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X-WR-CALDESC:Events for The LAM Foundation
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DTSTART;TZID=America/New_York:20260929T140000
DTEND;TZID=America/New_York:20260929T150000
DTSTAMP:20260727T202603Z
CREATED:20260701T204508Z
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UID:2689-1790690400-1790694000@www.thelamfoundation.org
SUMMARY:Early Career Network (TEN) Quarterly Interactive Webinar
DESCRIPTION:Join The LAM Foundation’s Early Career Researcher Network (TEN) for our next quarterly interactive webinar. Designed as a launchpad for the next generation of scientific leaders\, this vibrant community bridges the gap between working in the lab and leading the field.\n \n\nThese webinars offer early career investigators a dedicated platform to: \n\n\nPresent & Share: Showcase your latest work through ECR presentations.\nSharpen Skills: Fine-tune your scientific communication and presentation style.\nDialogue & Connect: Engage in real-time discussion and high-impact networking with peers.\n\nWhether you are an early career researcher looking to grow or a mentor eager to support the next generation\, we invite you to connect\, collaborate\, and expand your reach.\n\n \nLearn More & Get Involved\n\n \nTo register or learn more about TEN\, contact Jenn Vinton at research@thelamfoundation.org.
URL:https://www.thelamfoundation.org/event/ten-early-career-researcher-network-webinar/
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20261002
DTEND;VALUE=DATE:20261003
DTSTAMP:20260723T205734Z
CREATED:20260701T205449Z
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UID:2691-1790899200-1790985599@www.thelamfoundation.org
SUMMARY:World Oxygen Day
DESCRIPTION:Save the date! \nLearn More
URL:https://www.thelamfoundation.org/event/world-oxygen-day/
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DTSTART;TZID=America/New_York:20261005T190000
DTEND;TZID=America/New_York:20261005T203000
DTSTAMP:20260908T134622Z
CREATED:20260701T210047Z
LAST-MODIFIED:20260908T134622Z
UID:2694-1791226800-1791232200@www.thelamfoundation.org
SUMMARY:LAMposium in Your Living Room 7-8:30 PM ET
DESCRIPTION:Registration  October 5\, 2026LAMposium in your Living Room: Understanding Your Test ResultsDr. Adrian Shifren will discuss standard tests that are a routine part of the evaluation of LAM patients\, including what they mean\, which of the many numbers are important\, and when to start treatment.  With featured guest Dr. Ali Aamir\, Chief Medical Officer of Trillium Bio\, presenting on LAMair™\, an innovative VEGF-D blood test now available to physicians and patients nationwide.\n\n\nFirst Name\n\n\nLast Name\n\n\n\nPrimary Email Address \n\n\nI am aLAM PatientMedical Professional (LAM Treating Physician\, LAM Investigator\, Scientist\, etc.)Other (Spouse\, Parent\, Sibling\, Friend\, Nurse\, Respiratory Therapist\, etc)\n\n\nThis is the first time I have signed-up for an educational event presented by The LAM Foundation.YesNo\n\n\nAre you registered with The LAM Foundation?YesNo\n\n\nNickname \n\n\nDate of Birth (MM/DD/YYYY)\nPlease enter month\, day and 4-digit year.\n\n\n\nI was diagnosed withSporadic LAMTuberous Sclerosis (TSC) LAMUnknown\n\n\nDate of Diagnosis (MM/YYYY)\nPlease enter ONLY month and year.\n\n\n\n I am aLAM Treating PhysicianLAM Clinical Trial CoordinatorLAM / TSC / Other Scientist\n\n\nPrimary Institution\n\n\nEducational Degrees\n\n\n My connection to LAM isFamily - Partner / Spouse of LAM PatientFamily - ParentFamily - SiblingFamily - Son or DaughterFamily - otherFriend of LAM PatientFriend of the FoundationNurse / PT / RT\n\n\nThe LAM Patient I am connected to is\nFirst and Last Name\n\n\n\n\nMy Communication Preferences\n\nHow did you hear about The LAM Foundation? (select all that apply)Internet SearchReferral from physicianReferral from friend or familyLAMMIES Facebook pageA social media postOther\n\n\nWhat other way did you hear about us?\n\n\nWhat types of emails would you like to receive from The LAM Foundation? Currents - our monthly Community eNewsletterScientific and Research UpdatesUpcoming Community Events\, Educational Meetings\, and WebinarsHow-to Support The LAM FoundationNONE - I wish to receive no emails from The LAM Foundation\n\n\nNOTE: If no communication preferences are indicated above\, The LAM Foundation will automatically subscribe you to the general email list.\n\nError\n\nThe LAM Foundation is committed to protecting the privacy of your information and does not sell\, rent\, or lease its lists to third parties. Your information will be used solely for the purposes of communication from the Foundation and its representatives. \n\nOther Email \n\n\nWork Phone \n\n\nMobile Phone \n\n\nMobile Phone \n\n\nHome Phone  (Land Line)\n\n\nPreferred PhoneWorkMobileHome (Land Line)\n\n\n\nPrimary Address\n\n My primary address isHomeWorkOther2nd Home\n\n\nStreet\n\n\nCity\n\n\n\nState/Province\n\n\nZip Code\n\n\n\nCountry (2-letter abbreviation)\n\n\n\n2nd Address\n\nI have a second Address that isHomeWorkOther2nd Homeno 2nd address\n\n\nOther Street\n\n\nOther City\n\n\nOther State/Province\n\n\nOther Zip Code\n\n\nOther Country (2-letter abbreviation)\n\n\nPlease submit your questions on this topic in advance by November 14 to patientservices@thelamfoundation.org.\n\nBy registering for this event\, I consent to registering with The LAM Foundation and receiving email notifications regarding this and future educational and community events.I agree.\n\n\nAs a medical professional\, I'd like to receive email notifications about future LAM educational events and scientific/research upates.Yes - sign me up.
URL:https://www.thelamfoundation.org/event/lamposium-in-your-living-room-7-8-pm-et/
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20261117
DTEND;VALUE=DATE:20261119
DTSTAMP:20260904T145245Z
CREATED:20260904T145148Z
LAST-MODIFIED:20260904T145245Z
UID:2877-1794873600-1795046399@www.thelamfoundation.org
SUMMARY:The Zebra Summit
DESCRIPTION:Join Us at The Zebra Summit on November 17–18 at Children’s Mercy Research Institute. \nThe Zebra Summit is a two-day conference bringing together patients\, families\, researchers\, and clinicians who understand the rare disease journey firsthand. \nThis inaugural event is more than a conference\, it’s the start of a community. Connect with other rare patients and families\, hear directly from leading rare disease researchers and clinicians\, and be part of building a center of gravity for rare disease care and innovation right here in our region. \nJoin 200+ attendees for two days of connection\, awareness\, and collaboration\, because rare is stronger together. \nLearn More about the inaugural Zebra Summit.
URL:https://www.thelamfoundation.org/event/the-zebra-summit/
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