New Patient Checklist

Learning about your LAM diagnosis can be overwhelming. Consider this checklist when deciding what the next steps in your LAM journey should be.

  • LAM Check MarkRegister with The LAM Foundation.
    • By registering with The LAM Foundation, you’ll have access to many resources that will help you learn about LAM and what your diagnosis means. You'll also be able to stay up to date on what's happening in LAM research and the LAM community through our publications, Currents and Journeys.
  • LAM Check MarkFind a LAM Clinic in your area.
    • Because LAM is so rare, it’s often difficult to find a doctor who has experience with the disease. By finding a LAM clinic in your area, you will be able to see an expert who can give you the best advice on treatment.
  • LAM Check MarkRead The LAM Handbook
    • This resource, written by LAM patients, will answer many of the questions you have about LAM.
  • LAM Check MarkWatch educational videos from LAMposium, our annual conference for patients and families as well as LAM scientists and clinicians.
    • LAMposium is the largest annual gathering of the LAM community.  Videos from last year's sessions are available on this site and offer the most up-to-date information from global LAM experts. 
  • LAM Check MarkRead Personal Journeys with LAM
    • This publication is a group of inspiring stories from other women with LAM and how they are currently living their lives. To receive a copy, contact The LAM Foundation.
  • LAM Check MarkContact The LAM Foundation
    • Contact Mary Sue Wentzel, Patient Services Manager at or (513) 777-6889. She and The LAM Foundation's staff are available to answer any questions.