Breath of Hope Gala
Saturday, June 24, 2017
6:00 PM - Midnight
Hyatt Regency Washington on Capitol Hill
400 New Jersey Avenue NW
Washington, DC 20001
Join us for an evening of hope, inspiration and generosity at one of The LAM Foundation’s biggest fundraisers of the year. Purchase your tickets below, or sponsor a table for 10! (For LAMposium DC registration, which includes the Breath of Hope Gala, click here.) Please call (877) 287-3526 if you’d like to purchase your tickets by phone or mail.
Dinner, Drinks and Dancing
Join us for one of The LAM Foundation’s biggest fundraisers of the year. During dinner, a moving program will celebrate women living with LAM and all that The LAM Foundation has accomplished. Afterwards, enjoy the celebration as we dance the night away!
Bid on purses, gift baskets, vacation packages and more, all generously donated by members of the LAM community. If you would like to make a donation to the Breath of Hope Gala Silent Auction, please download THIS FORM for ideas for donations, a solicitation letter and information about submitting your donations. If you have any further questions about donations for the silent auction, please contact Katie Jensen at KJENSEN@THELAMFOUNDATION.ORG.
Every woman with LAM in the room will be invited to the stage to receive a rose in her honor, and then pose for a beautiful group photo. The rose ceremony is a Breath of Hope Gala tradition not to be missed!
Fund A Cure
Join us for 20 minutes of pure generosity! Fund A Cure is just like a live auction, except paddles are raised to donate funds to The LAM Foundation. 100% of donations from Fund A Cure go directly to LAM research. It’s one auction where everyone is a winner. Raise your paddle to help us Fund A Cure for LAM!
Hyatt Regency Washington on Captiol Hill
400 New Jersey Avenue NW, Washington, DC 20001
FOR RESERVATIONS CALL: (800) 233-1234
Hotel room rates are $199.00 per night for a Standard Deluxe Room or Deluxe Room with Double Beds. Hotel room rates are subject to applicable state and local taxes (currently 14.5%) in effect at the time of check-out.
You can call the Hyatt Regency directly for reservations at (800) 233-1234. Mention the “TSC and LAM International Research Conference” to qualify for the discounted room rate of $199.00 per night. To receive this discounted room rate, you must make your reservation before Thursday, May 25, 2017.
The LAM Foundation is extremely grateful to all of the Sponsors who make the Breath of Hope Gala possible. Buy a table for 10 at the gala in the widget above, or sponsor the gala on behalf of your family or company.
2017 Gala Sponsors Include:
Jim Babb (in memory of Lisa Gail Gross)
Maureen and Bill Crispin
For more information about sponsorship options available, click the link below or contact Katie Jensen at KJENSEN@THELAMFOUNDATION.ORG.
2017 SPONSORS AND FRIENDS LEVELS.PDF
Gala Steering Committeeplus
The LAM Foundation could not host this event without the help of our incredible Gala Steering Committee. Thank you to the following women who have made this event possible:
Lymphangioleiomyomatosis (LAM) is a rare lung disease that occurs almost exclusively in women. There is no cure. More than 2,000 women with LAM have been identified to date, but it is suspected that there may be as many as 250,000 undiagnosed or misdiagnosed patients living with LAM worldwide. The average age of women at the time of diagnosis is approximately 35 years old, though most women with LAM have symptoms for several years before ultimately being diagnosed.
LAM is characterized by an abnormal growth of smooth muscle cells, especially in the lungs, lymphatic system and kidneys. Unregulated growth of these cells can lead to loss of lung function, accumulation of lymph rich-fluid in the chest and abdomen and growth of tumors in the kidneys. Leading researchers believe that LAM may be the simplest form of cancer.
Treatment with sirolimus (rapamycin or Rapamune) or everolimus (Afinitor) has been proven to stabilize lung function in some women with LAM. While many women with LAM add several years to their lives through pharmacotherapy, oxygen therapy, or lung transplantation, there is no cure for this fatal disease.
To learn more about LAM, please click here.
About The LAM Foundationplus
The LAM Foundation is the global leader in the fight against lymphangioleiomyomatosis (LAM), offering support to all women living with LAM, their families and friends, and physicians and researchers worldwide. The LAM Foundation urgently seeks safe and effective treatments, and ultimately a cure, for lymphangioleiomyomatosis (LAM) through advocacy and the funding of promising research. We are dedicated to serving the scientific, medical and patient communities by offering information, resources and a worldwide network of hope and support.
Founded in 1995 as a grass roots effort in Cincinnati, OH, The LAM Foundation has evolved into an organization that is described by the National Heart, Lung and Blood Institute (NHLBI) as "a model for voluntary health agencies."
The LAM Foundation has raised and invested more than $23 million in research over the last 21 years, resulting in the fundamental understanding of the genetic cause of LAM which led to the first ever clinical treatment trial and ultimately an FDA approved treatment for the disease. Sirolimus was approved in 2015 after a strikingly collaborative global effort led by The LAM Foundation and a team of dedicated scientists, researchers, clinicians, industry and government health agencies. The LAM Foundation also funded pivotal research that advanced knowledge of the mTOR pathway (important in regulating the cell division cycle), which has proven central to understanding other, much more common diseases such as cancer, diabetes and obesity. Great opportunities exist for The LAM Foundation to serve as a model for other rare disease organizations, and to share knowledge to propel treatments and cures in rare and common diseases, potentially affecting millions.
To learn more about The LAM Foundation, please click here.
For more information about LAMposium DC and the International Research Conference on TSC & LAM, go to www.thelamfoundation.org/conference.
If you would like to be involved in planning the Breath of Hope Gala, donate a silent auction item, sponsor a table, or have any questions, please contact Katie Jensen at email@example.com.