The LAM Foundation

Posted on May 14, 2021

A Million Ways to Participate in The Million Dollar Bike ...

The LAM Foundation Easy Breathers Cycling Team, led by LAM patients...Read more

Posted on May 14, 2021

Finding Hope Through LAM Community Engagement

I was diagnosed with LAM and probable Tuberous Sclerosis Complex (TSC)...Read more

Posted on May 07, 2021

The Future of Monitoring Lung Function in LAM

As all LAM patients are well aware of, serial lung function testing...Read more

Posted on April 22, 2021

Finding our New Normal: The Rise of Telemedicine for LAM

Telemedicine – the use of video technology to offer “virtual visits”...Read more

Posted on April 16, 2021

Zooming-In on What Matters: Education. Connection. Hope.

March 2020. LAMposium as we know it is cancelled. May 2020. LAMposium...Read more

Posted on April 12, 2021

Join Us for a COVID-19 Vaccine Update Town Hall on April 20

The LAM Foundation has partnered with the Tuberous Sclerosis...Read more

Posted on April 08, 2021

Navigating Emotional Complexity During a Pandemic

I have always loved a good adventure. Part of it is the challenge....Read more

Posted on March 17, 2021

Endowed Professorship for LAM Research Created at UC Coll...

Gifts totaling $1 million will support a new LAM Foundation...Read more

Posted on February 12, 2021

The LAM Foundation Announces New Leadership

After 25 years of devoted service to women with LAM, their families,...Read more

Posted on May 12, 2020

Research Survey for Rare Disease Patients about Impacts ...

Rare disease patients or their caregivers are invited to complete a...Read more

Posted on April 30, 2020

Announcing Virtual Educational Series: LAMposium In Your ...

The LAM Foundation is bringing LAMposium directly into your living...Read more

Posted on April 28, 2020

The LAM Foundation Joins #GivingTuesdayNow in Global Day ...

#GivingTuesdayNow is an opportunity for people around the world to...Read more

Posted on March 16, 2020

Concerns About the Coronavirus (COVID-19) - A Portuguese ...

Esse documento foi traduzido em 13/3/2020 por Maria Clara Castellões...Read more

Posted on March 05, 2020

2020 International LAM Research Conference & LAMposium CA...

It is with deep regret that The LAM Foundation has made the decision...Read more

Posted on March 04, 2020

Concerns About the Coronavirus (COVID-19) Updated 03.18.20

The LAM Foundation is closely monitoring the rapidly evolving...Read more

Posted on January 13, 2020

The LAM Foundation 2019 Achievements

With the generous support of donors, volunteers, and the broader LAM...Read more

Posted on January 06, 2020

The LAM Foundation 2019 Grant Awardees

The LAM Foundation is proud to announce our 2019 Grant Award winners,...Read more

Posted on August 09, 2019

Science Friday: LAM Patients Help Power New Research

At the 2016 RLDC and LAMposium held in Cincinnati, Ohio, twenty-two...Read more

Posted on July 31, 2019

Save the Date: Breath of Hope Day of Giving!

Save The Date: Thursday, September 12, 2019. That’s the date of our...Read more

Posted on July 31, 2019

Welcoming New Faces to The LAM Foundation

We are very excited to be welcoming a new member to The LAM Foundation...Read more

Posted on July 24, 2019

Fundraising Simplified: Francine Kalogerou

Francine Kalogerou was diagnosed with LAM in February 2019 and instead...Read more

Posted on July 16, 2019

Fundraising Simplified: Elizabeth Hardy

For her birthday, Elizabeth Hardy decided that instead of receiving...Read more

Posted on July 01, 2019

Genetics Research into LAM Leads to a New Discovery

Genetic research sponsored by The LAM Foundation has led to a new...Read more

Posted on May 28, 2019

Letter-Writing for LAM: The Rocco Family's Fundraiser

Our family became involved with The LAM Foundation in July of 2017....Read more

Posted on March 28, 2019

Spaghetti for LAM: Fundraising Q&A with Alyssa Ciano

Alyssa Ciano is a high school student from Senora, California who came...Read more

Posted on March 26, 2019

A Mindset Shift: Embracing the Unknown

I’m not saying this is the easiest thing to do. I’m just taking it one...Read more

Posted on March 25, 2019

Drawing a Circle of Hope

A resource offered by The LAM Foundation, the Circle of Hope...Read more

Posted on January 31, 2019

From $500 to $5,000: Rachel Faleide’s Phenomenal Facebook...

In August 2018, Rachel Faleide, MSN, FNP-C was diagnosed with LAM. In...Read more

Posted on December 21, 2018

2018 Advances in LAM

With your support, The LAM Foundation continues to thrive as a source...Read more

Posted on December 19, 2018

More Ways to Give: Qualified Charitable Distributions fro...

Are you or someone you know over the age of 70 ½ and looking for more...Read more

Posted on November 30, 2018

Short-Term Goals, Long-Term Effects: Outcomes of the 2017...

How can we improve the lives of LAM patients in five years or less?...Read more

Posted on November 29, 2018

Running for LAM: Q&A with Kat Steele

Kat Steele is a LAM patient who commemorated the 5-year anniversary of...Read more

Posted on September 25, 2018

Q&A: The MILED Trial

Published 9/25/2018The MILED Trial is a currently enrolling study led...Read more

Posted on August 03, 2018

We Need Your Help to Fund LAM Research

"The LAM community should be incredibly proud of the Foundation’s...Read more

Posted on July 23, 2018

Single Cell RNA Sequencing Allows Comprehensive Study of ...

Studying LAM biological behavior in the laboratory is difficult...Read more

Posted on March 29, 2018

Why We Ride: Million Dollar Bike Ride

Joe & Mary Van Brackel share a bit about their experience...Read more

Posted on March 09, 2018

HOPE 2.0

CEO, Sue Sherman talks about the significance of the recent Patient...Read more

Posted on December 27, 2017

2017 Was a Good Year!

With your support, The LAM Foundation continues to grow and be both a...Read more

Posted on November 21, 2017

A Phase II Clinical Trial of an Aromatase Inhibitor for P...

Lymphangioleiomyomatosis (LAM) predominantly affects women and can...Read more

Posted on November 21, 2017

Lobbying for LAM

We often hear about the power of lobbyists/advocates and their ability...Read more

Posted on November 21, 2017

Management of Pneumothorax – What is the Best Strategy?

Pneumothorax (collapsed lung from accumulation of air between the lung...Read more

Posted on November 21, 2017

Pulmonary Lymphangioleiomyomatosis (LAM): A Monogenic Ne...

The LAM community including LAM researchers, clinicians and patients...Read more

Posted on November 21, 2017

The Gift of New Lungs and New LAM Cell Discoveries

In early July, LAM Patient, Linda Grunberg received a much-anticipated...Read more

Posted on September 29, 2017

Rare Disease Advocates at Work!

Global Genes SummitDevelopment Manager, Katie Jensen recently traveled...Read more

Posted on September 08, 2017

Anyone Can Be a Fundraiser

From the start, Kristy and I committed ourselves to giving all we...Read more

Posted on September 06, 2017

What is the Patient Benefit Conference?

Registration for the Patient Benefit Research Conference is officially...Read more

Posted on July 31, 2017

Advocacy Update: NIH Research Funding

Since our time on Capitol Hill in late June, there has been much...Read more

Posted on June 24, 2017

Presentations at the 2017 #LAMposiumDC

Check out all the presentations from LAMposium DC. ...Read more

Posted on June 16, 2017

The New Zealand LAM Charitable Trust

The New Zealand LAM Charitable Trust was founded in 1999 by Bronwyn...Read more

Posted on June 16, 2017

LAM Netherlands

LAM-Netherlands was founded in 2010 by Ine van Meijeren and...Read more

Posted on June 09, 2017

FLAM Association - France Lymphangioléiomyomatose

FLAM Association (France Lymphangioléiomyomatose) was founded in July...Read more

Posted on June 09, 2017

About Alambra

Alambra, the Brazilian association for Lymphangioleiomyomatosis...Read more

Posted on June 02, 2017

LAM Academy

LAM Academy is a joint project between the Department of Respiratory...Read more

Posted on March 27, 2017

LAMposium DC or LAMposium LA…or Both!

Can't decide whether to attend LAMposium DC, LAMposium LA or both?...Read more

Posted on March 24, 2017

Guest Blog: A 90’s Prom Fundraiser

My biggest fear when I was growing up (other than sharks of course)...Read more

Posted on March 24, 2017

What I Learned on Capitol Hill

I learned a lot of great lessons during my time ‘on the Hill’. I...Read more

Posted on March 24, 2017

LAM & TSC Patient-Focused Drug Development Meeting with t...

The TS Alliance, in partnership with The LAM Foundation, is sponsoring...Read more

Posted on March 17, 2017

LAMposium Means Hope

After several months of suffering from shortness of breath, I asked a...Read more

Posted on March 17, 2017

If You Could Ask an Expert to Solve Your Most Vexing Issu...

The obvious answer to this question is: a cure. A cure would negate...Read more

Posted on March 17, 2017

Have Bike, Will Ride for LAM

Katherine Lu Hsu, talks about her experience at the UPENN Million...Read more

Posted on February 03, 2017

PARTICIPATE: LAM Research Survey

This letter is an invitation to participate in a research survey. The...Read more

Posted on February 03, 2017

Top 10 Ways YOU Can Accelerate LAM Research

Facilitating and funding research has always been the core mission of...Read more

Posted on January 25, 2017

Vaccinations for Patients with LAM

Vaccines are a wonderful addition to the world of medical care,...Read more

Posted on January 19, 2017

How is Your Exercise Routine Going So Far This Year?

Rebecca Crouch, DPT, MS, CCS talks about how the advantages of regular...Read more

Posted on January 17, 2017

Ask the Doctor: Are Generic Drug Products as Safe and Eff...

Gene Sullivan, MD, Emeritus Board Member of The LAM Foundation and...Read more

Posted on January 17, 2017

The Air We Breathe

This time last year, I discovered an opportunity to apply for a grant...Read more

Posted on October 19, 2016

Houston Education Gathering

LAM Liaison, Kathi Hawn, was so excited to share her LAMposium...Read more

Posted on October 19, 2016

Breath of Hope Gala

This year’s Breath of Hope Gala was a complete sell out with over 410...Read more

Posted on October 19, 2016

RLDC 2016 LAMposium

The 2016 Rare Lung Diseases Research Conference, LAMposium and Breath...Read more

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