The latest in LAM research
Although the FDA’s approval of sirolimus for lymphangioleiomyomatosis was a major breakthrough in treating the disease, the drug does not work for all LAM patients.
2023 Regional TSC & LAM Conference Series
The TSC Alliance® and The LAM Foundation will join together once again to co-host four Regional TSC & LAM Conferences in 2023 aimed at individuals
World Pneumothorax Day
June 30 is World Pneumothorax Day and a great opportunity to educate yourself and your loved ones about what is often a painful and debilitating
Why I ride the Million Dollar Bike Ride
Cycling is a mix of disciplines: mountain, road, BMX, cross country, downhill, touring, fat tire, tandem, leisure/urban, cycle cross, and the latest new thing, gravel.
COVID-19 Updates
COVID-19 continues to persist in the community at a low level, mainly in the form of the Omicron variant. The Omicron variant is highly transmissible.
A Conversation with Bonnie Wang, MD
Dr. Bonnie Wang is a clinical assistant professor in internal medicine and pulmonary and critical care at the University of Michigan. Her clinical and research areas of
A Rare Public Health Challenge
Most public health challenges may seem obvious. The COVID-19 pandemic, for example, swept the globe and in some way touched the lives of everyone. But
Complementary Medicine for LAM and Beyond
Our long-awaited attendance at our first LAMposium was truly an experience to remember. Being a loved one of a woman with LAM and a physical
LAMposium in your Living Room recording is now available
Thank you for your interest in our recent LAMposium in Your Living Room (LYLR) educational webinar, “Henske & Hammes Research Report: Highlights from the 2022
I couldn’t “fix” LAM, so I’m raising money for those who can
In November 2020, my 24-year-old daughter Kristin was diagnosed with LAM. As a mother, I’m used to fixing problems for my children. But this was
Where there once was fear, there is now hope
In 2020, Meagan Knight was a young newlywed, working as a nurse in a hospital COVID-19 unit when her lungs collapsed. No, it wasn’t COVID-19.
A Gift More Than 40 Years in the Making
Wendy Sellers, a 30-year-old wife and mother, had been struggling for months with unexplained lung issues before she finally received a LAM diagnosis. It was the early 1980s, when doctors knew little
Legacy for a Sisterhood
Shellie Owens, a longstanding supporter and volunteer for The LAM Foundation, never let her LAM diagnosis stop her from doing everything she could to support her fellow LAM
Fighting for a LAM Diagnosis and Now a Cure
For seven years, I continually searched for answers because I knew something was wrong with my health. I had a hard time breathing and started
Life with LAM
Trust & Estate Administrator | Retired, Falls Church, VA Age: 64 | Diagnosed at age: 45 “Living with LAM has been an interesting journey! Although not
Life with LAM
Marketing Professional | Founder, Accessible Itineraries | Certified Professional Coach, Brooklyn, New York Age: 42 | Diagnosed at age: 30 “I was diagnosed with LAM six
Life with LAM
Stay at Home Mom, Newcastle, NSW Australia Age: 39 | Diagnosed at age: 26 “Being diagnosed at the age of 26 was very mentally challenging for
How a LAM diagnosis changed a 17-year-old’s life
When spring arrives, most high school seniors are gearing up for graduation, prom, and going away to college. Not so for 17-year-old Adrianaliz, who was
How a LAM Patient Became a Scientist to Help Find a Cure
Beth Daugherity had been suffering lung and breathing issues for years. After a lung collapse and months of pain, she consulted several doctors to figure
Sirolimus Gave Stephanie a Second Chance
Two years ago, Stephanie Weber’s life was turned upside down. This active mom of three was struggling to breathe. She could barely even care for her Golden Retrievers. Stephanie ended up in the ER with a
Active Mother of Three Advances LAM Research
Meet Carol Webber. Carol is always on the move as a mom of three. She was diagnosed with LAM in 2018 and was concerned she
Drawing a Circle of Hope
A resource offered by The LAM Foundation, the Circle of Hope Transplant Support Program was established in 2018. The program connects LAM patients who are considering lung
Life with LAM
Cosmetologist | Mexico “Since my LAM diagnosis, my life has changed completely. From leading to my divorce – because I was misunderstood by my partner
Life with LAM
Lung Transplant Recipient | Canada “Living with LAM has been eye-opening. One day you think you’re fine, and the next day you have a rare
Life with LAM
Sworn Translator and Interpreter | Guatemala City, Guatemala “I was diagnosed with LAM when I started to feel short of breath. Nothing else had happened
Life with LAM
Talent Acquisition & Workforce Generalist | Seaside, California “I remember having chest pains about a year before my actual diagnosis and experienced shortness of breath
Single cell RNA sequencing provides insights into LAM and a potential link to COVID-19
Single cell RNA sequencing (scRNA-seq) is a technology that allows the analysis of transcriptome of individual cells; that is, to measure and analyze the messenger
Finding Hope Through LAM Community Engagement
I was diagnosed with LAM and probable Tuberous Sclerosis Complex (TSC) in 2019 at 26 years old, when I was working three jobs and attending
The Future of Monitoring Lung Function in LAM
As all LAM patients are well aware of, serial lung function testing performed in a physician’s office is the current standard of care to assess
More Ways to Give: Qualified Charitable Distributions from IRAs
Are you or someone you know over the age of 70 ½ and looking for more ways to give to The LAM Foundation? You may
Pulmonary Lymphangioleiomyomatosis (LAM): A Monogenic Neoplasm That Provides a Window into Cancer
by Vera Krymskaya, PhD, MBA, Professor of Medicine, Perelman School of Medicine, University of Pennsylvania The LAM community including LAM researchers, clinicians and patients has
Management of Pneumothorax – What is the Best Strategy?
By Sandra Starnes, MD, Associate Professor of Surgery, John B. Flege Chair in Cardiothoracic Surgery, University Of Cincinnati College Of Medicine Pneumothorax (collapsed lung from