LAMposium 2015

What is LAMposium?  It’s a one-of-a-kind,3-day conference that offers patients the chance to learn about LAM and to connect with one another.  At the same time, physicians and scientists meet to share knowledge, exchange ideas, and collaborate on how to advance LAM research in the coming year

LAMposium is an annual meeting held on a weekend (Friday, Saturday and Sunday) each spring.  LAM patients and their family and friends have the chance to attend educational sessions facilitated by experts in their field. Each session allows time at the end for questions based on the session topic.

LAMposium is an opportunity to spend time with other women and family members who can relate to what you’re experiencing.  A patient described her LAMposium experience by saying “I always learn something new and interesting at LAMposium, whether it’s related to the science and research behind the disease, or how someone else is handling a certain issue.  It’s always good to connect with other women who share the same struggles and hopes. LAMposium is always a very positive experience!

Below are the patient sessions presented at LAMposium 2015:

Presenter

Title


PowerPoint (PDF) 
Video


Jeffrey Swigris, DO, MS

Incorporating Patients – Centered Outcomes into LAM Research

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Melaney Parrish

Diagnosed with LAM in 2014

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George Pappas, MD

LAM 101

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Elizabeth Henske, MD

Emerging Treatments: mTOR Inhibitors and Beyond

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Dan Dilling, MD

Lung Transplant: From Referral through Recovery

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Panel:
Frank McCormack, MD, Conference and Scientific Chair
Tony Eissa, MD
Vera Krymskaya, PhD, MBA, Basic Science Chair

Thomas Lowder, PhD
Joel Moss, MD, PhD
Lisa Young, MD
LAM Clinical Research Update: We Are Stronger Together


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Andrew Salata

Planning for Social Security

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Robert Kotloff, MD

Risks and Benefits of Drug Therapy for LAM

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Frank McCormack, MD, Conference and Scientific Chair Awards Banquet Address: Twenty Years of Progress in LAM- What’s Next? Watch Video

Rachael Dunn, RD, LDN

Nutrition Intervention in Pulmonary Disease: Optimizing the LAM Patient

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Steven Ruoss, MD

Chest Pain and LAM: Who, When, Where, and Why

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David Schweighoefer, Esq.

Access to Treatment: Barriers and Strategies

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Barbara Rife, BS, RCP

Knowing How My Lungs Work Will Allow Me to Breathe Better

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Emily Gilbert, MD

What Do Your Test Results Mean to You and Your Doctor?

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Lisa Larkin, MD

LAM, Menopause and Intimacy

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Ni-Cheng Liang, MD

Integrative Medicine: A Holistic Approach For You

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Kathleen Hoeger, MD Facing Fertility when Estrogen is Not an Ally: Minimizing Estrogen Exposure in Fertility Treatments Download
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Moderator:
Geraldine Finlay, MD, LAM Board Member

Panel:
Lisa Larkin, MD, University of Cincinnati Medical Center
MeiLan Han, MD, MS, University of Michigan Hospital
Kathleen Hoeger, MD, MPH, University of Rochester Medical Center
Steven Hammes, MD, PhD, University of Rochester Medical Center

Joint Session Panel Discussion:

Women’s Health Forum: Hormones and LAM Across a Lifetime

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Jay Ryu, MD

Complications Related to Pneumothorax and Chylous Fluid Accumulation

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Panel:
Frank McCormack, MD, Conference and Scientific Chair
Vera Krymskaya, PhD, MBA, Basic Science Chair
Jeffrey Swigris, DO, MS, Clinical Science Chair

Research Conference Summary and Panel Discussion

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