Partners & Memberships

The LAM Foundation has a longstanding commitment to collaboration with our partners in the health care space—to expand LAM awareness, educate our community, and accelerate leading-edge LAM research.

American College of Chest Physicians (CHEST)

To champion the prevention, diagnosis, and treatment of chest diseases through education, communication, and research.

American Lung Association

The mission of the American Lung Association is to save lives by improving lung health and preventing lung disease.

American Thoracic Society (ATS)

To accelerate global innovation in the advancement of respiratory health through multidisciplinary collaboration, education, and advocacy.

 ATS Public Advisory Rountable (PAR)

The ATS Public Advisory Roundtable (ATS PAR) is a partnership with organizations representing persons affected by respiratory diseases, sleep-related conditions, or related critical illnesses. ATS collaborates with them to advance shared educational, research, patient care, and advocacy goals.

 Global Genes

The Rare Foundation Alliance is a coalition of over 300 rare disease organizations that understand that together, we are more powerful. Global Genes Foundation Alliance partners exchange best practices and share experiences to drive better outcomes for the entire rare disease community.

 National Disease Research Interchange (NDRI)

The National Disease Research Interchange is a not-for-profit organization with over 40 years of experience providing human organs and tissue from a diverse pool of normal and diseased donors to support the advancement of biomedical research.

 National Health Council

The mission of the National Health Council is to provide a united voice for people with chronic diseases and disabilities and their family caregivers. The LAM Foundation has been accredited via the National Health Council since 2002.

 National Organization of Rare Disorders (NORD)

NORD is a patient advocacy organization dedicated to individuals with rare diseases and the organizations that serve them. NORD, along with its more than 230 patient organization members, is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and patient services.

 Orphan Disease Center, University of Pennsylvania

The Orphan Disease Center will develop transformative therapies using platform technologies that can be deployed across multiple rare diseases. The ODC emphasizes disorders with substantial unmet needs independent of their incidence and will strive to assure access to patients of all populations.

 TSC Alliance

The TSC Alliance is the only national voluntary health organization for the genetic disorder known as tuberous sclerosis complex (TSC). They actively advocate in government relations, striving to increase the visibility of TSC in Congress and within the National Institutes of Health (NIH). The organization’s goal is to engage government institutions in basic scientific and clinical research on causes and remedies for TSC.

 Worldwide LAM Patient Coalition

The WLPC is an excellent avenue for member organizations to collaborate on research and support clinical trial recruitment so that each country’s organization can continue to grow individually. This international movement to end LAM is a combination of many great minds working together for a cure.