Video Library

Since its inception, The LAM Foundation has invested over $18 million in LAM research with one of the biggest breakthroughs resulting in a current treatment. Progress and hope remain with The LAM Foundation’s current research portfolio of 15 active grants. Dr. Vera Krymskaya, Scientific Director for The LAM Foundation gave us the roadmap for LAM research as we continue to move forward in our fight for a cure.

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LAM specialist Dr. Rob Kotloff shared the journey to finding rapamycin/sirolimus as a treatment for LAM and shared up-to-date information on what we know about its management and effectiveness. Whether you are a LAM patient currently on sirolimus or are wondering whether you should be, Dr. Kotloff’s expertise in explaining science in lay terms as well as his knowledge of treating women with LAM is an opportunity not to be missed.

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To mark this important moment, members of our Board of Directors shared their reflections on what this refreshed mission means to them—and why it matters now more than ever.

Their perspectives speak to the heart behind these words and the responsibility we share to turn this mission into meaningful action.

Our mission comes to life not only through research milestones and programs, but through the people who make up The LAM Foundation community—patients, families, clinicians, researchers, donors, and advocates.

As we look to the future, this refreshed mission will continue to guide our work—fueling new discoveries, strengthening compassionate care, and amplifying voices until better treatments and ultimately a cure are within reach.

We invite you to reflect and share: What does The LAM Foundation mean to you? Please email info@thelamfoundation.org with your response. Your voice is an essential part of the mission we carry forward together.

Thank you for being part of The LAM Foundation community and for helping bring this mission to life.

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Please join us for this interactive discussion with post-transplant patients as they reflect on their experiences and the things they wish they’d known along the way.

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Watch 2025 International LAM Research Conference Co-Chairs, Dr. Elizabeth Henske and Dr. Simon Johnson, as they share conference highlights, key takeaways, and what has them excited for the future of LAM research.

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