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Hi, I am Dieke, a 51year old woman from the Netherlands. My local doctor diagnosed me with LAM, but this still has to be officially confirmed by a doctor specialized in LAM. A CT scan was made because I complained about pain in my abdomen. No explanation was found, but they did find 25 cystes; 5 mm to 2.8 cm in siz throughout my lungs. Another finding was a benign tumor (9 mm) in my adrenal gland.
I am a non smoker and do running and cardio boxing about 4/5 times a week. I don't have any other health issues, and I do not have any LAM related symptoms than the cysts.
However, the possible LAM diagnosis makes me very insecure and nervous. The waiting list for the expertise center is about 8 weeks, so it will be probably February/March before I have any more certainty.
Is there someone who can relate to my story, or maybe can give me tips or advice? I have no one who knows LAM and most people think it won't be LAM, because I am such a sporter.Please send me your reactions!