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Our Mission: 
The LAM Foundation urgently seeks safe and effective treatments, and ultimately a cure, for lymphangioleiomyomatosis (LAM) through advocacy and the funding of promising research. We are dedicated to serving the scientific, medical and patient communities by offering information, resources and a worldwide network of hope and support.

Current News

LAMposium 2015

SAVE THE DATE:  March 27-29, 2015

CURRENTS
September 30, 2014

Click here to read this month's issue of CURRENTS.

LAM Biomarker Innovation Summit
November 13-15, 2014

Click here to learn more about the LAM Biomarker Innovation Summit.

Voices of LAM
August 29, 2014

To respond to the changing needs of our patients and families, The LAM Foundation launched the “LAM Story Booth” at LAMposium 2014 in Chicago.

LAM patients, families, scientists and clinicians have shared interactive stories about their personal experiences with LAM to help create the "Voices of LAM."

Our plan is to add 3-4 new recordings each month, eventually building a library of recordings for everyone in the LAM community.

Click here to view these stories.

Planning A Fundraiser

It’s fun and easy to plan a fundraiser to benefit the Foundation. Start by downloading and filling out The LAM Foundation’s Independent Fundraising Packet and Budget Form. Then send both items to Vel Hux at vhux@thelamfoundation.org or Kerri Morgan Byrnes at kbyrnes@thelamfoundation.org.

We will review your information and contact you within 3 to 5 business days. If you have any questions regarding fundraising or the forms, contact us at 513.777.6889 or at vhux@thelamfoundation.org or kbyrnes@thelamfoundation.org.

LAMposium 2014

Click here to view this year's patient sessions.

LAMposium Picture Slideshow

Click here to view the LAMposium picture slideshow. This is a large file so it may take a some time to load.

Personal Journeys With LAM

The LAM Foundation is pleased to offer LAM patients an electronic copy of Personal Journeys With LAM, a collection of stories written by women who are living with LAM.  It’s our hope that you’ll feel inspired as you read these personal stories of courage and determination.  

An electronic copy was emailed to all LAM patients who have given the Foundation their email address. If you did not receive this email and would like to have an electronic copy of Personal Journeys With LAM please email the Foundation with your request at info@thelamfoundation.org.

Please note:  Personal Journeys With LAM is to be considered private and confidential.  Therefore, it’s very important that you not share your copy with anyone (family, friends, etc.) or post it on any social media. Please be respectful to those who have written and shared their personal story so that you can feel connected to others and feel less alone in your own journey with LAM.

Emergency Room Quick Facts Card for LAM

The LAM Foundation is excited to offer LAM patients an easy way to provide doctors in the ER with information about LAM.  We have designed a small card (the size of a typical business card) that is easy to carry and contains helpful information that you can share with the doctor when you go to an ER.  The card can be inserted into a luggage tag and attached to a purse for easy reference.

Click here to print as many cards as you’d like using Avery 5881 business cards (perforated) or on card stock (hand-cut to size).  You can also email the Foundation and request that a card be sent to you.

 


Disclaimer:

Neither The LAM Foundation nor any staff member is qualified or intended to serve as a source of medical advice. All material contained or referenced on this website, including health- or medical-related materials, is for informational purposes only. Always seek the advice of a qualified health provider with any questions you may have regarding a medical condition.

The LAM Foundation attempts to verify the accuracy of information regarding LAM Clinics and health care providers prior to posting on this website. The Foundation does not guarantee and is not responsible for the accuracy of information or the quality of medical care received at any institution, clinic, or by a medical provider listed on our website. The LAM Foundation is not liable for any damages that may result from the use of this site.

If you think you may have a medical emergency, call your doctor or 911 immediately.


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