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I have TSC. I had a brain tumor (SEGA) that was removed. Since then, I have been very vigilant about my health. I have several non-calcified pulmonary nodules in my lungs, no signs of LAM yet. I was sick as a child with asthma and/or bronchitis from age 5-10.
On and off now I feel a bit hard to breathe and I am getting paranoid about getting LAM.
Any encouraging words?