averiguando Un poco mejor entere Que es Nuestro País Estaban en trámites para Adquirir el medicamenti everolimus Que Supuestamente Tienen propiedades SIMILARES al sirulimus. Queria sabre si …

If you are a woman with LAM who has considered or had a lung transplant, we need your help. We've got a unique opportunity for you to help LAM patient, Laura Bowers and Clinic Director, Dr. Charlie Strange by completing their survey. You can participate …

I wonder if someone on this forum has a similar experience I have with onset of cardiac arrhythmias as LAM progresses. I have always been very athletic and still exercise a lot but over the past years have experiences increasing levels of heart …

I'm wondering why sometimes I feel short of breath without any exertion but when I check my pulse ox everything is normal. It's reassuring, of course, but why would this be?

Ashley - Pregnancy after diagnosis is a very personal decision. It is also very difficult because, unless you have already had a pregnancy, it is difficult to know in advance how your body will respond - whether your LAM will progress due to the …

I am not trying to "sell" this, but I have been on supplements, fruits & vegetables in capsule! With Getting all these nutrients in my body every day, I don't get as sick as much, plus I have more energy. There are Many LAM women on it & they can tell a …

I've been tested for allergies recently and apparently I'm allergic to trees, weeds, and fungus. So my Dr wants to start allergy shots every week for several years. My question is, will Rapamune interfere with the immune response needed for the allergy …

Body changes on sirolumis.