The LAM Foundation Partners and Memberships

National Health Council

The mission of the National Health Council is to provide a united voice for people with chronic diseases and disabilities and their family caregivers.

American Thoracic Society (ATS)

The mission of the American Thoracic Society is to improve health worldwide by advancing research, clinical care and public health in respiratory disease, critical illness and sleep disorders.

ATS Public Advisory Roundtable (PAR)

The ATS Public Advisory Roundtable (ATS PAR) is a partnership with organizations representing persons affected by respiratory diseases, sleep-related conditions, or related critical illnesses. ATS collaborates with them to advance shared educational, research, patient care, and advocacy goals.

American College of Chest Physicians (ACCP)

The mission of the American College of Chest Physicians is to champion the prevention, diagnosis and treatment of chest diseases through education, communication and research.

National Organization of Rare Disorders (NORD)

NORD is a patient advocacy organization dedicated to individuals with rare diseases and the organizations that serve them. NORD, along with its more than 230 patient organization members, is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and patient services.

American Lung Association

The mission of the American Lung Association is to save lives by improving lung health and preventing lung disease.

Genetic Alliance

Genetic Alliance is the world’s leading nonprofit health advocacy organization committed to transforming health through genetics and promoting an environment of openness centered on the health of individuals, families, and communities.

Tuberous Sclerosis Alliance

The TS Alliance is the only national voluntary health organization for the genetic disorder known as tuberous sclerosis complex (TSC). They actively advocate in government relations, striving to increase visibility of TSC in Congress and within the National Institutes of Health (NIH). The organization’s goal is to engage government institutions in basic scientific and clinical research on causes and remedies for TSC.

Global Genes RARE Foundation Alliance

The RARE Foundation Alliance is a coalition of over 300 rare disease organizations that understand that together we are more powerful. Global Genes Foundation Alliance partners exchange best practices and share lessons learned to drive better outcomes for the entire rare disease community.