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The LAM Foundation Announces New Leadership

After 25 years of devoted service to women with LAM, their families, and the scientific and medical communities that support them, Dr. Frank McCormack has decided to step down from his current role with the Foundation, as the volunteer Scientific Director, taking on the new role of Emeritus Scientific Director. Dr. Nishant Gupta has been named as the new LAM Foundation Scientific Director, joining the Board of Directors. He also becomes the first person to hold The LAM Foundation Professorship for LAM Research at the University of Cincinnati (UC). Click here to learn more. 

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Tags: Emeritus Scientific Director Francis X McCormack Frank McCormack Nishant Gupta Scientific Director Transition

Funding Opportunity Available for the Research and Development of a Portable Oxygen Device

The National Institutes of Health (NIH) / Small Business Innovation Research (SBIR) announces a funding opportunity to develop a lightweight continuous flow portable oxygen device. 

The NIH and the Centers for Disease Control and Prevention invite small businesses to submit proposals under an SBIR Contract Solicitation. Companies with the capability to conduct research and development in any health-related topic areas are encouraged to participate.

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TSC/LAM Virtual Town Hall: Moving On From Shelter In Place

Plan now to join The LAM Foundation and the Tuberous Sclerosis Alliance Friday, May 22 at 4 PM EST for TSC/LAM Virtual Town: Moving On From Shelter In Place. This 1-hour online presentation will feature Dr. Frank McCormack speaking on "What LAM Patients Need to Know to Minimize Risk During Phased Re-Opening."

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COVID-19 Community Questions and Answers

The LAM Foundation is closely monitoring the rapidly evolving developments regarding the COVID-19 pandemic. As the United States and other countries around the world begin to take initial steps towards easing the stay-at-home restrictions, it is important to be aware of the continuing risk that COVID-19 poses to patients with chronic lung disease. LAM patients should continue to exercise caution and remain vigilant during this phase of responsible reopening.

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Tags: Coronavirus COVID19 LAM Social Distancing

Research Survey for Rare Disease Patients about Impacts of COVID-19

Rare disease patients or their caregivers are invited to complete a 20-minute online survey from home about the ways the novel coronavirus pandemic is impacting people with rare diseases and their families. 

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Tags: Coronavirus COVID-19 Rare Disease Research

Announcing LAMposium In Your Living Room

The LAM Foundation is bringing LAMposium directly into your living room in the form of an interactive webinar series called, LAMposium In Your Living Room. These patient and family education webinars will feature the same LAM experts who were scheduled to present at the 2020 conference.

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Tags: LAMposium LAMposium 2020 LAMposium In Your Living Room

The LAM Foundation Joins #GivingTuesdayNow in Global Day of Giving and Unity 

#GivingTuesdayNow is an opportunity for people around the world to stand together in unity — let’s rally to put an end to lymphangioleiomyomatosis. Read more about the driving force behind this movement and how to get involved.

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Tags: Coronavirus COVID19 GivingTuesday GivingTuesdayNow

Dr. David Price Explains More On Protecting Your Family During COVID-19

Dr. David Price of Weill Cornell Medical Center in New York City shares information in a Zoom call on March 22 with family and friends on empowering and protecting families during the COVID-19 pandemic. 

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Tags: Coronavirus COVID19 news

The LAM Foundation Submits Oxygen Certification Waiver Request

In an ongoing attempt to continue to advocate for patient access to oxygen, The LAM Foundation is proud to be one of nine organizations issuing a letter requesting that the Center for Medicare & Medicaid Services (CMS) provide a waiver to modify the certification and recertification requirements for Home Use of Oxygen. 

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Tags: CMS legislation news oxygen

TSC/LAM Virtual Town Hall: A COVID-19 Update

On March 20, 2020 The LAM Foundation co-hosted a TSC/LAM Virtual Town Hall addressing COVID-19 with the Tuberous Sclerosis Alliance, which included a free 1-hour online presentation including an open question-and-answer period.

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Tags: Coronavirus COVID19 TS Alliance Video

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