LAMposium 2014

What is LAMposium?  It’s a one-of-a-kind,3-day conference that offers patients the chance to learn about LAM and to connect with one another.  At the same time, physicians and scientists meet to share knowledge, exchange ideas, and collaborate on how to advance LAM research in the coming year.

LAMposium is an annual meeting held on a weekend (Friday, Saturday and Sunday) each spring.  LAM patients and their family and friends have the chance to attend educational sessions facilitated by experts in their field. Each session allows time at the end for questions based on the session topic.

Orientation for first time attendees begins on Friday morning followed by a kickoff meeting. During the afternoon, all conference attendees (patients, family, friends, physicians, and scientists) meet for a joint session to review and discuss current research updates. Afterwards, patients get together for roundtable discussions to talk about topics such as oxygen, pregnancy, pneumothorax, lung transplant, etc. Roundtable discussions for family members and friends are offered at the same time.

Sessions on Saturday typically run from 8:30AM to 4:30PM and include topics such as: Living With a Chronic Disease, Pneumothoraces & Pleurodesis, Pain Management, Pregnancy, Managing Kidney Tumors (AMLs), Oxygen: Why, When & How Much, LAM & Tuberous Sclerosis, Nutrition and Dietary Supplements, LAM & Cancer, Lung Transplantation: Before & After, and Exercise as a Prescription.

On Saturday patients also have the opportunity to schedule a 20 minute, one-on-one meeting with a doctor to discuss health topic(s)of their choice. Doctors available to meet with patients usually include a neurologist, nephrologist, psychologist and several pulmonologists.   

On Saturday evening all conference attendees are invited to attend the Breath of Hope Gala which includes a gourmet dinner, a live and silent auction, entertainment, dancing, and a chance to just relax and have fun.  

Sessions on Sunday begin at 9:00AM and end at noon.  The final session of the conference is an overview of the sessions conducted in the scientific part of the conference.  The chairs of the scientific sessions explain current research strategies, what the physicians and scientists learned from their discussions, and possible future directions in LAM research.

LAMposium is an opportunity to spend time with other women and family members who can relate to what you’re experiencing.  A patient described her LAMposium experience by saying “I always learn something new and interesting at LAMposium, whether it’s related to the science and research behind the disease, or how someone else is handling a certain issue.  It’s always good to connect with other women who share the same struggles and hopes. LAMposium is always a very positive experience!

Below are the patient sessions presented at LAMposium 2014:

Presenter

Title


PowerPoint (PDF) 
Video


Chris Austin, MD Friday Night Awards Banquet Keynote Speaker: NCATS Missions Watch Video
Ann Bregman, PsyD

Compassion for the Caregiver and the Caretaker

Download

Ann Bregman, PsyD

The Mindful Way: A Shared Breath of Hope

Download
Watch Video

Charles Burger, MD

Oxygen: Why and When

Download
Watch Video

Terrence Demos, MD

The Diagnostic Language of LAM

Download

Dan Dilling, MD

Is this LAM or Something Else?

Download
Watch Video

Sherrie Evenson, MS

Your Daily Dose: Prescribing Movement as Medicine

Download
Watch Video

Anita Indrelie, RCP

Pulmonary Rehab: Exercise Your Potential

Download
Watch Video

Maryl Kreider, MD

Rapamycin: Everything You Need to Know

Download
Watch Video

Cheryle Lichtenberger

Emotional Freedom Techniques (Tapping)

Download

Sue Morter, DC

Diet and Nutrition

Download
Watch Video

Sue Morter, DC

Yoga and Energy Medicine

Download

George Pappas, MD

LAM 101: The Basics

Download
Watch Video

George Pappas, MD

The Importance of Clinical Trials

Download
Watch Video

Stephen Ruoss, MD

Managing Pneumothorax/Chylothorax

Download
Watch Video

Jay Ryu, MD My LAM is Not the Same as Your LAM Download
Watch Video
Reuben Shaw, PhD

Bench to Bedside: mTOR, Metabolism, and Metformin

Download
Watch Video

MeiLan Han, MD, & Marc Achen, PhD

Overview of Scientific Sessions

Download
Watch Video