The LAM Foundation

Posted on April 28, 2022

How a LAM diagnosis changed a 17-year-old's life

When spring arrives, most high school seniors are gearing up for...Read more

Posted on January 16, 2022

Save the Date: 2022 International LAM Research Conference...

The LAM Foundation is pleased to announce the 2022 International LAM...Read more

Posted on January 11, 2022

COVID-19 Updates for the LAM Community: Outcomes, Omicron...

Another new year comes with a new wave of COVID-19 infections brought...Read more

Posted on December 13, 2021

How a LAM Patient Became a Scientist to Help Find a Cure

Beth Daugherity had been suffering lung and breathing issues for...Read more

Posted on October 20, 2021

Matching Gifts: An Easy Way to Multiply Your Gift

When Jennifer Fujikawa was diagnosed with LAM in 2015, she reached out...Read more

Posted on October 14, 2021

A Gift More Than 40 Years in the Making  

Wendy Sellers, a 30-year-old wife and mother, had been struggling for...Read more

Posted on October 07, 2021

Legacy for a Sisterhood

Shellie Owens, a longstanding supporter and volunteer for The LAM...Read more

Posted on September 02, 2021

Sirolimus Gave Stephanie a Second Chance

Two years ago, Stephanie Weber’s life was turned upside...Read more

Posted on August 18, 2021

The LAM Foundation Statement on Additional Dose of COVID-...

On August 12, 2021 the United States Food and Drug Administration...Read more

Posted on August 16, 2021

Coronavirus Update: Town Hall Recording Available

Medical experts from the TSC Alliance and The LAM Foundation discussed...Read more

Posted on August 16, 2021

Active Mother of Three Advances LAM Research

Carol is always on the move as a mom of three. She was diagnosed with...Read more

Posted on August 15, 2021

Join us for the 2021 LAM Research Virtual Conference

Please join us for the 2021 LAM Research Virtual Conference,...Read more

Posted on July 30, 2021

Reuniting Our Unique Family

As COVID restrictions ease and family gatherings resume, many of us...Read more

Posted on July 23, 2021

COVID-19 Update for the LAM Community: Delta Variant, Vac...

Just when we thought we had overcome the threat of COVID-19, we are...Read more

Posted on July 08, 2021

Join us for our 2021 Day of Giving

Please join us on Thursday, September 9, 2021, for The LAM...Read more

Posted on June 25, 2021

Life with LAM | Brenda Esparza Solis

Cosmetologist | Mexico “Since my LAM diagnosis, my life has changed...Read more

Posted on June 18, 2021

Life with LAM | Beverly Holtzman

Lung Transplant Recipient | Canada“Living with LAM has been...Read more

Posted on June 11, 2021

Life with LAM | Maria Jose Salazar

Sworn Translator and Interpreter | Guatemala City, Guatemala “I was...Read more

Posted on June 04, 2021

Life with LAM | Yvonne Chambers

Talent Acquisition & Workforce Generalist | Seaside, California “I...Read more

Posted on May 28, 2021

Single cell RNA sequencing provides insights into LAM and...

Single cell RNA sequencing (scRNA-seq) is a technology that allows the...Read more

Posted on May 28, 2021

The LAM Foundation Statement on Masks and Social Distanci...

On May 16, 2021 the Centers for Disease Control and Prevention (CDC)...Read more

Posted on May 26, 2021

Worldwide LAM Awareness Month 2021

June has been designated Worldwide LAM Awareness Month (WWLAM) by the...Read more

Posted on May 21, 2021

Online Giving in the Digital Age

In the fall of 2019, The LAM Foundation launched a new online donation...Read more

Posted on May 19, 2021

You're Invited to LAMposium in Your Living Room on June 2...

This presentation will provide an overview of oxygen basics, assessing...Read more

Posted on May 14, 2021

A Million Ways to Participate in The Million Dollar Bike ...

The LAM Foundation Easy Breathers Cycling Team, led by LAM patients...Read more

Posted on May 14, 2021

Finding Hope Through LAM Community Engagement

I was diagnosed with LAM and probable Tuberous Sclerosis Complex (TSC)...Read more

Posted on May 07, 2021

The Future of Monitoring Lung Function in LAM

As all LAM patients are well aware of, serial lung function testing...Read more

Posted on April 22, 2021

Finding our New Normal: The Rise of Telemedicine for LAM

Telemedicine – the use of video technology to offer “virtual visits”...Read more

Posted on April 16, 2021

Zooming-In on What Matters: Education. Connection. Hope.

March 2020. LAMposium as we know it is cancelled. May 2020. LAMposium...Read more

Posted on April 12, 2021

Join Us for a COVID-19 Vaccine Update Town Hall on April 20

The LAM Foundation has partnered with the Tuberous Sclerosis...Read more

Posted on April 08, 2021

Navigating Emotional Complexity During a Pandemic

I have always loved a good adventure. Part of it is the challenge....Read more

Posted on March 17, 2021

Endowed Professorship for LAM Research Created at UC Coll...

Gifts totaling $1 million will support a new LAM Foundation...Read more

Posted on February 12, 2021

The LAM Foundation Announces New Leadership

After 25 years of devoted service to women with LAM, their families,...Read more

Posted on May 12, 2020

Research Survey for Rare Disease Patients about Impacts ...

Rare disease patients or their caregivers are invited to complete a...Read more

Posted on April 30, 2020

Announcing Virtual Educational Series: LAMposium In Your ...

The LAM Foundation is bringing LAMposium directly into your living...Read more

Posted on April 28, 2020

The LAM Foundation Joins #GivingTuesdayNow in Global Day ...

#GivingTuesdayNow is an opportunity for people around the world to...Read more

Posted on March 16, 2020

Concerns About the Coronavirus (COVID-19) - A Portuguese ...

Esse documento foi traduzido em 13/3/2020 por Maria Clara Castellões...Read more

Posted on March 05, 2020

2020 International LAM Research Conference & LAMposium CA...

It is with deep regret that The LAM Foundation has made the decision...Read more

Posted on March 04, 2020

Concerns About the Coronavirus (COVID-19) Updated 03.18.20

The LAM Foundation is closely monitoring the rapidly evolving...Read more

Posted on January 13, 2020

The LAM Foundation 2019 Achievements

With the generous support of donors, volunteers, and the broader LAM...Read more

Posted on January 06, 2020

The LAM Foundation 2019 Grant Awardees

The LAM Foundation is proud to announce our 2019 Grant Award winners,...Read more

Posted on August 09, 2019

Science Friday: LAM Patients Help Power New Research

At the 2016 RLDC and LAMposium held in Cincinnati, Ohio, twenty-two...Read more

Posted on July 31, 2019

Save the Date: Breath of Hope Day of Giving!

Save The Date: Thursday, September 12, 2019. That’s the date of our...Read more

Posted on July 31, 2019

Welcoming New Faces to The LAM Foundation

We are very excited to be welcoming a new member to The LAM Foundation...Read more

Posted on July 24, 2019

Fundraising Simplified: Francine Kalogerou

Francine Kalogerou was diagnosed with LAM in February 2019 and instead...Read more

Posted on July 16, 2019

Fundraising Simplified: Elizabeth Hardy

For her birthday, Elizabeth Hardy decided that instead of receiving...Read more

Posted on July 01, 2019

Genetics Research into LAM Leads to a New Discovery

Genetic research sponsored by The LAM Foundation has led to a new...Read more

Posted on May 28, 2019

Letter-Writing for LAM: The Rocco Family's Fundraiser

Our family became involved with The LAM Foundation in July of 2017....Read more

Posted on March 28, 2019

Spaghetti for LAM: Fundraising Q&A with Alyssa Ciano

Alyssa Ciano is a high school student from Senora, California who came...Read more

Posted on March 26, 2019

A Mindset Shift: Embracing the Unknown

I’m not saying this is the easiest thing to do. I’m just taking it one...Read more

Posted on March 25, 2019

Drawing a Circle of Hope

A resource offered by The LAM Foundation, the Circle of Hope...Read more

Posted on January 31, 2019

From $500 to $5,000: Rachel Faleide’s Phenomenal Facebook...

In August 2018, Rachel Faleide, MSN, FNP-C was diagnosed with LAM. In...Read more

Posted on December 21, 2018

2018 Advances in LAM

With your support, The LAM Foundation continues to thrive as a source...Read more

Posted on December 19, 2018

More Ways to Give: Qualified Charitable Distributions fro...

Are you or someone you know over the age of 70 ½ and looking for more...Read more

Posted on November 30, 2018

Short-Term Goals, Long-Term Effects: Outcomes of the 2017...

How can we improve the lives of LAM patients in five years or less?...Read more

Posted on November 29, 2018

Running for LAM: Q&A with Kat Steele

Kat Steele is a LAM patient who commemorated the 5-year anniversary of...Read more

Posted on September 25, 2018

Q&A: The MILED Trial

Published 9/25/2018, Updated 2/17/22The MILED Trial is a currently...Read more

Posted on August 03, 2018

We Need Your Help to Fund LAM Research

"The LAM community should be incredibly proud of the Foundation’s...Read more

Posted on July 23, 2018

Single Cell RNA Sequencing Allows Comprehensive Study of ...

Studying LAM biological behavior in the laboratory is difficult...Read more

Posted on March 29, 2018

Why We Ride: Million Dollar Bike Ride

Joe & Mary Van Brackel share a bit about their experience...Read more

Posted on March 09, 2018

HOPE 2.0

CEO, Sue Sherman talks about the significance of the recent Patient...Read more

Posted on December 27, 2017

2017 Was a Good Year!

With your support, The LAM Foundation continues to grow and be both a...Read more

Posted on November 21, 2017

A Phase II Clinical Trial of an Aromatase Inhibitor for P...

Lymphangioleiomyomatosis (LAM) predominantly affects women and can...Read more

Posted on November 21, 2017

Lobbying for LAM

We often hear about the power of lobbyists/advocates and their ability...Read more

Posted on November 21, 2017

Management of Pneumothorax – What is the Best Strategy?

Pneumothorax (collapsed lung from accumulation of air between the lung...Read more

Posted on November 21, 2017

Pulmonary Lymphangioleiomyomatosis (LAM): A Monogenic Ne...

The LAM community including LAM researchers, clinicians and patients...Read more

Posted on November 21, 2017

The Gift of New Lungs and New LAM Cell Discoveries

In early July, LAM Patient, Linda Grunberg received a much-anticipated...Read more

Posted on September 29, 2017

Rare Disease Advocates at Work!

Global Genes SummitDevelopment Manager, Katie Jensen recently traveled...Read more

Posted on September 08, 2017

Anyone Can Be a Fundraiser

From the start, Kristy and I committed ourselves to giving all we...Read more

Posted on September 06, 2017

What is the Patient Benefit Conference?

Registration for the Patient Benefit Research Conference is officially...Read more

Posted on July 31, 2017

Advocacy Update: NIH Research Funding

Since our time on Capitol Hill in late June, there has been much...Read more

Posted on June 24, 2017

Presentations at the 2017 #LAMposiumDC

Check out all the presentations from LAMposium DC. ...Read more

Posted on June 16, 2017

The New Zealand LAM Charitable Trust

The New Zealand LAM Charitable Trust was founded in 1999 by Bronwyn...Read more

Posted on June 16, 2017

LAM Netherlands

LAM-Netherlands was founded in 2010 by Ine van Meijeren and...Read more

Posted on June 09, 2017

FLAM Association - France Lymphangioléiomyomatose

FLAM Association (France Lymphangioléiomyomatose) was founded in July...Read more

Posted on June 09, 2017

About Alambra

Alambra, the Brazilian association for Lymphangioleiomyomatosis...Read more

Posted on June 02, 2017

LAM Academy

LAM Academy is a joint project between the Department of Respiratory...Read more

Posted on March 27, 2017

LAMposium DC or LAMposium LA…or Both!

Can't decide whether to attend LAMposium DC, LAMposium LA or both?...Read more

Posted on March 24, 2017

Guest Blog: A 90’s Prom Fundraiser

My biggest fear when I was growing up (other than sharks of course)...Read more

Posted on March 24, 2017

What I Learned on Capitol Hill

I learned a lot of great lessons during my time ‘on the Hill’. I...Read more

Posted on March 24, 2017

LAM & TSC Patient-Focused Drug Development Meeting with t...

The TS Alliance, in partnership with The LAM Foundation, is sponsoring...Read more

Posted on March 17, 2017

LAMposium Means Hope

After several months of suffering from shortness of breath, I asked a...Read more

Posted on March 17, 2017

If You Could Ask an Expert to Solve Your Most Vexing Issu...

The obvious answer to this question is: a cure. A cure would negate...Read more

Posted on March 17, 2017

Have Bike, Will Ride for LAM

Katherine Lu Hsu, talks about her experience at the UPENN Million...Read more

Posted on February 03, 2017

PARTICIPATE: LAM Research Survey

This letter is an invitation to participate in a research survey. The...Read more

Posted on February 03, 2017

Top 10 Ways YOU Can Accelerate LAM Research

Facilitating and funding research has always been the core mission of...Read more

Posted on January 25, 2017

Vaccinations for Patients with LAM

Vaccines are a wonderful addition to the world of medical care,...Read more

Posted on January 19, 2017

How is Your Exercise Routine Going So Far This Year?

Rebecca Crouch, DPT, MS, CCS talks about how the advantages of regular...Read more

Posted on January 17, 2017

Ask the Doctor: Are Generic Drug Products as Safe and Eff...

Gene Sullivan, MD, Emeritus Board Member of The LAM Foundation and...Read more

Posted on January 17, 2017

The Air We Breathe

This time last year, I discovered an opportunity to apply for a grant...Read more

Posted on October 19, 2016

Houston Education Gathering

LAM Liaison, Kathi Hawn, was so excited to share her LAMposium...Read more

Posted on October 19, 2016

Breath of Hope Gala

This year’s Breath of Hope Gala was a complete sell out with over 410...Read more

Posted on October 19, 2016

RLDC 2016 LAMposium

The 2016 Rare Lung Diseases Research Conference, LAMposium and Breath...Read more

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