Newly Diagnosed

If you have been diagnosed with LAM, you are probably feeling overwhelmed by the news. We understand and want you to know that you have come to the right place. The LAM Foundation is here for you, and will help you find expert care, connect to others living with LAM, and access the most up-to-date information about scientific and clinical advancements. Our mission is to support you, offering hope and resources when you need it most.

Patient Checklist

The LAM Foundation offers access to the most up-to-date scientific and clinical information about LAM as well as a community of support and hope. We have created the checklist below to help patients make decisions about their very own LAM journey.

  1. REGISTER with The LAM Foundation

    By registering with The LAM Foundation, patients will have access to many resources that will help them learn about LAM and what a LAM diagnosis means. Patients will also be able to stay up to date on what’s happening in LAM research and the LAM community through our e-newsletter, currents, and our blog.


    Contact our Patient Services department by calling (513) 777-6889 or emailing The LAM Foundation team is available to talk with you and answer your questions.

  3. Find a LAM CLINIC nearby

    Because LAM is so rare, it’s often difficult to find a doctor who has experience with the disease. By finding a LAM clinic nearby, patients will be able to see an expert who can give the best advice on individualized treatment.


    This interactive educational webinar series features a broad range of topics presented by LAM experts. These sessions offer a remarkable opportunity to interact with clinicians, scientists, patients, and other members of our global LAM community. Registration is free and open to all. Click the link to view recordings of previous presentations.

  5. Read The LAM HANDBOOK

    This resource, written by LAM patients, will answer many of the questions about LAM.

  6. Explore Additional PATIENT RESOURCES

    Patient support is a major part of The LAM Foundation’s mission. There are several ways that patients living with LAM can connect and share their experiences, as well as learn more about LAM.