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Recent Articles

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Sirolimus Gave Stephanie a Second Chance

Posted on September 02, 2021   |   

Two years ago, Stephanie Weber’s life was turned upside down. This active mom of three was struggling to breathe. She could barely even care for her Golden Retrievers. Stephanie ended up in the ER with a collapsed lung. Diagnosed with LAM, she was told she needed a lung transplant that week. She was beyond frightened. 

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Topics: DayofGiving Research        Categories: Patient Profiles
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The LAM Foundation Statement on Additional Dose of COVID-19 Vaccine

Posted on August 18, 2021   |   

On August 12, 2021 the United States Food and Drug Administration (FDA) modified the Emergency Use Authorizations (EUAs) for the mRNA COVID-19 vaccines (Pfizer and Moderna) to allow for the administration of an additional dose (i.e., a third dose) after an initial two-dose primary mRNA COVID-19 vaccine series for certain immunocompromised people. This amendment was subsequently endorsed by the Centers for Disease Control and Prevention (CDC) on August 13, 2021.

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Topics: COVID-19        Categories: News
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Coronavirus Update: Town Hall Recording Available

Posted on August 16, 2021   |   

Medical experts from the TSC Alliance and The LAM Foundation discussed the recent announcement from the FDA authorizing additional vaccine doses and the implications for TSC and LAM communities. They also provided an update on the Delta variant and current mask recommendations.

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Topics: COVID-19        Categories: Events
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Active Mother of Three Advances LAM Research

Posted on August 16, 2021   |   

Carol is always on the move as a mom of three. She was diagnosed with LAM in 2018 and was concerned she wouldn't be able to keep up with her energetic children. In 2018, she needed a hysterectomy and donated her uterus for LAM research. Carol’s tissue donation proved helpful to scientists asking the question "Where do LAM cells come from?"  For the first time, in the form of single cell RNA sequencing, researchers now have a technique that is powerful enough to help us get closer to answering this fundamental question.

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Topics: DayofGiving FundACure        Categories: Patient Profiles
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Join us for the 2021 LAM Research Virtual Conference

Posted on August 15, 2021   |   

Please join us for the 2021 LAM Research Virtual Conference, Transforming our Understanding of LAM: The Path Forward, on Friday, August 20, 2021, at 11:00 AM ET (3:00 PM GMT). This workshop, chaired by Dr. Scott Budinger, Chief of Pulmonary and Critical Care in the Department of Medicine at Northwestern University Feinberg

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Topics: Research        Categories: Events
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