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X-WR-CALNAME:The LAM Foundation
X-ORIGINAL-URL:https://www.thelamfoundation.org
X-WR-CALDESC:Events for The LAM Foundation
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260516T100000
DTEND;TZID=America/New_York:20260516T140000
DTSTAMP:20260530T140457
CREATED:20260417T185400Z
LAST-MODIFIED:20260417T185442Z
UID:2396-1778925600-1778940000@www.thelamfoundation.org
SUMMARY:PAR Patients & Experts Forum | Drug Repurposing & Complementary Therapy
DESCRIPTION:Could an existing medication hold new promise? Could complementary approaches improve quality of life alongside standard care? This forum brings together the PAR community to explore these questions openly — with expert insight and real patient voices at the table. \nWhether you’re a patient\, caregiver\, researcher\, or clinician\, your perspective matters. Come ready to learn\, ask questions\, and be part of the conversation. \nRegister to attend in person: https://wkf.ms/40nW4hi \nRegister to join online: https://thoracic.zoom.us/webinar/register/WN__0GLMhGBTeeLWDemuY5Q_A \nQuestions? Please email the PAR Chair and staff at par@thoracic.org for more information.
URL:https://www.thelamfoundation.org/event/par-patients-experts-forum-drug-repurposing-complementary-therapy/
ATTACH;FMTTYPE=image/png:https://www.thelamfoundation.org/wp-content/uploads/2026/04/PARLOGO-BG.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260429T190000
DTEND;TZID=America/New_York:20260429T203000
DTSTAMP:20260530T140457
CREATED:20260319T183438Z
LAST-MODIFIED:20260501T195443Z
UID:2313-1777489200-1777494600@www.thelamfoundation.org
SUMMARY:Circle of Hope: Recognizing and Monitoring Early Signs of Lung Transplant Rejection
DESCRIPTION:
URL:https://www.thelamfoundation.org/event/circle-of-hope-recognizing-and-monitoring-earl-signs-of-lung-transplant-rejection/
ATTACH;FMTTYPE=image/png:https://www.thelamfoundation.org/wp-content/uploads/2026/03/LS-with-title-2026-APR-COH.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260421T140000
DTEND;TZID=America/New_York:20260421T150000
DTSTAMP:20260530T140457
CREATED:20260130T195309Z
LAST-MODIFIED:20260403T194915Z
UID:2233-1776780000-1776783600@www.thelamfoundation.org
SUMMARY:TEN Early Career Network Webinar
DESCRIPTION:April 21\, 2026\, 2:00 pm ET / 8:00 pm CET – Topic TBA \nReady to accelerate your impact in the LAM research community? Join The LAM Foundation Early Career Researcher Network (TEN) on April 21\, 2026\, at 2:00 pm ET / 8:00 pm CET for an exclusive one-hour webinar designed to provide early-stage investigators with fresh scientific insights and valuable professional connections. \nWe’re thrilled to announce that Dr. Stacey-Ann Brown will be our featured speaker! In addition\, we’ll offer practical updates for early career researchers\, such as upcoming grant opportunities\, funding timelines and applications. \nThe LAM Foundation is committed to the development and support of early career researchers.  We hope that you’ll join us for all webinars in the series and look forward to connecting and collaborating with you to advance LAM research\, improve treatment\, and ultimately identify a cure for LAM. \nQuestions? Please contact Jenn Vinton\, Grant Coordinator\, at research@thelamfoundation.org.  See you on April 21! \nSincerely\,\nIldikó Krencz\, MD\, PhD\nSara Mikhael Hachem\, RPh\, PhD\nTEN Co-Chairs
URL:https://www.thelamfoundation.org/event/ten-webinar/
ATTACH;FMTTYPE=image/png:https://www.thelamfoundation.org/wp-content/uploads/2026/01/Artboard-1@4x-8-scaled.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260312T190000
DTEND;TZID=America/New_York:20260312T203000
DTSTAMP:20260530T140457
CREATED:20260123T164001Z
LAST-MODIFIED:20260313T190650Z
UID:2211-1773342000-1773347400@www.thelamfoundation.org
SUMMARY:LAMposium in Your Living Room: LAM Protocols at the National Institutes of Health (NIH)
DESCRIPTION:Dr. Joel Moss and the LAM team from the National Institutes of Health (NIH) will discuss research being conducted in current and planned LAM protocols. They will describe what to expect when you participate in the protocols and will provide updates about ongoing clinical and translational research studies. \nThe recording will be available after March 19. Please see video library for the latest videos.
URL:https://www.thelamfoundation.org/event/lamposium-in-your-living-room-lam-protocols-at-the-national-institutes-of-health-nih/
ATTACH;FMTTYPE=image/png:https://www.thelamfoundation.org/wp-content/uploads/2026/01/2026-March-12-LYLR-LS-Logo-W@4x-8-scaled.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20260228
DTEND;VALUE=DATE:20260301
DTSTAMP:20260530T140457
CREATED:20260123T165535Z
LAST-MODIFIED:20260123T165535Z
UID:2215-1772236800-1772323199@www.thelamfoundation.org
SUMMARY:Rare Disease Day
DESCRIPTION:Learn more about Rare Disease Day. \nTake The LAM Foundation’s Rare Disease Day Challenge! \n 
URL:https://www.thelamfoundation.org/event/rare-disease-day/
ATTACH;FMTTYPE=image/png:https://www.thelamfoundation.org/wp-content/uploads/2026/01/RDD_Educational-Facts_8-15.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20260223
DTEND;VALUE=DATE:20260228
DTSTAMP:20260530T140457
CREATED:20260123T164932Z
LAST-MODIFIED:20260123T164932Z
UID:2213-1771804800-1772236799@www.thelamfoundation.org
SUMMARY:Rare Disease Week on Capitol Hill
DESCRIPTION:The LAM Foundation is proud to once again participate in the EveryLife Foundation’s Rare Disease Week on Capitol Hill\, taking place February 24–26\, 2026. This powerful event unites rare disease patients and advocates from across the country to educate congressional leaders and raise awareness of the issues that matter most to our community. \nPlan to attend? Please let us know at patientservices@thelamfoundation.org so we can coordinate efforts and connect you with others representing The LAM Foundation. \nLearn More
URL:https://www.thelamfoundation.org/event/rare-disease-week-on-capitol-hill/
ATTACH;FMTTYPE=image/jpeg:https://www.thelamfoundation.org/wp-content/uploads/2026/01/IMG_4207-scaled-e1771012594240.jpeg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260211T190000
DTEND;TZID=America/New_York:20260211T203000
DTSTAMP:20260530T140457
CREATED:20260109T210013Z
LAST-MODIFIED:20260109T210953Z
UID:2197-1770836400-1770841800@www.thelamfoundation.org
SUMMARY:LAM Research Virtual Conference: Leveraging the LAM Cell Atlas for Scientific Discovery
DESCRIPTION:Professionals are invited to a virtual webinar exploring the use of the LAM Cell Atlas presented by Yan Xu\, PhD of the Division of Pulmonary Biolody and Biomedical Informatics at Cincinnati Childrens’ Hospital Medical Center. Scientists are actively researching LAM to better understand its pathogenesis and develop improved treatments. The recent application of single-cell multi-omics in LAM provides valuable insights into the disease cells and their interactions within the disease environment. However\, it generates complex data that can be challenging for researchers without computational skills to utilize effectively. To address this\, the LAM Cell Atlas (LCA-v1) was created in 2022. The LAM Cell Atlas (LCA) is a free web-based portal that provides easy access to integrated single-cell RNA sequencing data compiled from the analysis of lung\, uterus\, and kidneys of patients with LAM. The LCA provides user-friendly graphical interfaces with a variety of interactive options for investigators to search\, visualize\, and reanalyze comprehensive single-cell omics data sets without the need for programming or coding. The LCA provides a robust data resource to test new hypotheses and discover novel biomarkers. The LCA can be accessed here. Please join us to learn more about this important and easily accessible tool for LAM research. Wednesday\, February 11th 7pm – 8:30pm EST. \nEmail Research@thelamfoundation.org to register.
URL:https://www.thelamfoundation.org/event/lam-research-virtual-conference-leveraging-the-lam-cell-atlas-for-scientific-discovery/
ATTACH;FMTTYPE=image/png:https://www.thelamfoundation.org/wp-content/uploads/2026/01/LRVC-Cell-Atlas.2-scaled.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251219T190000
DTEND;TZID=America/New_York:20260121T203000
DTSTAMP:20260530T140457
CREATED:20251219T213138Z
LAST-MODIFIED:20260122T144137Z
UID:2179-1766170800-1769027400@www.thelamfoundation.org
SUMMARY:LAMposium in Your Living Room: Understanding Supplemental Oxygen\, Device Options\, and Tips for Staying Active
DESCRIPTION:Join Susan Jacobs as she provides an overview of supplemental oxygen basics\, assessing the need for oxygen\, its importance\, and how to integrate it into your daily routines. \nThe recording will be available about 1 week after the event.
URL:https://www.thelamfoundation.org/event/lamposium-in-your-living-room-understanding-supplemental-oxygen-device-options-and-tips-for-staying-active/
ATTACH;FMTTYPE=image/png:https://www.thelamfoundation.org/wp-content/uploads/2025/12/Slider-2026-Jan-LYLR-8-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251215T190000
DTEND;TZID=America/New_York:20251215T203000
DTSTAMP:20260530T140457
CREATED:20251212T214521Z
LAST-MODIFIED:20251216T135836Z
UID:2158-1765825200-1765830600@www.thelamfoundation.org
SUMMARY:Things I Wish I Had Known Before Transplant Patient Panel with Q & A
DESCRIPTION:You are invited to a special LAMposium in Your Living Room Circle of Hope webinar on Monday\, December 15\, 7:00 p.m. – 8:30 p.m. ET. \nPlease join us for this interactive discussion with post-transplant patients as they reflect on their experiences and the things they wish they’d known along the way. Bring your curiosity and questions for this engaging session. \nRecording coming soon. Please visit our Video Library for past webinars and more.
URL:https://www.thelamfoundation.org/event/things-i-wish-i-had-known-before-transplant-patient-panel-with-q-a/
ATTACH;FMTTYPE=image/png:https://www.thelamfoundation.org/wp-content/uploads/2025/12/Artboard-15-8-2.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251118T190000
DTEND;TZID=America/New_York:20251118T200000
DTSTAMP:20260530T140457
CREATED:20251017T192354Z
LAST-MODIFIED:20251119T165901Z
UID:2075-1763492400-1763496000@www.thelamfoundation.org
SUMMARY:LAMposium in Your Living Room
DESCRIPTION:Henske & Johnson Research Report: Highlights from the 2025 International LAM Research Conference\nJoin 2025 International LAM Research Conference Co-Chairs\, Dr. Elizabeth Henske and Dr. Simon Johnson\, as they share conference highlights\, key takeaways\, and what has them excited for the future of LAM research. Bring your curiosity and questions for this unique opportunity. \nRegisteration closed – Watch for the recording in our video library. \nJoin us for the next LAMposium in Your Living Room on January. 21 2026. Registration opens soon.
URL:https://www.thelamfoundation.org/event/lamposium-in-your-living-room/
ATTACH;FMTTYPE=image/png:https://www.thelamfoundation.org/wp-content/uploads/2025/10/2025_nov_lylr-sq.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20251029T160000
DTEND;TZID=America/Los_Angeles:20251029T173000
DTSTAMP:20260530T140457
CREATED:20251017T191457Z
LAST-MODIFIED:20251027T144713Z
UID:2073-1761753600-1761759000@www.thelamfoundation.org
SUMMARY:Region 19: Northern California & Northern Nevada Educational Event
DESCRIPTION:This is an educational event for those living with LAM in Northern California and Northern Nevada. For more information\, please email: info@thelamfoundation.org \n*Please note that the time is 4 pm in the Pacific Time Zone.
URL:https://www.thelamfoundation.org/event/region-19-northern-california-northern-nevada-educational-event/
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END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20250926
DTEND;VALUE=DATE:20250929
DTSTAMP:20260530T140457
CREATED:20250602T205439Z
LAST-MODIFIED:20250602T205439Z
UID:1959-1758844800-1759103999@www.thelamfoundation.org
SUMMARY:International LAM Research Conference & LAMposium
DESCRIPTION:
URL:https://www.thelamfoundation.org/event/international-lam-research-conference-lamposium/
ATTACH;FMTTYPE=image/jpeg:https://www.thelamfoundation.org/wp-content/uploads/2024/10/LAMPOSIUM-with-30-with-date.jpg
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