We’re writing to ask for your help. A very important research grant for rare lung diseases was recently taken out of review by the NIH (National Institutes of Health). Why? Because of a small form—just one page out of 1,000—that wasn’t included on time. In the past, this form could be added later. But now, the rules have changed suddenly, and no one was warned.

This grant could have helped launch new clinical trials, develop better tests, and make it easier for LAM patients to take part in research from home. These changes would speed up discoveries and help bring new treatments to patients faster.

Sadly, this type of grant only comes once every five years. That’s why it’s so important for the NIH to give it a fair review, just like other rare disease grants.

You can help by calling or writing members of Congress before May 5. We’ve included everything you need in the letter here.

Together, we’ve done amazing things—from finding the first treatment for LAM to building a global network of clinics. We can’t let progress stop now.

Please read Dr. Frank McCormack’s letter to learn more—and take action today.

Thank you for standing with us.